CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 226 - 250 of 855
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C22051 Motor strength testing right ehl scale

The amount of movement in the right ehl

Exploratory Chiari I Malformation Presentation Exam Chiari I Malformation Chiari I Malformation
C22176 Chiari malformation neurological examination alert orient indicator

The indicator related to patient being alert and oriented to person, place and time

Supplemental Neurological Exam Chiari I Malformation Chiari I Malformation
C21689 Beighton Score - Total score

Total score as related to the Beighton Score

Supplemental General Exam Chiari I Malformation Chiari I Malformation
C55659 Cervical posture type

The type as related to cervical posture

Supplemental Provocative-Other Testing Chiari I Malformation Chiari I Malformation
C22323 Chiari malformation cardiac onset important symptom scale

The scale as related to cardiac at onset importance in Chiari malformation symptoms

Supplemental Chiari Symptom Onset Chiari I Malformation Chiari I Malformation
C22263 Spine range of motion trunk extension degree value

The value in degrees related to range in motion of trunk extension (30) in assessment of spine

Supplemental Spine: Range of Motion Assessment Chiari I Malformation Chiari I Malformation
C05400 Injury date time

Date (and time, if applicable and known) of injury

Supplemental CMI - Headache Score Chiari I Malformation Chiari I Malformation
C22186 Chiari malformation I neurological examination ptosis absent extraocular muscles intact pupils equal round light reaction indicator

The indicator related to extraocular muscles (EOMs) are intact, intact pupils equal round react light (PERRL), and no ptosis

Supplemental Neurological Exam Chiari I Malformation Chiari I Malformation
C21777 Abdomen soft non tender indicator

The indicator related to identifying a soft and non tender abdomen

Supplemental General Exam Chiari I Malformation Chiari I Malformation
C22343 Chiari malformation fatigue onset symptom severity scale

The scale as related to fatigue at onset severity in Chiari malformation symptoms

Supplemental Chiari Symptom Onset Chiari I Malformation Chiari I Malformation
C00035 Gender type

Self-reported gender of the participant/subject

Supplemental Co-Morbidities Chiari I Malformation Chiari I Malformation
C22234 Headache quality type

The type related to the quality of the subject's headache

Supplemental Strain - Related Headache Chiari I Malformation Chiari I Malformation
C21788 Headache quality score

The score related to the quality of the patient's headache

Supplemental CMI - Headache Score Chiari I Malformation Chiari I Malformation
C22203 Chiari malformation neurological examination dysarthria dysphonia absent indicator

The indicator related to not having dysarthria or dysphonia

Supplemental Neurological Exam Chiari I Malformation Chiari I Malformation
C21795 TMJ intact indicator

The indicator related to an intact TMJ

Supplemental General Exam Chiari I Malformation Chiari I Malformation
C22567 Surgical procedure complication transdermal cerebrospinal fluid leak indicator

Indicator related to the complication of a trans-dermal cerebrospinal fluid (CSF) leak in the patient's brain

Supplemental Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
C21692 Chiari I malformation prickle tingle numb arm leg frequent occurrence symptom indicator

The indicator related to frequent prickling, tingling or numbness in your arms/legs in defining signs and symptoms for Chiari I malformation

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C21870 Medical history Lyme disease indicator

The indicator related to personal medical history of Lyme disease

Supplemental Co-Morbidities Chiari I Malformation Chiari I Malformation
C22241 Surgical procedure wound healing assessment other text

The free-text field related to other wound healing assessment from surgical procedure

Supplemental Surgical Site Assessment Chiari I Malformation Chiari I Malformation
C22396 Cerebrospinal fluid dorsal space change measurement

Measurement related to the change in the width of the dorsal cerebrospinal fluid (CSF) spaces

Supplemental Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
C22215 Chiari malformation neurological examination plantar flexor response indicator

The indicator related to plantar responses are flexor

Supplemental Neurological Exam Chiari I Malformation Chiari I Malformation
C01582 Height unit of measure

Unit of measure for the height numerical value for participant

Supplemental CMI - Hereditary Disorder of Connective Tissue Screening (1) Chiari I Malformation Chiari I Malformation
C22037 Motor strength testing gluteus left scale

The amount of movement in the left gluteus

Supplemental Motor Strength Testing Chiari I Malformation Chiari I Malformation
C22575 Surgical procedure performed date

Date the surgical procedure was performed on the subject

Supplemental Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
C01522 Height measurement

Measurement of participant's height

Supplemental Chiari Symptom Onset Chiari I Malformation Chiari I Malformation
Displaying 226 - 250 of 855

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.