CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 301 - 325 of 855

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2142-C21703	C21703	Coordination Romberg maintain stance eye close assessment scale	The scale related to assessment of Romberg's test of neurological function of maintaining way of standing with eyes closed	Supplemental	Coordination	False	Chiari I Malformation	Chiari I Malformation
F2138-C21676	C21676	Allergy medication reaction type	Type of allergic reaction to medication	Supplemental	Allergy	False	Chiari I Malformation	Chiari I Malformation
F2157-C22227	C22227	Sensory abnormal burning pain indicator	The indicator related to abnormal burning pain	Supplemental	Sensory Symptoms	False	Chiari I Malformation	Chiari I Malformation
F2183-C22460	C22460	Suboccipital craniectomy size left right measurement range	The range of measurement related to the size of the suboccipital craniectomy left or right	Supplemental	Chiari I Malformation Treatment	False	Chiari I Malformation	Chiari I Malformation
F2153-C22031	C22031	Motor strength testing right triceps scale	The amount of movement in the right triceps muscle	Supplemental	Motor Strength Testing	False	Chiari I Malformation	Chiari I Malformation
F2194-C56970	C56970	Muscle spasm type	Type of muscle spasm	Supplemental	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
F2156-C22740	C22740	Urination urge control difficulty indicator	Indicator of whether the patient/participant has experienced difficulty controlling the urge to urinate	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2150-C21925	C21925	Balance falls frequency	The frequency as related to falls	Supplemental	Imbalance	False	Chiari I Malformation	Chiari I Malformation
F2142-C21711	C21711	Coordination heel to shin left lower extremity tap assessment scale	The scale related to assessment of the ability to complete the motion of heel to shin (lower level extremity) tap	Supplemental	Coordination	False	Chiari I Malformation	Chiari I Malformation
F2163-C22358	C22358	Chiari malformation identify specialty diagnosis type text	The free text field related to identifying the specialty of the individual responsible for diagnosis	Supplemental	Chiari Symptom Onset	False	Chiari I Malformation	Chiari I Malformation
F2183-C22484	C22484	Chiari decompression verification decompression lateral cervicomedullary junction cranial spinal nerve rootlet indicator	The indicator related to the verification of decompression within the lateral cervicomedullary junction/cranial or spinal nerve rootlets	Supplemental	Chiari I Malformation Treatment	False	Chiari I Malformation	Chiari I Malformation
F2156-C22748	C22748	Occasional bowel incontinence current indicator	Indicator of whether the patient/participant currently experiences occasional bowel incontinence	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2151-C22058	C22058	Modified Ashworth Scale - Limb tone testing right shoulder scale	The scale of limb tone testing for the right shoulder, as part of the Modified Ashworth Scale	Supplemental	Modified Ashworth Scale - Limb Tone Testing	False	Chiari I Malformation	Chiari I Malformation
F2164-C22379	C22379	Chiari malformation tethered spinal cord reoccur bladder kidney indicator	The indicator related to recurring urinary bladder or kidney infection	Supplemental	CMI - Tethered Cord Screening	False	Chiari I Malformation	Chiari I Malformation
F2149-C12875	C12875	Echocardiogram mitral valve prolapse indicator	Indicator of the absence or presence of prolapse of the mitral valve, often with regurgitation, associated with myxomatous proliferation of the leaflets of the mitral valve as assessed by echocardiography	Supplemental	Past History (on intake)	False	Chiari I Malformation	Chiari I Malformation
F2140-C21715	C21715	Tongue function deviation assessment status	Status as related to tongue function deviation	Supplemental	Brainstem Signs/Symptoms	False	Chiari I Malformation	Chiari I Malformation
F2183-C22492	C22492	Blood estimate loss measurement	The measurement related to the estimated amount of blood loss	Supplemental	Chiari I Malformation Treatment	False	Chiari I Malformation	Chiari I Malformation
F2194-C56986	C56986	Trigger point trapezius type	Type of trapezius trigger point	Supplemental	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
F2156-C22756	C22756	Genital pelvic sensation loss indicator	Indicator of whether the patient/participant has experienced a loss of sensation in his or her genital or pelvic area	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2182-C22455	C22455	Family history cranial synostosis condition type	The type related to personal or family history of the condition of cranial synostosis	Supplemental	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2151-C22104	C22104	Modified Ashworth Scale - Limb tone testing right knee scale	The scale of limb tone testing for the right knee, as part of the Modified Ashworth Scale	Supplemental	Modified Ashworth Scale - Limb Tone Testing	False	Chiari I Malformation	Chiari I Malformation
F2164-C22387	C22387	Chiari malformation tethered spinal cord sole numbness indicator	The indicator related to numbness in the soles of an individual's feet	Supplemental	CMI - Tethered Cord Screening	False	Chiari I Malformation	Chiari I Malformation
F2156-C22716	C22716	Ear pressure indicator	Indicator of whether the patient/participant has pressure in his or her ears	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2149-C19806	C19806	Medical history endocrine diabetes indicator	Indicator of diabetes	Supplemental	Past History (on intake)	False	Chiari I Malformation	Chiari I Malformation
F2140-C21724	C21724	Nausea vomit assessment status	The status as related to nausea and vomiting	Supplemental	Brainstem Signs/Symptoms	False	Chiari I Malformation	Chiari I Malformation

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.