CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 276 - 300 of 855

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2156-C13523	C13523	Dizziness or vertigo indicator	Indicator of whether the participant/subject experienced dizziness or vertigo	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2182-C16046	C16046	Pregnancy labor delivery complication indicator	Indicator of whether there were complications during labor/delivery	Supplemental	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2161-C22232	C22232	Surgical procedure anatomic site	The anatomic site related to surgical procedure	Supplemental	Surgical Site Assessment	False	Chiari I Malformation	Chiari I Malformation
F2148-C21835	C21835	Headache temporal association type	The type as related to time of occurrence of consistent headache	Supplemental	CMI - Headache Score	False	Chiari I Malformation	Chiari I Malformation
F2154-C22211	C22211	Chiari malformation neurological examination pronator drift absent indicator	The indicator related to not having pronator drift	Supplemental	Neurological Exam	False	Chiari I Malformation	Chiari I Malformation
F2158-C06005	C06005	Data collected date and time	Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed	Supplemental	Assessment of Shunt Function	False	Chiari I Malformation	Chiari I Malformation
F2146-C01521	C01521	Heart rate	The participant's pulse or number of contractions (heart beats) per minute	Supplemental	CMI - Hereditary Disorder of Connective Tissue Screening (1)	False	Chiari I Malformation	Chiari I Malformation
F2161-C22274	C22274	Surgical procedure type	The type of surgical procedure	Supplemental	Surgical Site Assessment	False	Chiari I Malformation	Chiari I Malformation
F2190-C22515	C22515	Syrinx anatomic change indicator	Indicator related to the anatomic change in the syrinx	Supplemental	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2154-C22221	C22221	Chiari malformation neurological examination secondary sensory modalities intact indicator	The indicator related to secondary sensory modalities being intact (e.g. limb localization, DSS, graphesthesia)	Supplemental	Neurological Exam	False	Chiari I Malformation	Chiari I Malformation
F2172-C21736	C21736	Imaging syrinx width measurement	Greatest transverse diameter of hydrosyringomyelia on T2-WI as measured on MRI in the axial plane (in mm)	Supplemental	Chiari I Malformation Imaging	False	Chiari I Malformation	Chiari I Malformation
F2158-C22529	C22529	Shunt valve surgical implantation date	Date of surgical implantation	Supplemental	Assessment of Shunt Function	False	Chiari I Malformation	Chiari I Malformation
F2146-C21685	C21685	Beighton Score - Motion finger bend back score	Score/Assessment of Motion to bend finger back as part of the Beighton Score	Supplemental	CMI - Hereditary Disorder of Connective Tissue Screening (1)	False	Chiari I Malformation	Chiari I Malformation
F2153-C22042	C22042	Motor strength testing intrinsic left hand scale	The amount of movement in the intrinsic muscles of the left hand	Supplemental	Motor Strength Testing	False	Chiari I Malformation	Chiari I Malformation
F2145-C01541	C01541	Weight measurement	Measurement of participant's weight	Supplemental	General Exam	False	Chiari I Malformation	Chiari I Malformation
F2193-C55648	C55648	Eye absent visual fixation primary position type	The type as related to the primary position in absence of visual fixation	Supplemental	Nystagmus/Strabismus	False	Chiari I Malformation	Chiari I Malformation
F2163-C22290	C22290	Chiari malformation information source	The source that provided information about Chiari Malformation to the patient	Supplemental	Chiari Symptom Onset	False	Chiari I Malformation	Chiari I Malformation
F2155-C22264	C22264	Reflex deep tendon reflex patellar response score	The response score related to deep tendon reflex testing of patellar (femoral:l2-4)	Supplemental	Reflex Testing	False	Chiari I Malformation	Chiari I Malformation
F2158-C22540	C22540	Shunt valve reservoir resistance type	Resistance to reservoir compression	Supplemental	Assessment of Shunt Function	False	Chiari I Malformation	Chiari I Malformation
F2153-C22050	C22050	Motor strength testing left ankle pf scale	The amount of movement in the left ankle pf	Supplemental	Motor Strength Testing	False	Chiari I Malformation	Chiari I Malformation
F2145-C21686	C21686	Beighton Score - Motion elbow hyperextend score	Score/assessment of ability to complete the motion hyperextended elbow as part of the Beighton Score	Supplemental	General Exam	False	Chiari I Malformation	Chiari I Malformation
F2193-C55656	C55656	Nystagmus valsalva emergence indicator	The indicator related to emergence or worsening of nystagmus with valsalva maneuver	Supplemental	Nystagmus/Strabismus	False	Chiari I Malformation	Chiari I Malformation
F2163-C22315	C22315	Chiari malformation auditory symptoms onset important symptom scale	The scale as related to auditory symptoms at onset importance in Chiari malformation symptoms	Supplemental	Chiari Symptom Onset	False	Chiari I Malformation	Chiari I Malformation
F2159-C22257	C22257	Spine range of motion neck extension degree value	The value in degrees related to range in motion of neck extension (50) in assessment of spine	Supplemental	Spine: Range of Motion Assessment	False	Chiari I Malformation	Chiari I Malformation
F2147-C21771	C21771	Chiari malformation screening wound prolong heal separation indicator	The indicator related to experiencing prolonged wound healing or separation in a screening for Chiari malformation	Supplemental	CMI - Hereditary Disorders of Connective Tissue Screening (2)	False	Chiari I Malformation	Chiari I Malformation

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.