CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2153-C22044	C22044	Motor strength testing atrophy indicator	The indicator relating to atrophy in a muscle	Supplemental	Motor Strength Testing	False	Chiari I Malformation	Chiari I Malformation
F2138-C06005	C06005	Data collected date and time	Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed	Supplemental	Allergy	False	Chiari I Malformation	Chiari I Malformation
F2163-C22295	C22295	Chiari malformation precipitate factor type	The type related to any precipitating factors that may have contributed to the patient's Chiari Malformation	Supplemental	Chiari Symptom Onset	False	Chiari I Malformation	Chiari I Malformation
F2190-C22528	C22528	Surgical procedure complication cerebrospinal fluid disorder indicator	Indicator related to the complication of a cerebrospinal fluid (CSF) disorder	Supplemental	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2155-C22272	C22272	Reflex deep tendon reflex achilles response score	The response score related to deep tendon reflex testing of achilles (tibial:s1)	Supplemental	Reflex Testing	False	Chiari I Malformation	Chiari I Malformation
F2172-C21746	C21746	Imaging posterior cranial fossa clivus length measurement	The measurement as related to distance from dorsum sella to basion on midsagittal MRI	Supplemental	Chiari I Malformation Imaging	False	Chiari I Malformation	Chiari I Malformation
F2153-C22052	C22052	Motor strength testing left ehl scale	The amount of movement in the left EHL	Supplemental	Motor Strength Testing	False	Chiari I Malformation	Chiari I Malformation
F2142-C21707	C21707	Coordination finger to nose left upper extremity tap assessment scale	The scale related to assessment of the ability to complete the motion of finger to nose (left upper extremity) tap	Supplemental	Coordination	False	Chiari I Malformation	Chiari I Malformation
F2138-C21680	C21680	Allergy reaction latex indicator	Indicator related to allergic reaction to latex	Supplemental	Allergy	False	Chiari I Malformation	Chiari I Malformation
F2193-C55658	C55658	Strabismus indicator	The indicator related to strabismu (esotropia/exotropia/skew deviation)	Supplemental	Nystagmus/Strabismus	False	Chiari I Malformation	Chiari I Malformation
F2163-C22320	C22320	Chiari malformation brain fog onset important symptom scale	The scale as related to brain fog at onset importance in Chiari malformation symptoms	Supplemental	Chiari Symptom Onset	False	Chiari I Malformation	Chiari I Malformation
F2154-C22185	C22185	Chiari malformation neurological examination visual field full indicator	The indicator related to visual fields being full to confrontation	Supplemental	Neurological Exam	False	Chiari I Malformation	Chiari I Malformation
F2145-C01507	C01507	Blood pressure diastolic measurement	Measurement of pressure of the participant's blood against the artery walls during diastole (the relaxation phase) in millimeters of mercury (mmHg)	Supplemental	General Exam	False	Chiari I Malformation	Chiari I Malformation
F2163-C22340	C22340	Chiari malformation auditory symptoms onset symptom severity scale	The scale as related to auditory symptoms at onset severity in Chiari malformation symptoms	Supplemental	Chiari Symptom Onset	False	Chiari I Malformation	Chiari I Malformation
F2155-C22364	C22364	Reflex autonomic reflex RR interval response variation status	The response status as related to autonomic reflexes RR interval response variation status	Supplemental	Reflex Testing	False	Chiari I Malformation	Chiari I Malformation
F2182-C00007	C00007	Birth date	Date (and time, if applicable and known) the participant/subject was born	Supplemental	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2160-C22230	C22230	Headache duration	The duration of the subject's headache	Supplemental	Strain - Related Headache	False	Chiari I Malformation	Chiari I Malformation
F2190-C22372	C22372	Imaging pre surgical procedure date	Date of pre-surgical imaging	Supplemental	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2154-C22202	C22202	Chiari malformation neurological examination gag reflex bilateral present indicator	The indicator related to gag reflex being present bilaterally	Supplemental	Neurological Exam	False	Chiari I Malformation	Chiari I Malformation
F2156-C22739	C22739	Extremity stiffness indicator	Indicator of whether the patient/participant has experienced stiffness in his or her extremities	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2150-C21923	C21923	Balance unsteady stand walk indicator	The indicator related to feelings of unsteadiness when standing or walking	Supplemental	Imbalance	False	Chiari I Malformation	Chiari I Malformation
F2163-C22357	C22357	Chiari malformation identify speciality diagnosis type	The type of specialty of the individual responsible for diagnosis	Supplemental	Chiari Symptom Onset	False	Chiari I Malformation	Chiari I Malformation
F2147-C21765	C21765	Chiari malformation screening dental development poor enamel temporomandibular joint problem indicator	The indicator related to having any developmental problems with teeth, poor dental enamel or temporomandibular joint disorder in a screening diagnosis for Chiari malformation	Supplemental	CMI - Hereditary Disorders of Connective Tissue Screening (2)	False	Chiari I Malformation	Chiari I Malformation
F2145-C21689	C21689	Beighton Score - Total score	Total score as related to the Beighton Score	Supplemental	General Exam	False	Chiari I Malformation	Chiari I Malformation
F2183-C22483	C22483	Chiari decompression verification decompression obex choroid plexus fourth ventricle indicator	The indicator related to the verification of decompression within the obex or the choroid plexus of the 4th ventricle	Supplemental	Chiari I Malformation Treatment	False	Chiari I Malformation	Chiari I Malformation

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.