CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

Search Form

CRF Name

Displaying 1 - 25 of 901

1
2
3
4
5
6
7
8
9
…
next ›
last »

Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Sub Disease Name
C55650	Eye visual fixation left lateral gaze type	The type as related to left lateral gaze in visual fixation	Supplemental-Highly Recommended	Nystagmus/Strabismus	False	Chiari I Malformation	Chiari I Malformation
C00015	Education year count	Number of years of education completed (age 5 and beyond)	Supplemental-Highly Recommended	General Core	False	Chiari I Malformation	Chiari I Malformation
C22732	Burning pain abnormal extremity indicator	Indicator of whether the patient/participant has experienced an abnormal burning pain in his or her extremeties	Supplemental-Highly Recommended	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
C21886	Injury Head Indicator	The indicator relating to traumatic head injury	Supplemental-Highly Recommended	Past History (on intake)	False	Chiari I Malformation	Chiari I Malformation
C21577	Respiration stop during sleep indicator	The indicator related to stopping of transport of oxygen from the outside air to the cells within tissues during sleep	Supplemental-Highly Recommended	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
C21688	Beighton Score - Motion palm flat leg straight score	Score of ability of completing the motion palm flat and leg straight as part of the Beighton Score	Supplemental-Highly Recommended	Beighton Score	False	Chiari I Malformation	Chiari I Malformation
C22376	Tonsil lowest position measurement	Measurement of the lowest position of the patient's tonsils	Supplemental-Highly Recommended	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
C21732	Imaging syrinx present indicator	The indicator related to presence of syrinx within the spinal cord measuring greater than 3 mm in axial plane T1 imaging	Supplemental-Highly Recommended	Chiari I Malformation Imaging	False	Chiari I Malformation	Chiari I Malformation
C22208	Stiffness pain general indicator	The indicator related to general neck pain/stiffness	Supplemental-Highly Recommended	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
C13758	Imaging diagnosis stroke transient ischemic attack indicator	Indicator of the diagnosis of stroke/transient ischemic attack (TIA) for imaging positive	Supplemental-Highly Recommended	Past History (on intake)	False	Chiari I Malformation	Chiari I Malformation
C55651	Eye visual fixation vertical downgaze type	The type as related to vertical downgaze in visual fixation	Supplemental-Highly Recommended	Nystagmus/Strabismus	False	Chiari I Malformation	Chiari I Malformation
C22733	Extremity specific area pain decreased sensation indicator	Indicator of whether the patient/participant has experienced pain or decreased sensation in a specific area of his or her extremities	Supplemental-Highly Recommended	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
C21887	Injury whiplash indicator	The indicator relating to injury in the form of whiplash	Supplemental-Highly Recommended	Past History (on intake)	False	Chiari I Malformation	Chiari I Malformation
C22365	Reflex autonomic reflex valsalva maneuver status	The response status as related to autonomic reflexes valsalva maneuver status	Supplemental-Highly Recommended	Reflex Testing	False	Chiari I Malformation	Chiari I Malformation
C21689	Beighton Score - Total score	Total score as related to the Beighton Score	Supplemental-Highly Recommended	Beighton Score	False	Chiari I Malformation	Chiari I Malformation
C22764	Joint hypermobility indicator	Indicator of whether the patient/participant is experiencing or exhibits hypermobility of one or more joints	Supplemental-Highly Recommended	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
C22377	Tonsil right cerebellar measurement	Measurement related to the lowest position of the patient's right cerebellar tonsil	Supplemental-Highly Recommended	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
C21689	Beighton Score - Total score	Total score as related to the Beighton Score	Supplemental-Highly Recommended	CMI - Hereditary Disorder of Connective Tissue Screening (1)	False	Chiari I Malformation	Chiari I Malformation
C21888	Injury fall head neck indicator	The indicator relating to injury in the form of the patient falling on their head or neck	Supplemental-Highly Recommended	Past History (on intake)	False	Chiari I Malformation	Chiari I Malformation
C22402	Hereditary disorder connective tissue diagnosis indicator	The indicator related to personal or family history of double-jointedness or excessive joint flexibility or dislocations, also known as Hereditary Disorder of Connective Tissue (HDCT)	Supplemental-Highly Recommended	CMI - Hereditary Disorder of Connective Tissue Screening (1)	False	Chiari I Malformation	Chiari I Malformation
C22433	Medical history aortic root enlargement indicator	The indicator related to any medical history of the enlargement of the subject's aortic root	Supplemental-Highly Recommended	CMI - Hereditary Disorder of Connective Tissue Screening (1)	False	Chiari I Malformation	Chiari I Malformation
C55654	Saccadic pursuit indicator	The indicator related to saccadic pursuit	Supplemental-Highly Recommended	Nystagmus/Strabismus	False	Chiari I Malformation	Chiari I Malformation
C21872	Medical history visual impairment indicator	The indicator related to personal medical history of visual impairment or legally blind	Supplemental-Highly Recommended	Past History (on intake)	False	Chiari I Malformation	Chiari I Malformation
C21882	Surgical history cataract removal indicator	The indicator related to surgical history of cataract removal	Supplemental-Highly Recommended	Past History (on intake)	False	Chiari I Malformation	Chiari I Malformation
C22736	Extremity weakness indicator	Indicator of whether the patient/participant has experienced weakness of his or her extremities	Supplemental-Highly Recommended	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation

Displaying 1 - 25 of 901

1
2
3
4
5
6
7
8
9
…
next ›
last »

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.