CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 101 - 125 of 855

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2172-C21756	C21756	Imaging other incidental finding text	The free-text field related to report of any additional incidental findings (e.g.- Meniongioma, arachnoid cyst, tumor, stroke)	Exploratory	Chiari I Malformation Imaging	False	Chiari I Malformation	Chiari I Malformation
F2190-C22560	C22560	Symptom cranial nerve surgical procedure change score	Score related to the change in the subject's cranial nerves scores	Exploratory	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2148-C21790	C21790	Headache frequency type	The rate at which a headache occurs over a period of time	Exploratory	CMI - Headache Score	False	Chiari I Malformation	Chiari I Malformation
F2190-C22568	C22568	Surgical procedure complication transdermal cerebrospinal fluid leak etiology type	Type related to the etiology of the trans-dermal cerebrospinal fluid (CSF) leak, if present	Exploratory	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2172-C21740	C21740	Imaging posterior cranial fossa basion axial interval measurement	The measurement as related to distance from tip of basion to posterior axial line	Exploratory	Chiari I Malformation Imaging	False	Chiari I Malformation	Chiari I Malformation
F2165-C22058	C22058	Modified Ashworth Scale - Limb tone testing right shoulder scale	The scale of limb tone testing for the right shoulder, as part of the Modified Ashworth Scale	Exploratory	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2165-C22104	C22104	Modified Ashworth Scale - Limb tone testing right knee scale	The scale of limb tone testing for the right knee, as part of the Modified Ashworth Scale	Exploratory	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2194-C56995	C56995	Sacroiliac joint dysfunction palpitation pain type	Type of palpitation in sacroiliac joint dysfunction pain	Exploratory	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
F2165-C22027	C22027	Motor strength testing left deltoid scale	The amount of movement in the left deltoid muscle	Exploratory	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2165-C22035	C22035	Motor strength testing left wrist extension scale	The amount of movement in the extension of the left wrist muscles	Exploratory	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2182-C22440	C22440	Head shape trigonocephaly indicator	The indicator related to head shape trigonocephaly, in which the subject has a triangular shaped forehead	Exploratory	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2138-C21682	C21682	Allergy reaction other source text	Free-text field to specify other source of allergy	Exploratory	Allergy	False	Chiari I Malformation	Chiari I Malformation
F2165-C22043	C22043	Motor strength testing right hamstring scale	The amount of movement in the right hamstring	Exploratory	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2172-C21741	C21741	Imaging posterior cranial fossa basion axial interval extension measurement	The measurement as related to distance from tip of basion to posterior axial line while in extension	Exploratory	Chiari I Malformation Imaging	False	Chiari I Malformation	Chiari I Malformation
F2190-C22534	C22534	Surgical procedure complication fluid collection type	Type of fluid collection in the patient's brain post operation, if any	Exploratory	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2182-C22423	C22423	Gestation triplet indicator	The indicator related to a triplet gestation	Exploratory	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2190-C22553	C22553	Symptom sensory deficit post surgical procedure score	Score related to the symptom scale of the subject's sensory deficit post-surgery	Exploratory	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2155-C22321	C22321	Reflex pyramidal frontal release sign palmomental status	The response status as related to pyramidal/frontal release sign palmomental reflex	Exploratory	Reflex Testing	False	Chiari I Malformation	Chiari I Malformation
F2172-C21757	C21757	Imaging hydrocephalus ventriculomegaly finding indicator	The indicator related to presence of hydrocephalus/ventriculomegaly	Exploratory	Chiari I Malformation Imaging	False	Chiari I Malformation	Chiari I Malformation
F2148-C21778	C21778	Headache primary anatomic site	The location related to the anatomic site of the primary headache	Exploratory	CMI - Headache Score	False	Chiari I Malformation	Chiari I Malformation
F2190-C22561	C22561	Symptom activity daily life pre surgical procedure score	Score related to the symptom scale of the subject's activities of daily life (ADLs) pre-surgery	Exploratory	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2155-C22368	C22368	Reflex superficial reflex abdominal response status	The response status of superficial reflex testing of abdominal (intercostal: T7-T12)	Exploratory	Reflex Testing	False	Chiari I Malformation	Chiari I Malformation
F2148-C21791	C21791	Headache frequency score	The score relating to the rate at which the patient's headache occurs over a period of time	Exploratory	CMI - Headache Score	False	Chiari I Malformation	Chiari I Malformation
F2158-C22523	C22523	Shunt valve manufacturer other text	The free-text related to shunt valve manufacturer; specifying other text	Exploratory	Assessment of Shunt Function	False	Chiari I Malformation	Chiari I Malformation
F2165-C22062	C22062	Modified Ashworth Scale - Limb tone testing left shoulder scale	The scale of limb tone testing for the left shoulder, as part of the Modified Ashworth Scale	Exploratory	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.