CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 176 - 200 of 861

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2158-C22523	C22523	Shunt valve manufacturer other text	The free-text related to shunt valve manufacturer; specifying other text	Exploratory	Assessment of Shunt Function	False	Chiari I Malformation	Chiari I Malformation
F2172-C21741	C21741	Imaging posterior cranial fossa basion axial interval extension measurement	The measurement as related to distance from tip of basion to posterior axial line while in extension	Exploratory	Chiari I Malformation Imaging	False	Chiari I Malformation	Chiari I Malformation
F2194-C56994	C56994	Spinal percussion local pain text	Text field related to the spinal percussion local pain	Exploratory	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
F2182-C22469	C22469	Medical history tuberculosis condition indicator	The indicator related to medical history of the condition tuberculosis (TB)	Exploratory	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2165-C22105	C22105	Modified Ashworth Scale - Limb tone testing left knee scale	The scale of limb tone testing for the left knee, as part of the Modified Ashworth Scale	Exploratory	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2190-C22552	C22552	Symptom sensory deficit pre surgical procedure score	Score related to the symptom scale of the subject's sensory deficit pre-surgery	Exploratory	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2141-C21694	C21694	Chiari I malformation unsteady stand walk symptom indicator	The indicator related to feelings of unsteadiness when standing or walking in defining signs and symptoms for Chiari I malformation	Exploratory	Chiari List of 10	False	Chiari I Malformation	Chiari I Malformation
F2190-C22560	C22560	Symptom cranial nerve surgical procedure change score	Score related to the change in the subject's cranial nerves scores	Exploratory	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2165-C22028	C22028	Motor strength testing right bicep scale	The amount of movement in the right bicep muscle	Exploratory	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2190-C22568	C22568	Surgical procedure complication transdermal cerebrospinal fluid leak etiology type	Type related to the etiology of the trans-dermal cerebrospinal fluid (CSF) leak, if present	Exploratory	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2165-C22036	C22036	Motor strength testing right wrist flexion scale	The amount of movement in the flexion of the right wrist muscles	Exploratory	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2138-C21683	C21683	Allergy reaction other source indicator	Indicator related to other source of allergic reaction	Exploratory	Allergy	False	Chiari I Malformation	Chiari I Malformation
F2165-C22046	C22046	Motor strength testing left hamstring scale	The amount of movement in the left hamstring	Exploratory	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2165-C22062	C22062	Modified Ashworth Scale - Limb tone testing left shoulder scale	The scale of limb tone testing for the left shoulder, as part of the Modified Ashworth Scale	Exploratory	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2182-C22424	C22424	Gestation other indicator	The indicator related to another form of gestation	Exploratory	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2155-C22326	C22326	Reflex pyramidal frontal release sign foot grasp status	The response status as related to pyramidal/frontal release sign foot grasp reflex	Exploratory	Reflex Testing	False	Chiari I Malformation	Chiari I Malformation
F2172-C58514	C58514	Empty sella turcica present indicator	The indicator related to presence of empty sella turcica	Exploratory	Chiari I Malformation Imaging	False	Chiari I Malformation	Chiari I Malformation
F2159-C22267	C22267	Spine range of motion trunk right lateral bend degree value	The value in degrees related to range in motion of trunk right lateral bend (25) in assessment of spine	Exploratory	Spine: Range of Motion Assessment	False	Chiari I Malformation	Chiari I Malformation
F2148-C21780	C21780	Headache primary laterality anatomic site	The location related to the lateral site of the primary headache	Exploratory	CMI - Headache Score	False	Chiari I Malformation	Chiari I Malformation
F2182-C22440	C22440	Head shape trigonocephaly indicator	The indicator related to head shape trigonocephaly, in which the subject has a triangular shaped forehead	Exploratory	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2155-C22260	C22260	Reflex deep tendon reflex brachioradialis response score	The response score related to deep tendon reflex testing of brachioradialis (radial:c5-6)	Exploratory	Reflex Testing	False	Chiari I Malformation	Chiari I Malformation
F2172-C21742	C21742	Imaging posterior cranial fossa basion axial interval flexion measurement	The measurement as related to distance from tip of basion to posterior axial line while in flexion	Exploratory	Chiari I Malformation Imaging	False	Chiari I Malformation	Chiari I Malformation
F2182-C22416	C22416	Birth delivery normal indicator	The indicator related to birth presentation at delivery being normal	Exploratory	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2155-C22291	C22291	Reflex superficial reflex anal response status	The response status of superficial reflex testing of anal (inf. Hemorrhoidal: S2-S4)	Exploratory	Reflex Testing	False	Chiari I Malformation	Chiari I Malformation
F2194-C56995	C56995	Sacroiliac joint dysfunction palpitation pain type	Type of palpitation in sacroiliac joint dysfunction pain	Exploratory	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.