CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 726 - 750 of 855

Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2172-C21748	C21748	Imaging posterior cranial fossa foramen magnum diameter measurement	The measurement as related to distance from basion to opisthion	Supplemental	Chiari I Malformation Imaging	False	Chiari I Malformation	Chiari I Malformation
F2158-C22544	C22544	Shunt valve scan type	Shunt valve scan type	Supplemental	Assessment of Shunt Function	False	Chiari I Malformation	Chiari I Malformation
F2147-C21766	C21766	Chiari malformation screening echocardiogram mitral valve prolapse aortic aneurysm diagnosis indicator	The indicator related to ever having a echocardiogram reveal mitral valve prolapse (MVP) or aortic aneurysm (or enlargement) in a screening diagnosis for Chiari malformation	Supplemental	CMI - Hereditary Disorders of Connective Tissue Screening (2)	False	Chiari I Malformation	Chiari I Malformation
F2154-C22179	C22179	Chiari malformation neurological examination attention short-term memory intact indicator	The indicator related to attention and short-term memory being intact as part of neurological examination form made for Chiari Malformation	Supplemental	Neurological Exam	False	Chiari I Malformation	Chiari I Malformation
F2145-C21758	C21758	Normocephalic assessment indicator	The indicator related to person whose head and all major organs of the head are in a normal condition and without significant abnormalities	Supplemental	General Exam	False	Chiari I Malformation	Chiari I Malformation
F2194-C55660	C55660	Cervical compression surgical site status	The status of compression at the surgical site	Supplemental	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
F2140-C21717	C21717	Sleep disorder finding type	Type as related to sleep disorder	Supplemental	Brainstem Signs/Symptoms	False	Chiari I Malformation	Chiari I Malformation
F2149-C21877	C21877	Surgical history defibrillator indicator	The indicator related to surgical history of using a defibrillator	Supplemental	Past History (on intake)	False	Chiari I Malformation	Chiari I Malformation
F2190-C22360	C22360	Assessment post surgical procedure date	Date related to post operative evaluation	Supplemental	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2165-C22260	C22260	Reflex deep tendon reflex brachioradialis response score	The response score related to deep tendon reflex testing of brachioradialis (radial:c5-6)	Supplemental	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2272-C55642	C55642	Neck Disability Index - work indicator	The work pain indicator of the subject/participant as part of the Neck Disability Index	Supplemental	Neck Disability Index (NDI)	False	Chiari I Malformation	Chiari I Malformation
F2156-C22773	C22773	Precipitating cause test date	Date on which the selected Precipitating Cause Test Type was performed	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2182-C22478	C22478	Attention deficit hyperactivity disorder indicator	The indicator related to the disorders of attention deficit disorder (ADD) and attention deficit hyperactivity disorder (ADHD)	Supplemental	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2153-C19500	C19500	Assessment performed date	The date of assessment of the examination being performed	Supplemental	Motor Strength Testing	False	Chiari I Malformation	Chiari I Malformation
F2194-C56962	C56962	Cervical extraction type	Type of cervical extraction (sitting)	Supplemental	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
F2157-C22228	C22228	Sensory abnormal dull ache pain indicator	The indicator related to abnormal dull ache pain	Supplemental	Sensory Symptoms	False	Chiari I Malformation	Chiari I Malformation
F2183-C22461	C22461	Cervical laminectomy anatomic site	The anatomic site or location related to the cervical laminectomy	Supplemental	Chiari I Malformation Treatment	False	Chiari I Malformation	Chiari I Malformation
F2153-C22032	C22032	Motor strength testing left triceps scale	The amount of movement in the left triceps muscle	Supplemental	Motor Strength Testing	False	Chiari I Malformation	Chiari I Malformation
F2194-C56971	C56971	Phalens sign positive side type	The side of the body that the participant/subject's Phalen's signs read positive	Supplemental	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
F2156-C22741	C22741	Urination initiation difficulty indicator	Indicator of whether the patient/participant has experienced difficulty initiating urination	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2150-C21926	C21926	Mobility assistive device use type	The type as related to use of a mobility assistance device	Supplemental	Imbalance	False	Chiari I Malformation	Chiari I Malformation
F2164-C06005	C06005	Data collected date and time	Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed	Supplemental	CMI - Tethered Cord Screening	False	Chiari I Malformation	Chiari I Malformation
F2183-C22485	C22485	Chiari decompression intradural adjunct fourth ventricle stent indicator	The indicator related to the addition of a fourth ventricle stent	Supplemental	Chiari I Malformation Treatment	False	Chiari I Malformation	Chiari I Malformation
F2194-C56979	C56979	Knee patella exam result type	The result of the participant/subject's knee/patella exam	Supplemental	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
F2156-C22749	C22749	Irritable bowel syndrome diagnosis ever indicator	Indicator of whether the patient/participant has ever been diagnosed with Irritable Bowel Syndrome (IBS)	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation

Displaying 726 - 750 of 855

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.