CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 76 - 100 of 861

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2148-C21838	C21838	Headache duration score	The score related to type of duration of headache	Exploratory	CMI - Headache Score	False	Chiari I Malformation	Chiari I Malformation
F2165-C22043	C22043	Motor strength testing right hamstring scale	The amount of movement in the right hamstring	Exploratory	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2194-C56969	C56969	Phalens sign type	The reading of the participant/subject's Phalen's signs	Exploratory	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
F2165-C22058	C22058	Modified Ashworth Scale - Limb tone testing right shoulder scale	The scale of limb tone testing for the right shoulder, as part of the Modified Ashworth Scale	Exploratory	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2182-C22423	C22423	Gestation triplet indicator	The indicator related to a triplet gestation	Exploratory	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2155-C22321	C22321	Reflex pyramidal frontal release sign palmomental status	The response status as related to pyramidal/frontal release sign palmomental reflex	Exploratory	Reflex Testing	False	Chiari I Malformation	Chiari I Malformation
F2172-C21757	C21757	Imaging hydrocephalus ventriculomegaly finding indicator	The indicator related to presence of hydrocephalus/ventriculomegaly	Exploratory	Chiari I Malformation Imaging	False	Chiari I Malformation	Chiari I Malformation
F2190-C22530	C22530	Surgical procedure complication cerebrospinal fluid disorder type	Type of cerebrospinal fluid (CSF) disorder the patient has, if any	Exploratory	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2148-C21778	C21778	Headache primary anatomic site	The location related to the anatomic site of the primary headache	Exploratory	CMI - Headache Score	False	Chiari I Malformation	Chiari I Malformation
F2155-C22368	C22368	Reflex superficial reflex abdominal response status	The response status of superficial reflex testing of abdominal (intercostal: T7-T12)	Exploratory	Reflex Testing	False	Chiari I Malformation	Chiari I Malformation
F2190-C22551	C22551	Symptom general pain surgical procedure change score	Score related to the change in the subject's general pain scores	Exploratory	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2148-C21791	C21791	Headache frequency score	The score relating to the rate at which the patient's headache occurs over a period of time	Exploratory	CMI - Headache Score	False	Chiari I Malformation	Chiari I Malformation
F2190-C22559	C22559	Symptom cranial nerve post surgical procedure score	Score related to the symptom scale of the subject's cranial nerves post-surgery	Exploratory	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2158-C22523	C22523	Shunt valve manufacturer other text	The free-text related to shunt valve manufacturer; specifying other text	Exploratory	Assessment of Shunt Function	False	Chiari I Malformation	Chiari I Malformation
F2172-C21741	C21741	Imaging posterior cranial fossa basion axial interval extension measurement	The measurement as related to distance from tip of basion to posterior axial line while in extension	Exploratory	Chiari I Malformation Imaging	False	Chiari I Malformation	Chiari I Malformation
F2165-C22105	C22105	Modified Ashworth Scale - Limb tone testing left knee scale	The scale of limb tone testing for the left knee, as part of the Modified Ashworth Scale	Exploratory	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2141-C21694	C21694	Chiari I malformation unsteady stand walk symptom indicator	The indicator related to feelings of unsteadiness when standing or walking in defining signs and symptoms for Chiari I malformation	Exploratory	Chiari List of 10	False	Chiari I Malformation	Chiari I Malformation
F2194-C56994	C56994	Spinal percussion local pain text	Text field related to the spinal percussion local pain	Exploratory	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
F2165-C22028	C22028	Motor strength testing right bicep scale	The amount of movement in the right bicep muscle	Exploratory	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2165-C22036	C22036	Motor strength testing right wrist flexion scale	The amount of movement in the flexion of the right wrist muscles	Exploratory	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2182-C22441	C22441	Medical history cranial vault remodel indicator	The indicator related to medical history in which the subject has any history of cranial vault remodeling	Exploratory	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2194-C56961	C56961	Straight leg raising pain type	The participant/subject's capability of straight leg raising	Exploratory	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
F2138-C21683	C21683	Allergy reaction other source indicator	Indicator related to other source of allergic reaction	Exploratory	Allergy	False	Chiari I Malformation	Chiari I Malformation
F2165-C22046	C22046	Motor strength testing left hamstring scale	The amount of movement in the left hamstring	Exploratory	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2165-C22062	C22062	Modified Ashworth Scale - Limb tone testing left shoulder scale	The scale of limb tone testing for the left shoulder, as part of the Modified Ashworth Scale	Exploratory	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.