CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 51 - 75 of 855

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2149-C21873	C21873	Medical history hearing deficit indicator	The indicator related to personal medical history of hearing deficit or use of hearing aid	Supplemental-Highly Recommended	Past History (on intake)	False	Chiari I Malformation	Chiari I Malformation
F2190-C22360	C22360	Assessment post surgical procedure date	Date related to post operative evaluation	Supplemental	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2165-C22260	C22260	Reflex deep tendon reflex brachioradialis response score	The response score related to deep tendon reflex testing of brachioradialis (radial:c5-6)	Supplemental	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2156-C22773	C22773	Precipitating cause test date	Date on which the selected Precipitating Cause Test Type was performed	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2182-C22478	C22478	Attention deficit hyperactivity disorder indicator	The indicator related to the disorders of attention deficit disorder (ADD) and attention deficit hyperactivity disorder (ADHD)	Supplemental	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2148-C21785	C21785	Headache focal point extension radiation score	The score relating to the extension from the focal point of a headache	Supplemental	CMI - Headache Score	False	Chiari I Malformation	Chiari I Malformation
F2145-C21792	C21792	Cutaneous stigma absent text	The free text field related to an absence of cutaneous stigma	Supplemental	General Exam	False	Chiari I Malformation	Chiari I Malformation
F2157-C22228	C22228	Sensory abnormal dull ache pain indicator	The indicator related to abnormal dull ache pain	Supplemental	Sensory Symptoms	False	Chiari I Malformation	Chiari I Malformation
F2183-C22461	C22461	Cervical laminectomy anatomic site	The anatomic site or location related to the cervical laminectomy	Supplemental	Chiari I Malformation Treatment	False	Chiari I Malformation	Chiari I Malformation
F2148-C21836	C21836	Headache temporal association score	The score related to time of occurrence of consistent headache	Supplemental	CMI - Headache Score	False	Chiari I Malformation	Chiari I Malformation
F2156-C22741	C22741	Urination initiation difficulty indicator	Indicator of whether the patient/participant has experienced difficulty initiating urination	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2146-C01522	C01522	Height measurement	Measurement of participant's height	Supplemental	CMI - Hereditary Disorder of Connective Tissue Screening (1)	False	Chiari I Malformation	Chiari I Malformation
F2164-C06005	C06005	Data collected date and time	Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed	Supplemental	CMI - Tethered Cord Screening	False	Chiari I Malformation	Chiari I Malformation
F2183-C22485	C22485	Chiari decompression intradural adjunct fourth ventricle stent indicator	The indicator related to the addition of a fourth ventricle stent	Supplemental	Chiari I Malformation Treatment	False	Chiari I Malformation	Chiari I Malformation
F2156-C22749	C22749	Irritable bowel syndrome diagnosis ever indicator	Indicator of whether the patient/participant has ever been diagnosed with Irritable Bowel Syndrome (IBS)	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2146-C21686	C21686	Beighton Score - Motion elbow hyperextend score	Score/assessment of ability to complete the motion hyperextended elbow as part of the Beighton Score	Supplemental	CMI - Hereditary Disorder of Connective Tissue Screening (1)	False	Chiari I Malformation	Chiari I Malformation
F2164-C22380	C22380	Chiari malformation tethered spinal cord past urodynamic test indicator	The indicator related to past urodynamic testing	Supplemental	CMI - Tethered Cord Screening	False	Chiari I Malformation	Chiari I Malformation
F2145-C01565	C01565	Blood pressure systolic measurement	Measurement of pressure of the participant's blood against the artery walls during systole (the contraction phase) in millimeters of mercury (mmHg)	Supplemental	General Exam	False	Chiari I Malformation	Chiari I Malformation
F2183-C22493	C22493	Chiari decompression hospital stay post surgical procedure duration	The duration of the individual's hospital stay post operation	Supplemental	Chiari I Malformation Treatment	False	Chiari I Malformation	Chiari I Malformation
F2156-C22757	C22757	Short-term memory loss indicator	Indicator of whether the patient/participant is experiencing a loss of short-term memory	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2182-C22456	C22456	Pregnancy miscarriage medical termination still birth count	The count related to the number of abortions, miscarriages, and/or still births the mother has had	Supplemental	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2147-C21761	C21761	Chiari malformation screening hypermobility family indicator	The indicator related to family members having joint hypermobility syndrome which is a condition that features joints that easily move beyond the normal range. Expected for that particular joint in a screening diagnosis for Chiari malformation	Supplemental	CMI - Hereditary Disorders of Connective Tissue Screening (2)	False	Chiari I Malformation	Chiari I Malformation
F2164-C22388	C22388	Chiari malformation tethered spinal cord knee bent sleep back pain indicator	The indicator related to knees bent at night to relieve back or leg discomfort	Supplemental	CMI - Tethered Cord Screening	False	Chiari I Malformation	Chiari I Malformation
F2156-C22717	C22717	Stand unsteady indicator	Indicator of whether the patient/participant feels unsteady when standing	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2145-C21687	C21687	Beighton Score - Motion knee hyperextend score	Score/assessment of ability to complete the Motion hyperextended knee as part of Beighton Score	Supplemental	General Exam	False	Chiari I Malformation	Chiari I Malformation

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.