CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 5 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2139-C21688	C21688	Beighton Score - Motion palm flat leg straight score	Score of ability of completing the motion palm flat and leg straight as part of the Beighton Score	Supplemental-Highly Recommended	Beighton Score	False	Chiari I Malformation	Chiari I Malformation
F2155-C22365	C22365	Reflex autonomic reflex valsalva maneuver status	The response status as related to autonomic reflexes valsalva maneuver status	Supplemental-Highly Recommended	Reflex Testing	False	Chiari I Malformation	Chiari I Malformation
F2190-C22373	C22373	Imaging pre surgical procedure type	Type of pre-surgical imaging	Supplemental-Highly Recommended	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2190-C22518	C22518	Syrinx width measurement	Measurement of the maximum width of the patient's spinal syrinx after the operation	Supplemental-Highly Recommended	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2193-C55651	C55651	Eye visual fixation vertical downgaze type	The type as related to vertical downgaze in visual fixation	Supplemental-Highly Recommended	Nystagmus/Strabismus	False	Chiari I Malformation	Chiari I Malformation

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.