CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 601 - 625 of 855

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2190-C22533	C22533	Surgical procedure complication fluid collection indicator	Indicator related to the complication of a fluid collection within the brain	Supplemental	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2172-C21748	C21748	Imaging posterior cranial fossa foramen magnum diameter measurement	The measurement as related to distance from basion to opisthion	Supplemental	Chiari I Malformation Imaging	False	Chiari I Malformation	Chiari I Malformation
F2158-C22544	C22544	Shunt valve scan type	Shunt valve scan type	Supplemental	Assessment of Shunt Function	False	Chiari I Malformation	Chiari I Malformation
F2154-C22179	C22179	Chiari malformation neurological examination attention short-term memory intact indicator	The indicator related to attention and short-term memory being intact as part of neurological examination form made for Chiari Malformation	Supplemental	Neurological Exam	False	Chiari I Malformation	Chiari I Malformation
F2145-C01520	C01520	Head circumference measurement	Circumferential measurement of the head at the widest point - the distance from above the eyebrows and ears and around the back of the head	Supplemental	General Exam	False	Chiari I Malformation	Chiari I Malformation
F2194-C55660	C55660	Cervical compression surgical site status	The status of compression at the surgical site	Supplemental	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
F2146-C01582	C01582	Height unit of measure	Unit of measure for the height numerical value for participant	Supplemental	CMI - Hereditary Disorder of Connective Tissue Screening (1)	False	Chiari I Malformation	Chiari I Malformation
F2163-C22324	C22324	Chiari malformation bowel bladder onset important symptom scale	The scale as related to bowel/bladder at onset importance in Chiari malformation symptoms	Supplemental	Chiari Symptom Onset	False	Chiari I Malformation	Chiari I Malformation
F0001-C00012	C00012	Education level USA type	Highest grade or level of school participant/subject has completed or the highest degree received	Supplemental	Social Status	False	Chiari I Malformation	Chiari I Malformation
F2159-C22265	C22265	Spine range of motion trunk forward flexion position anatomic site	The anatomic site relating to the position of range of motion of trunk forward flexion in assessment of spine	Supplemental	Spine: Range of Motion Assessment	False	Chiari I Malformation	Chiari I Malformation
F2154-C22187	C22187	Chiari malformation I neurological examination nystagmus absent indicator	The indicator related to not having nystagmus	Supplemental	Neurological Exam	False	Chiari I Malformation	Chiari I Malformation
F2146-C21688	C21688	Beighton Score - Motion palm flat leg straight score	Score of ability of completing the motion palm flat and leg straight as part of the Beighton Score	Supplemental	CMI - Hereditary Disorder of Connective Tissue Screening (1)	False	Chiari I Malformation	Chiari I Malformation
F2140-C21720	C21720	Vertigo assessment indicator	Indicator as related to assessment of vertigo	Supplemental	Brainstem Signs/Symptoms	False	Chiari I Malformation	Chiari I Malformation
F2163-C22345	C22345	Chiari malformation brain fog onset symptom severity scale	The scale as related to brain fog at onset severity in Chiari malformation symptoms	Supplemental	Chiari Symptom Onset	False	Chiari I Malformation	Chiari I Malformation
F2145-C01582	C01582	Height unit of measure	Unit of measure for the height numerical value for participant	Supplemental	General Exam	False	Chiari I Malformation	Chiari I Malformation
F2155-C22367	C22367	Reflex autonomic reflex cold pressor test status	The response status as related to autonomic reflexes cold pressor test status	Supplemental	Reflex Testing	False	Chiari I Malformation	Chiari I Malformation
F0016-C00033	C00033	Race USA maternal category	Race(s) the participant/subject's mother most closely identifies with	Supplemental	Demographics	False	Chiari I Malformation	Chiari I Malformation
F2160-C22236	C22236	Headaches factor aggravate type	The type related to what aggravates the subject's headache	Supplemental	Strain - Related Headache	False	Chiari I Malformation	Chiari I Malformation
F2154-C22204	C22204	Chiari malformation neurological examination gait station normal indicator	The indicator related to gait and station being normal	Supplemental	Neurological Exam	False	Chiari I Malformation	Chiari I Malformation
F2149-C19806	C19806	Medical history endocrine diabetes indicator	Indicator of diabetes	Supplemental	Past History (on intake)	False	Chiari I Malformation	Chiari I Malformation
F2157-C22228	C22228	Sensory abnormal dull ache pain indicator	The indicator related to abnormal dull ache pain	Supplemental	Sensory Symptoms	False	Chiari I Malformation	Chiari I Malformation
F2183-C22461	C22461	Cervical laminectomy anatomic site	The anatomic site or location related to the cervical laminectomy	Supplemental	Chiari I Malformation Treatment	False	Chiari I Malformation	Chiari I Malformation
F2194-C56971	C56971	Phalens sign positive side type	The side of the body that the participant/subject's Phalen's signs read positive	Supplemental	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
F2156-C22741	C22741	Urination initiation difficulty indicator	Indicator of whether the patient/participant has experienced difficulty initiating urination	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2164-C06005	C06005	Data collected date and time	Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed	Supplemental	CMI - Tethered Cord Screening	False	Chiari I Malformation	Chiari I Malformation

Displaying 601 - 625 of 855

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.