CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

Search Form

Displaying 1 - 25 of 901
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C21684 Beighton Score - Motion thumb forearm assessment score

Score/Assessment of the motion thumb to forearm as part of the Beighton Score

Supplemental-Highly Recommended Beighton Score Chiari I Malformation Chiari I Malformation
C21885 Pain general leg indicator

The indicator relating to general leg pain.

Supplemental-Highly Recommended Past History (on intake) Chiari I Malformation Chiari I Malformation
C21696 Chiari I malformation headache strain activity worsen symptom indicator

The indicator related to headache worsened by straining activities in defining signs and symptoms for Chiari I malformation.

Supplemental-Highly Recommended Chiari List of 10 Chiari I Malformation Chiari I Malformation
C22736 Extremity weakness indicator

Indicator of whether the patient/participant has experienced weakness of his or her extremities.

Supplemental-Highly Recommended Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C01052 Loss of consciousness indicator

The indicator for whether the participant/subject experienced any period of loss of consciousness (LOC).

Supplemental-Highly Recommended Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C21685 Beighton Score - Motion finger bend back score

Score/Assessment of Motion to bend finger back as part of the Beighton Score

Supplemental-Highly Recommended Beighton Score Chiari I Malformation Chiari I Malformation
C55654 Saccadic pursuit indicator

The indicator related to saccadic pursuit.

Supplemental-Highly Recommended Nystagmus/Strabismus Chiari I Malformation Chiari I Malformation
C21886 Injury Head Indicator

The indicator relating to traumatic head injury.

Supplemental-Highly Recommended Past History (on intake) Chiari I Malformation Chiari I Malformation
C22393 Tonsil left cerebellar measurement

Measurement related to the lowest position of the patient's left cerebellar tonsil.

Supplemental-Highly Recommended Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
C21686 Beighton Score - Motion elbow hyperextend score

Score/assessment of ability to complete the motion hyperextended elbow as part of the Beighton Score

Supplemental-Highly Recommended Beighton Score Chiari I Malformation Chiari I Malformation
C55647 Eye visual fixation primary position type

The type as related to the primary position during visual fixation.

Supplemental-Highly Recommended Nystagmus/Strabismus Chiari I Malformation Chiari I Malformation
C22729 Pain touch sensitivity increase indicator

Indicator of whether the patient/participant has experienced an increase in sensitivity to pain or touch.

Supplemental-Highly Recommended Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C22370 Imaging post surgical procedure type

Type of post surgical imaging

Supplemental-Highly Recommended Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
C21887 Injury whiplash indicator

The indicator relating to injury in the form of whiplash.

Supplemental-Highly Recommended Past History (on intake) Chiari I Malformation Chiari I Malformation
C13758 Imaging diagnosis stroke transient ischemic attack indicator

Indicator of the diagnosis of stroke/transient ischemic attack (TIA) for imaging positive

Supplemental-Highly Recommended Past History (on intake) Chiari I Malformation Chiari I Malformation
C22198 Behind eye pain radiate indicator

The indicator related to pain radiating behind your eyes.

Supplemental-Highly Recommended Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C21687 Beighton Score - Motion knee hyperextend score

Score/assessment of ability to complete the Motion hyperextended knee as part of Beighton Score

Supplemental-Highly Recommended Beighton Score Chiari I Malformation Chiari I Malformation
C22722 Swallow difficulty indicator

Indicator of whether the patient/participant has difficulty swallowing.

Supplemental-Highly Recommended Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C22730 Pain sensitivity decrease indicator

Indicator of whether the patient/participant has experienced a decrease in sensitivity to pain.

Supplemental-Highly Recommended Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C22737 Muscle tone loss indicator

Indicator of whether the patient/participant has experienced a loss of muscle tone.

Supplemental-Highly Recommended Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C21888 Injury fall head neck indicator

The indicator relating to injury in the form of the patient falling on their head or neck.

Supplemental-Highly Recommended Past History (on intake) Chiari I Malformation Chiari I Malformation
C21689 Beighton Score - Total score

Total score as related to the Beighton Score

Supplemental-Highly Recommended CMI - Hereditary Disorder of Connective Tissue Screening (1) Chiari I Malformation Chiari I Malformation
C22200 Neck shoulder pain radiate indicator

The indicator related to pain radiating to the neck or shoulders.

Supplemental-Highly Recommended Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C21688 Beighton Score - Motion palm flat leg straight score

Score of ability of completing the motion palm flat and leg straight as part of the Beighton Score

Supplemental-Highly Recommended Beighton Score Chiari I Malformation Chiari I Malformation
C55649 Eye visual fixation right lateral gaze type

The type as related to right lateral gaze in visual fixation.

Supplemental-Highly Recommended Nystagmus/Strabismus Chiari I Malformation Chiari I Malformation
Displaying 1 - 25 of 901

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.