CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 251 - 275 of 861
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C22184 Chiari malformation neurological examination venous pulsation visible indicator

The indicator related to venous pulsations being seen

Supplemental Neurological Exam Chiari I Malformation Chiari I Malformation
C21775 Chest clear indicator

The indicator related to a clear chest

Supplemental General Exam Chiari I Malformation Chiari I Malformation
C22337 Chiari malformation visual symptoms onset symptom severity scale

The scale as related to visual symptoms at onset severity in Chiari malformation symptoms

Supplemental Chiari Symptom Onset Chiari I Malformation Chiari I Malformation
C22363 Reflex autonomic reflex axon reflex status

The response status as related to autonomic reflexes axon reflexes status

Supplemental Reflex Testing Chiari I Malformation Chiari I Malformation
C22229 Headache pain anatomic site

The anatomic site relating to the subject's headache

Supplemental Strain - Related Headache Chiari I Malformation Chiari I Malformation
C21785 Headache focal point extension radiation score

The score relating to the extension from the focal point of a headache

Supplemental CMI - Headache Score Chiari I Malformation Chiari I Malformation
C22201 Chiari malformation neurological examination hearing intact indicator

The indicator related to hearing being intact to 128 Hz TF, and the Weber is midline

Supplemental Neurological Exam Chiari I Malformation Chiari I Malformation
C22270 Reflex deep tendon reflex adductor response score

The response score related to deep tendon reflex testing of adductor (obturator:l2-4)

Supplemental Chiari I Malformation Presentation Exam Chiari I Malformation Chiari I Malformation
C21792 Cutaneous stigma absent text

The free text field related to an absence of cutaneous stigma

Supplemental General Exam Chiari I Malformation Chiari I Malformation
C19831 Psychiatric anxiety indicator

Indicator of anxiety

Supplemental Co-Morbidities Chiari I Malformation Chiari I Malformation
C22237 Surgical procedure anatomic site other text

The free text field related to other anatomic site of surgical procedure

Supplemental Surgical Site Assessment Chiari I Malformation Chiari I Malformation
C22394 Tonsil position change measurement

Measurement related to the change in the position of the patient's lowest tonsil between pre surgical and post surgical images

Supplemental Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
C22212 Chiari malformation neurological examination deep tendon reflex symmetrical indicator

The indicator related to deep tendon reflexes (DTRs) 1-2+ and symmetrical

Supplemental Neurological Exam Chiari I Malformation Chiari I Malformation
C22509 Shunt type

Shunt type

Supplemental Assessment of Shunt Function Chiari I Malformation Chiari I Malformation
C01522 Height measurement

Measurement of participant's height

Supplemental CMI - Hereditary Disorder of Connective Tissue Screening (1) Chiari I Malformation Chiari I Malformation
C22035 Motor strength testing left wrist extension scale

The amount of movement in the extension of the left wrist muscles

Supplemental Motor Strength Testing Chiari I Malformation Chiari I Malformation
C21712 Coordination total assessment score

Total score of the Coordination assessment scale

Supplemental Coordination Chiari I Malformation Chiari I Malformation
C22573 Surgical procedure complication mechanic displacement indicator

Indicator related to the complication of mechanical displacement

Supplemental Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
C22278 Surgical procedure complications type

The type of complication(s) that have occurred as related to the surgical procedure

Supplemental Surgical Site Assessment Chiari I Malformation Chiari I Malformation
C22516 Syrinx length measurement

Measurement of the longitudinal length of the subject's spinal syrinx

Supplemental Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
C06005 Data collected date and time

Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed

Supplemental Reflex Testing Chiari I Malformation Chiari I Malformation
C22531 Shunt valve surgical site status

Shunt valve surgical site status

Supplemental Assessment of Shunt Function Chiari I Malformation Chiari I Malformation
C21686 Beighton Score - Motion elbow hyperextend score

Score/assessment of ability to complete the motion hyperextended elbow as part of the Beighton Score

Supplemental CMI - Hereditary Disorder of Connective Tissue Screening (1) Chiari I Malformation Chiari I Malformation
C22043 Motor strength testing right hamstring scale

The amount of movement in the right hamstring

Supplemental Motor Strength Testing Chiari I Malformation Chiari I Malformation
C01565 Blood pressure systolic measurement

Measurement of pressure of the participant's blood against the artery walls during systole (the contraction phase) in millimeters of mercury (mmHg)

Supplemental General Exam Chiari I Malformation Chiari I Malformation
Displaying 251 - 275 of 861

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.