CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 251 - 275 of 855

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2182-C22457	C22457	Labor duration	The duration of the mother's labor, in hours	Supplemental	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2151-C22106	C22106	Modified Ashworth Scale - Limb tone testing right ankle scale	The scale of limb tone testing for the right ankle, as part of the Modified Ashworth Scale	Supplemental	Modified Ashworth Scale - Limb Tone Testing	False	Chiari I Malformation	Chiari I Malformation
F2164-C22389	C22389	Chiari malformation tethered spinal cord low back leg pain urinary symptom stair walk indicator	The indicator related to low back pain, leg pain, or urinary symptoms while walking up stairs	Supplemental	CMI - Tethered Cord Screening	False	Chiari I Malformation	Chiari I Malformation
F2156-C22718	C22718	Walk unsteady indicator	Indicator of whether the patient/participant feels unsteady when walking	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2140-C21723	C21723	Coordination truncal instability assessment indicator	Indicator related to truncal instability or with a wide-based "drunken sailor" gait	Supplemental	Brainstem Signs/Symptoms	False	Chiari I Malformation	Chiari I Malformation
F2149-C21870	C21870	Medical history Lyme disease indicator	The indicator related to personal medical history of Lyme disease	Supplemental	Past History (on intake)	False	Chiari I Malformation	Chiari I Malformation
F2183-C22502	C22502	Spinal deformity indicator	The indicator related to a new spinal deformity or progression of an existing deformity	Supplemental	Chiari I Malformation Treatment	False	Chiari I Malformation	Chiari I Malformation
F2156-C22766	C22766	Pituitary problem diagnosis ever indicator	Indicator of whether the patient/participant has ever been diagnosed with a pituitary gland problem	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2182-C22471	C22471	Methylenetetrahydrofolate reductase genetic defect indicator	The indicator related to the absence of the methylenetetrahydrofolate reductase (MTHFR) gene, a gene essential in converting vitamin B9 into a usable form and the body's growth and metabolism	Supplemental	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2152-C02022	C02022	Medication prior or concomitant dose unit of measure	Dosage unit of measure of the prior or concomitant medication administered	Supplemental	Medications (Prior and Current)	False	Chiari I Malformation	Chiari I Malformation
F2165-C21714	C21714	Gag reflect status	Status as related to gag reflex	Supplemental	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2156-C22726	C22726	Palpitations indicator	Indicator of whether the patient/participant has experienced palpitations	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2149-C21879	C21879	Surgical history prosthetic implantation indicator	The indicator related to surgical history of prosthetic implantation	Supplemental	Past History (on intake)	False	Chiari I Malformation	Chiari I Malformation
F2190-C22361	C22361	Assessment post surgical procedure type	Type of post operative evaluation	Supplemental	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2165-C22262	C22262	Reflex deep tendon reflex finger flexor response score	The response score related to deep tendon reflex testing of finger flexor (median/ulnar:c6-t1)	Supplemental	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2272-C55643	C55643	Neck Disability Index - driving indicator	The driving pain indicator of the subject/participant as part of the Neck Disability Index	Supplemental	Neck Disability Index (NDI)	False	Chiari I Malformation	Chiari I Malformation
F2157-C22210	C22210	Sensory upper extremity numbness tingling symptom indicator	The indicator related to numbness/tingling in the upper extremities	Supplemental	Sensory Symptoms	False	Chiari I Malformation	Chiari I Malformation
F2153-C22025	C22025	Motor strength testing iliopsoas right scale	The amount of movement in the right iliopsoas	Supplemental	Motor Strength Testing	False	Chiari I Malformation	Chiari I Malformation
F2156-C22734	C22734	Skin change indicator	Indicator of whether the patient/participant has experienced a skin change	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2142-C21702	C21702	Coordination stance assessment scale	The scale related to assessment of way someone stands	Supplemental	Coordination	False	Chiari I Malformation	Chiari I Malformation
F2163-C22351	C22351	Chiari malformation bowel bladder onset symptom severity scale	The scale as related to bowel/bladder at onset severity in Chiari malformation symptoms	Supplemental	Chiari Symptom Onset	False	Chiari I Malformation	Chiari I Malformation
F2182-C11065	C11065	Gravida maternal value	Total number of times the participant's/subject's mother has been pregnant, regardless of whether these pregnancies were carried to term	Supplemental	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2161-C02411	C02411	Laterality type	Laterality type relative to the anatomic site of the body examined or affected	Supplemental	Surgical Site Assessment	False	Chiari I Malformation	Chiari I Malformation
F2190-C22390	C22390	Imaging post surgical procedure anatomical site	Anatomical site of the post operative imaging	Supplemental	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2148-C21833	C21833	Headache symptom association type	The type as related to symptoms consistently associated with headache	Supplemental	CMI - Headache Score	False	Chiari I Malformation	Chiari I Malformation

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.