CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 1 - 25 of 855
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C22776 Hereditary disorder type

The type related to hereditary disorder of connective tissues

Supplemental-Highly Recommended CMI - Hereditary Disorder of Connective Tissue Screening (1) Chiari I Malformation Chiari I Malformation
C22393 Tonsil left cerebellar measurement

Measurement related to the lowest position of the patient's left cerebellar tonsil

Supplemental-Highly Recommended Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
C21686 Beighton Score - Motion elbow hyperextend score

Score/assessment of ability to complete the motion hyperextended elbow as part of the Beighton Score

Supplemental-Highly Recommended Beighton Score Chiari I Malformation Chiari I Malformation
C21873 Medical history hearing deficit indicator

The indicator related to personal medical history of hearing deficit or use of hearing aid

Supplemental-Highly Recommended Past History (on intake) Chiari I Malformation Chiari I Malformation
C22729 Pain touch sensitivity increase indicator

Indicator of whether the patient/participant has experienced an increase in sensitivity to pain or touch

Supplemental-Highly Recommended Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C22737 Muscle tone loss indicator

Indicator of whether the patient/participant has experienced a loss of muscle tone

Supplemental-Highly Recommended Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C55649 Eye visual fixation right lateral gaze type

The type as related to right lateral gaze in visual fixation

Supplemental-Highly Recommended Nystagmus/Strabismus Chiari I Malformation Chiari I Malformation
C22198 Behind eye pain radiate indicator

The indicator related to pain radiating behind your eyes

Supplemental-Highly Recommended Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C21687 Beighton Score - Motion knee hyperextend score

Score/assessment of ability to complete the Motion hyperextended knee as part of Beighton Score

Supplemental-Highly Recommended Beighton Score Chiari I Malformation Chiari I Malformation
C22722 Swallow difficulty indicator

Indicator of whether the patient/participant has difficulty swallowing

Supplemental-Highly Recommended Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C21874 Medical history paraplegia quadriplegia indicator

The indicator related to personal medical history of paraplegia/quadriplegia

Supplemental-Highly Recommended Past History (on intake) Chiari I Malformation Chiari I Malformation
C00015 Education year count

Number of years of education completed (age 5 and beyond)

Supplemental-Highly Recommended General Core Chiari I Malformation Chiari I Malformation
C22730 Pain sensitivity decrease indicator

Indicator of whether the patient/participant has experienced a decrease in sensitivity to pain

Supplemental-Highly Recommended Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C21884 Pain lower back indicator

The indicator relating to lower back pain

Supplemental-Highly Recommended Past History (on intake) Chiari I Malformation Chiari I Malformation
C55650 Eye visual fixation left lateral gaze type

The type as related to left lateral gaze in visual fixation

Supplemental-Highly Recommended Nystagmus/Strabismus Chiari I Malformation Chiari I Malformation
C21577 Respiration stop during sleep indicator

The indicator related to stopping of transport of oxygen from the outside air to the cells within tissues during sleep

Supplemental-Highly Recommended Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C22200 Neck shoulder pain radiate indicator

The indicator related to pain radiating to the neck or shoulders

Supplemental-Highly Recommended Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C21688 Beighton Score - Motion palm flat leg straight score

Score of ability of completing the motion palm flat and leg straight as part of the Beighton Score

Supplemental-Highly Recommended Beighton Score Chiari I Malformation Chiari I Malformation
C22731 Sensation loss extremities indicator

Indicator of whether the patient/participant has experienced a partial or complete loss of sensation in his or her extremities

Supplemental-Highly Recommended Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C21885 Pain general leg indicator

The indicator relating to general leg pain

Supplemental-Highly Recommended Past History (on intake) Chiari I Malformation Chiari I Malformation
C22518 Syrinx width measurement

Measurement of the maximum width of the patient's spinal syrinx after the operation

Supplemental-Highly Recommended Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
C55651 Eye visual fixation vertical downgaze type

The type as related to vertical downgaze in visual fixation

Supplemental-Highly Recommended Nystagmus/Strabismus Chiari I Malformation Chiari I Malformation
C22365 Reflex autonomic reflex valsalva maneuver status

The response status as related to autonomic reflexes valsalva maneuver status

Supplemental-Highly Recommended Reflex Testing Chiari I Malformation Chiari I Malformation
C22373 Imaging pre surgical procedure type

Type of pre-surgical imaging

Supplemental-Highly Recommended Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
C21689 Beighton Score - Total score

Total score as related to the Beighton Score

Supplemental-Highly Recommended Beighton Score Chiari I Malformation Chiari I Malformation
Displaying 1 - 25 of 855

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.