CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 826 - 850 of 861
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C21689 Beighton Score - Total score

Total score as related to the Beighton Score

Supplemental-Highly Recommended CMI - Hereditary Disorder of Connective Tissue Screening (1) Chiari I Malformation Chiari I Malformation
C22733 Extremity specific area pain decreased sensation indicator

Indicator of whether the patient/participant has experienced pain or decreased sensation in a specific area of his or her extremities

Supplemental-Highly Recommended Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C21887 Injury whiplash indicator

The indicator relating to injury in the form of whiplash

Supplemental-Highly Recommended Past History (on intake) Chiari I Malformation Chiari I Malformation
C22208 Stiffness pain general indicator

The indicator related to general neck pain/stiffness

Supplemental-Highly Recommended Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C13758 Imaging diagnosis stroke transient ischemic attack indicator

Indicator of the diagnosis of stroke/transient ischemic attack (TIA) for imaging positive

Supplemental-Highly Recommended Past History (on intake) Chiari I Malformation Chiari I Malformation
C22377 Tonsil right cerebellar measurement

Measurement related to the lowest position of the patient's right cerebellar tonsil

Supplemental-Highly Recommended Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
C22402 Hereditary disorder connective tissue diagnosis indicator

The indicator related to personal or family history of double-jointedness or excessive joint flexibility or dislocations, also known as Hereditary Disorder of Connective Tissue (HDCT)

Supplemental-Highly Recommended CMI - Hereditary Disorder of Connective Tissue Screening (1) Chiari I Malformation Chiari I Malformation
C21888 Injury fall head neck indicator

The indicator relating to injury in the form of the patient falling on their head or neck

Supplemental-Highly Recommended Past History (on intake) Chiari I Malformation Chiari I Malformation
C55654 Saccadic pursuit indicator

The indicator related to saccadic pursuit

Supplemental-Highly Recommended Nystagmus/Strabismus Chiari I Malformation Chiari I Malformation
C12875 Echocardiogram mitral valve prolapse indicator

Indicator of the absence or presence of prolapse of the mitral valve, often with regurgitation, associated with myxomatous proliferation of the leaflets of the mitral valve as assessed by echocardiography

Supplemental-Highly Recommended CMI - Hereditary Disorder of Connective Tissue Screening (1) Chiari I Malformation Chiari I Malformation
C22433 Medical history aortic root enlargement indicator

The indicator related to any medical history of the enlargement of the subject's aortic root

Supplemental-Highly Recommended CMI - Hereditary Disorder of Connective Tissue Screening (1) Chiari I Malformation Chiari I Malformation
C21684 Beighton Score - Motion thumb forearm assessment score

Score/Assessment of the motion thumb to forearm as part of the Beighton Score

Supplemental-Highly Recommended Beighton Score Chiari I Malformation Chiari I Malformation
C55647 Eye visual fixation primary position type

The type as related to the primary position during visual fixation

Supplemental-Highly Recommended Nystagmus/Strabismus Chiari I Malformation Chiari I Malformation
C22775 Hereditary disorder connective tissue diagnosis type

The type related to hereditary disorder of connective tissues

Supplemental-Highly Recommended CMI - Hereditary Disorder of Connective Tissue Screening (1) Chiari I Malformation Chiari I Malformation
C21872 Medical history visual impairment indicator

The indicator related to personal medical history of visual impairment or legally blind

Supplemental-Highly Recommended Past History (on intake) Chiari I Malformation Chiari I Malformation
C21696 Chiari I malformation headache strain activity worsen symptom indicator

The indicator related to headache worsened by straining activities in defining signs and symptoms for Chiari I malformation

Supplemental-Highly Recommended Chiari List of 10 Chiari I Malformation Chiari I Malformation
C21882 Surgical history cataract removal indicator

The indicator related to surgical history of cataract removal

Supplemental-Highly Recommended Past History (on intake) Chiari I Malformation Chiari I Malformation
C22736 Extremity weakness indicator

Indicator of whether the patient/participant has experienced weakness of his or her extremities

Supplemental-Highly Recommended Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C01052 Loss of consciousness indicator

The indicator for whether the participant/subject experienced any period of loss of consciousness (LOC)

Supplemental-Highly Recommended Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C21685 Beighton Score - Motion finger bend back score

Score/Assessment of Motion to bend finger back as part of the Beighton Score

Supplemental-Highly Recommended Beighton Score Chiari I Malformation Chiari I Malformation
C22393 Tonsil left cerebellar measurement

Measurement related to the lowest position of the patient's left cerebellar tonsil

Supplemental-Highly Recommended Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
C22776 Hereditary disorder type

The type related to hereditary disorder of connective tissues

Supplemental-Highly Recommended CMI - Hereditary Disorder of Connective Tissue Screening (1) Chiari I Malformation Chiari I Malformation
C21873 Medical history hearing deficit indicator

The indicator related to personal medical history of hearing deficit or use of hearing aid

Supplemental-Highly Recommended Past History (on intake) Chiari I Malformation Chiari I Malformation
C22729 Pain touch sensitivity increase indicator

Indicator of whether the patient/participant has experienced an increase in sensitivity to pain or touch

Supplemental-Highly Recommended Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C22737 Muscle tone loss indicator

Indicator of whether the patient/participant has experienced a loss of muscle tone

Supplemental-Highly Recommended Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
Displaying 826 - 850 of 861

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.