CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 751 - 775 of 861

Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2149-C19500	C19500	Assessment performed date	The date of assessment of the examination being performed	Supplemental	Past History (on intake)	False	Chiari I Malformation	Chiari I Malformation
F0016-C58780	C58780	Birth sex assigned type other text	The free-text field related to 'Birth sex assigned type', specifying other text. Self-reported phenotypic sex of participant, assigned at birth	Supplemental	Demographics	0	Chiari I Malformation	Chiari I Malformation
F2183-C22497	C22497	Suboptimal response revision requirement indicator	The indicator related to whether a suboptimal response to decompression required revision	Supplemental	Chiari I Malformation Treatment	False	Chiari I Malformation	Chiari I Malformation
F2156-C22761	C22761	Irritability indicator	Indicator of whether the patient/participant is experiencing or exhibits irritability	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2182-C22465	C22465	Medical history cervical radiculopathy disc disease indicator	The indicator related to the history of cervical radiculopathy or disc disease	Supplemental	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2152-C02006	C02006	Medication prior or concomitant dose	Dose of prior/concomitant medication taken per administration	Supplemental	Medications (Prior and Current)	False	Chiari I Malformation	Chiari I Malformation
F2165-C17402	C17402	Site name	The name of the site for the study	Supplemental	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2156-C22721	C22721	Hearing very sensitive indicator	Indicator of whether the patient/participant has very sensitive hearing	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2183-C22505	C22505	Thoracolumbar brace indicator	The indicator related to the implementation of a thoracolumbar brace	Supplemental	Chiari I Malformation Treatment	False	Chiari I Malformation	Chiari I Malformation
F2165-C22213	C22213	Reflex deep tendon reflex jaw response score	The response score related to deep tendon reflex testing of jaw (trigeminal: cn v)	Supplemental	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2272-C55638	C55638	Neck Disability Index - lifting indicator	The pain indicator of lifting as part of the Neck Disability Index	Supplemental	Neck Disability Index (NDI)	False	Chiari I Malformation	Chiari I Malformation
F2156-C22769	C22769	Unexpected breast milk production indicator	Indicator of whether the patient/participant is experiencing unexpected breast milk production	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2152-C18736	C18736	Medication prior or concomitant dose unit of measure other text	The free-text field related to 'Medication prior or concomitant dose unit of measure', specifying other text. Dosage unit of measure of the prior or concomitant medication administered	Supplemental	Medications (Prior and Current)	False	Chiari I Malformation	Chiari I Malformation
F2165-C21722	C21722	Oculomotor saccadic pursuit assessment indicator	Indicator related to if there are saccades (quick movements of eye in same direction toward) and smooth pursuit (tracking object) eye movements which are two different types of oculomotor control	Supplemental	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2194-C56958	C56958	Pelvic traction type	The participant/subject's capability of pelvic traction	Supplemental	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
F2149-C21883	C21883	Surgical history other text	The free-text field related to other past surgery	Supplemental	Past History (on intake)	False	Chiari I Malformation	Chiari I Malformation
F1807-C58780	C58780	Birth sex assigned type other text	The free-text field related to 'Birth sex assigned type', specifying other text. Self-reported phenotypic sex of participant, assigned at birth	Supplemental	General Core	False	Chiari I Malformation	Chiari I Malformation
F2273-C56956	C56956	Numerical Pain Rating Scale - Neck pain scale	The Numeric Scale - Neck Pain is a patient-reported outcome instrument used to assess neck pain in daily life	Supplemental	Numeric Rating Scale - Neck Pain	False	Chiari I Malformation	Chiari I Malformation
F2183-C22432	C22432	Chiari malformation conservative management indicator	The indicator related to conservative management with no surgical treatment offered	Supplemental	Chiari I Malformation Treatment	False	Chiari I Malformation	Chiari I Malformation
F2153-C22028	C22028	Motor strength testing right bicep scale	The amount of movement in the right bicep muscle	Supplemental	Motor Strength Testing	False	Chiari I Malformation	Chiari I Malformation
F2142-C21705	C21705	Coordination finger to nose right upper extremity tap assessment scale	The scale related to assessment of the ability to complete the motion of finger to nose (right upper extremity) tap	Supplemental	Coordination	False	Chiari I Malformation	Chiari I Malformation
F2150-C11061	C11061	Gait assessment result	Result of the gait assessment	Supplemental	Imbalance	False	Chiari I Malformation	Chiari I Malformation
F2163-C22354	C22354	Imaging diagnostic method type	The type of imaging method utilized for diagnosis	Supplemental	Chiari Symptom Onset	False	Chiari I Malformation	Chiari I Malformation
F2156-C06020	C06020	Urinary incontinence past three months indicator	Indicator of involuntary urine leakage (incontinence) within the last three months. Urinary incontinence is defined by International Continence Society (Abrams et al. 2002) as the complaint of any involuntary leakage of urine	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2138-C21678	C21678	Allergy food reaction type	Type of reaction caused by food allergy	Supplemental	Allergy	False	Chiari I Malformation	Chiari I Malformation

Displaying 751 - 775 of 861

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.