CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 226 - 250 of 855

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2182-C22435	C22435	Medical history valvular stenosis indicator	The indicator related to any medical history of valvular stenosis, in which there is narrowing, stiffening, thickening, fusion, or blockage of one or more of the valves in the subject's heart	Exploratory	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2156-C19833	C19833	Psychiatric depression indicator	Indicator of history of depression	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2182-C19831	C19831	Psychiatric anxiety indicator	Indicator of anxiety	Supplemental	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2161-C22237	C22237	Surgical procedure anatomic site other text	The free text field related to other anatomic site of surgical procedure	Supplemental	Surgical Site Assessment	False	Chiari I Malformation	Chiari I Malformation
F2190-C22394	C22394	Tonsil position change measurement	Measurement related to the change in the position of the patient's lowest tonsil between pre surgical and post surgical images	Supplemental	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2148-C21836	C21836	Headache temporal association score	The score related to time of occurrence of consistent headache	Supplemental	CMI - Headache Score	False	Chiari I Malformation	Chiari I Malformation
F2154-C22212	C22212	Chiari malformation neurological examination deep tendon reflex symmetrical indicator	The indicator related to deep tendon reflexes (DTRs) 1-2+ and symmetrical	Supplemental	Neurological Exam	False	Chiari I Malformation	Chiari I Malformation
F2158-C22509	C22509	Shunt type	Shunt type	Supplemental	Assessment of Shunt Function	False	Chiari I Malformation	Chiari I Malformation
F2146-C01522	C01522	Height measurement	Measurement of participant's height	Supplemental	CMI - Hereditary Disorder of Connective Tissue Screening (1)	False	Chiari I Malformation	Chiari I Malformation
F2190-C22573	C22573	Surgical procedure complication mechanic displacement indicator	Indicator related to the complication of mechanical displacement	Supplemental	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2161-C22278	C22278	Surgical procedure complications type	The type of complication(s) that have occurred as related to the surgical procedure	Supplemental	Surgical Site Assessment	False	Chiari I Malformation	Chiari I Malformation
F2190-C22516	C22516	Syrinx length measurement	Measurement of the longitudinal length of the subject's spinal syrinx	Supplemental	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2155-C06005	C06005	Data collected date and time	Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed	Supplemental	Reflex Testing	False	Chiari I Malformation	Chiari I Malformation
F2158-C22531	C22531	Shunt valve surgical site status	Shunt valve surgical site status	Supplemental	Assessment of Shunt Function	False	Chiari I Malformation	Chiari I Malformation
F2146-C21686	C21686	Beighton Score - Motion elbow hyperextend score	Score/assessment of ability to complete the motion hyperextended elbow as part of the Beighton Score	Supplemental	CMI - Hereditary Disorder of Connective Tissue Screening (1)	False	Chiari I Malformation	Chiari I Malformation
F2153-C22043	C22043	Motor strength testing right hamstring scale	The amount of movement in the right hamstring	Supplemental	Motor Strength Testing	False	Chiari I Malformation	Chiari I Malformation
F2145-C01565	C01565	Blood pressure systolic measurement	Measurement of pressure of the participant's blood against the artery walls during systole (the contraction phase) in millimeters of mercury (mmHg)	Supplemental	General Exam	False	Chiari I Malformation	Chiari I Malformation
F2163-C22292	C22292	Chiari malformation associate problem diagnosis type	The type related to any associated problems found at the patient's diagnosis of Chiari Malformation	Supplemental	Chiari Symptom Onset	False	Chiari I Malformation	Chiari I Malformation
F2190-C22525	C22525	Parenchymal morphology post surgical procedure brainstem shape type	Type of the shape of the patient's brainstem post surgery	Supplemental	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2155-C22270	C22270	Reflex deep tendon reflex adductor response score	The response score related to deep tendon reflex testing of adductor (obturator:l2-4)	Supplemental	Reflex Testing	False	Chiari I Malformation	Chiari I Malformation
F2158-C22541	C22541	Shunt valve reservoir refill lying duration	Time to refill after compression, with the subject/participant lying down	Supplemental	Assessment of Shunt Function	False	Chiari I Malformation	Chiari I Malformation
F2147-C21761	C21761	Chiari malformation screening hypermobility family indicator	The indicator related to family members having joint hypermobility syndrome which is a condition that features joints that easily move beyond the normal range. Expected for that particular joint in a screening diagnosis for Chiari malformation	Supplemental	CMI - Hereditary Disorders of Connective Tissue Screening (2)	False	Chiari I Malformation	Chiari I Malformation
F2153-C22051	C22051	Motor strength testing right ehl scale	The amount of movement in the right ehl	Supplemental	Motor Strength Testing	False	Chiari I Malformation	Chiari I Malformation
F2145-C21687	C21687	Beighton Score - Motion knee hyperextend score	Score/assessment of ability to complete the Motion hyperextended knee as part of Beighton Score	Supplemental	General Exam	False	Chiari I Malformation	Chiari I Malformation
F2163-C22317	C22317	Chiari malformation fatigue onset important symptom scale	The scale as related to fatigue at onset importance in Chiari malformation symptoms	Supplemental	Chiari Symptom Onset	False	Chiari I Malformation	Chiari I Malformation

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.