CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 701 - 725 of 855
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C22015 Ocular movement disorder type

The type as related to ocular movement disorder

Supplemental Imbalance Chiari I Malformation Chiari I Malformation
C22375 Chiari malformation tethered spinal cord urinary drench incontinence indicator

The indicator related to urinary drenching (in context of urinary incontinence)

Supplemental CMI - Tethered Cord Screening Chiari I Malformation Chiari I Malformation
C00007 Birth date

Date (and time, if applicable and known) the participant/subject was born

Supplemental Chiari Symptom Onset Chiari I Malformation Chiari I Malformation
C22517 Syrinx length change measurement

Measurement of the change in the longitudinal length of the patient's spinal syrinx

Supplemental Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
C22213 Reflex deep tendon reflex jaw response score

The response score related to deep tendon reflex testing of jaw (trigeminal: cn v)

Supplemental Reflex Testing Chiari I Malformation Chiari I Malformation
C22532 Shunt valve removal date

Date shunt valve was removed

Supplemental Assessment of Shunt Function Chiari I Malformation Chiari I Malformation
C21687 Beighton Score - Motion knee hyperextend score

Score/assessment of ability to complete the Motion hyperextended knee as part of Beighton Score

Supplemental CMI - Hereditary Disorder of Connective Tissue Screening (1) Chiari I Malformation Chiari I Malformation
C22044 Motor strength testing atrophy indicator

The indicator relating to atrophy in a muscle

Supplemental Motor Strength Testing Chiari I Malformation Chiari I Malformation
C01581 Weight unit of measure

Unit of measure for the weight numerical value

Supplemental General Exam Chiari I Malformation Chiari I Malformation
C22295 Chiari malformation precipitate factor type

The type related to any precipitating factors that may have contributed to the patient's Chiari Malformation

Supplemental Chiari Symptom Onset Chiari I Malformation Chiari I Malformation
C22528 Surgical procedure complication cerebrospinal fluid disorder indicator

Indicator related to the complication of a cerebrospinal fluid (CSF) disorder

Supplemental Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
C22272 Reflex deep tendon reflex achilles response score

The response score related to deep tendon reflex testing of achilles (tibial:s1)

Supplemental Reflex Testing Chiari I Malformation Chiari I Malformation
C21746 Imaging posterior cranial fossa clivus length measurement

The measurement as related to distance from dorsum sella to basion on midsagittal MRI

Supplemental Chiari I Malformation Imaging Chiari I Malformation Chiari I Malformation
C21764 Chiari malformation screening ocular lens problem indicator

The indicator related to optic or ocular lens problems

Supplemental CMI - Hereditary Disorders of Connective Tissue Screening (2) Chiari I Malformation Chiari I Malformation
C22052 Motor strength testing left ehl scale

The amount of movement in the left EHL

Supplemental Motor Strength Testing Chiari I Malformation Chiari I Malformation
C21688 Beighton Score - Motion palm flat leg straight score

Score of ability of completing the motion palm flat and leg straight as part of the Beighton Score

Supplemental General Exam Chiari I Malformation Chiari I Malformation
C55658 Strabismus indicator

The indicator related to strabismu (esotropia/exotropia/skew deviation)

Supplemental Nystagmus/Strabismus Chiari I Malformation Chiari I Malformation
C22320 Chiari malformation brain fog onset important symptom scale

The scale as related to brain fog at onset importance in Chiari malformation symptoms

Supplemental Chiari Symptom Onset Chiari I Malformation Chiari I Malformation
C21774 Chiari malformation screening bruise stretch mark skin hernia prolapse scar formation indicator

The indicator related to easy bruising, stretch marks, stretchy skin, hernias, prolapses, or unusual scar formation in a screening for Chiari malformation

Supplemental CMI - Hereditary Disorders of Connective Tissue Screening (2) Chiari I Malformation Chiari I Malformation
C22185 Chiari malformation neurological examination visual field full indicator

The indicator related to visual fields being full to confrontation

Supplemental Neurological Exam Chiari I Malformation Chiari I Malformation
C21776 Chest clear text

The free text field related to a clear chest

Supplemental General Exam Chiari I Malformation Chiari I Malformation
C22340 Chiari malformation auditory symptoms onset symptom severity scale

The scale as related to auditory symptoms at onset severity in Chiari malformation symptoms

Supplemental Chiari Symptom Onset Chiari I Malformation Chiari I Malformation
C22364 Reflex autonomic reflex RR interval response variation status

The response status as related to autonomic reflexes RR interval response variation status

Supplemental Reflex Testing Chiari I Malformation Chiari I Malformation
C00007 Birth date

Date (and time, if applicable and known) the participant/subject was born

Supplemental Co-Morbidities Chiari I Malformation Chiari I Malformation
C22230 Headache duration

The duration of the subject's headache

Supplemental Strain - Related Headache Chiari I Malformation Chiari I Malformation
Displaying 701 - 725 of 855

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.