CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 726 - 750 of 861

Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2148-C21783	C21783	Headache focal point extension radiation type	The type of extension from the focal point of the headache	Supplemental	CMI - Headache Score	False	Chiari I Malformation	Chiari I Malformation
F2154-C22199	C22199	Chiari malformation neurological examination tongue palate pharynx intact indicator	The indicator related to tongue, palate and pharynx being intact	Supplemental	Neurological Exam	False	Chiari I Malformation	Chiari I Malformation
F2182-C22456	C22456	Pregnancy miscarriage medical termination still birth count	The count related to the number of abortions, miscarriages, and/or still births the mother has had	Supplemental	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2164-C22388	C22388	Chiari malformation tethered spinal cord knee bent sleep back pain indicator	The indicator related to knees bent at night to relieve back or leg discomfort	Supplemental	CMI - Tethered Cord Screening	False	Chiari I Malformation	Chiari I Malformation
F2145-C21789	C21789	Cutaneous stigma absent indicator	The indicator related to an absence of cutaneous stigma	Supplemental	General Exam	False	Chiari I Malformation	Chiari I Malformation
F2183-C22501	C22501	Cranioplasty cerebelloplasty performed six month plus type	The type of cranioplasty/cerebelloplasty perfomed at 6 months plus post Chiari decompression	Supplemental	Chiari I Malformation Treatment	False	Chiari I Malformation	Chiari I Malformation
F2148-C21835	C21835	Headache temporal association type	The type as related to time of occurrence of consistent headache	Supplemental	CMI - Headache Score	False	Chiari I Malformation	Chiari I Malformation
F2154-C22211	C22211	Chiari malformation neurological examination pronator drift absent indicator	The indicator related to not having pronator drift	Supplemental	Neurological Exam	False	Chiari I Malformation	Chiari I Malformation
F2182-C22470	C22470	Diamond blackfan anemia disorder indicator	The indicator related to the presence of the disorder Diamond-Blackfan anemia (DBA), in which the bone marrow malfunctions and fails to produce enough red blood cells	Supplemental	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2165-C19500	C19500	Assessment performed date	The date of assessment of the examination being performed	Supplemental	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2146-C01521	C01521	Heart rate	The participant's pulse or number of contractions (heart beats) per minute	Supplemental	CMI - Hereditary Disorder of Connective Tissue Screening (1)	False	Chiari I Malformation	Chiari I Malformation
F2153-C22034	C22034	Motor strength testing right wrist extension scale	The amount of movement in the extension of the right wrist muscles	Supplemental	Motor Strength Testing	False	Chiari I Malformation	Chiari I Malformation
F2142-C21711	C21711	Coordination heel to shin left lower extremity tap assessment scale	The scale related to assessment of the ability to complete the motion of heel to shin (lower level extremity) tap	Supplemental	Coordination	False	Chiari I Malformation	Chiari I Malformation
F2150-C22013	C22013	Ataxia lower extremity indicator	The indicator related to lower extremities having ataxia	Supplemental	Imbalance	False	Chiari I Malformation	Chiari I Malformation
F2159-C22266	C22266	Spine range of motion trunk forward flexion estimate degree value	The value in degrees related to range in motion of trunk forward flexion (100) in assessment of spine	Supplemental	Spine: Range of Motion Assessment	False	Chiari I Malformation	Chiari I Malformation
F2183-C22508	C22508	Spinal deformity stabilization text	The free-text field related to the highest/lowest level of surgical stabilization of the spinal deformity	Supplemental	Chiari I Malformation Treatment	False	Chiari I Malformation	Chiari I Malformation
F2156-C22753	C22753	Sexual arousal difficulty maintain indicator	Indicator of whether the patient/participant is experiencing difficulty maintaining sexual arousal	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2151-C22101	C22101	Modified Ashworth Scale - Limb tone testing left wrist scale	The scale of limb tone testing for the left wrist, as part of the Modified Ashworth Scale	Supplemental	Modified Ashworth Scale - Limb Tone Testing	False	Chiari I Malformation	Chiari I Malformation
F2182-C11063	C11063	Parity maternal value	Number of live born children the participant's/subject's mother has delivered	Supplemental	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2156-C22713	C22713	Vision blurred indicator	Indicator of whether the patient/participant has blurred vision	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2160-C22238	C22238	Headache associate symptom type	The type related to the associated symptoms that the subject is experiencing during his/her headache	Supplemental	Strain - Related Headache	False	Chiari I Malformation	Chiari I Malformation
F2140-C21717	C21717	Sleep disorder finding type	Type as related to sleep disorder	Supplemental	Brainstem Signs/Symptoms	False	Chiari I Malformation	Chiari I Malformation
F2149-C19500	C19500	Assessment performed date	The date of assessment of the examination being performed	Supplemental	Past History (on intake)	False	Chiari I Malformation	Chiari I Malformation
F2165-C22301	C22301	Reflex pyramidal frontal release sign snout status	The response status as related to pyramidal/frontal release sign snout reflex	Supplemental	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2157-C22227	C22227	Sensory abnormal burning pain indicator	The indicator related to abnormal burning pain	Supplemental	Sensory Symptoms	False	Chiari I Malformation	Chiari I Malformation

Displaying 726 - 750 of 861

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.