CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2151-C22071	C22071	Modified Ashworth Scale - Limb tone testing right elbow scale	The scale of limb tone testing for the right elbow, as part of the Modified Ashworth Scale	Supplemental	Modified Ashworth Scale - Limb Tone Testing	False	Chiari I Malformation	Chiari I Malformation
F2156-C22665	C22665	Medical history chronic constipation indicator	Indicator of whether the participant/subject has/had chronic constipation	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2140-C21714	C21714	Gag reflect status	Status as related to gag reflex	Supplemental	Brainstem Signs/Symptoms	False	Chiari I Malformation	Chiari I Malformation
F2149-C17460	C17460	Cancer history indicator	Indicator as to whether the participant/subject has or had cancer	Supplemental	Past History (on intake)	False	Chiari I Malformation	Chiari I Malformation
F0016-C00033	C00033	Race USA maternal category	Race(s) the participant's mother most closely identifies with	Supplemental	Demographics	0	Chiari I Malformation	Chiari I Malformation
F2183-C22495	C22495	Surgical procedure syrinx performed type	The type of direct surgical treatment of syrinx (if any)	Supplemental	Chiari I Malformation Treatment	False	Chiari I Malformation	Chiari I Malformation
F2194-C56989	C56989	Heel walking type	Type of heel walking	Supplemental	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
F2182-C22458	C22458	Birth delivery anesthesia type	The type of anesthesia used to deliver the offspring	Supplemental	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2164-C22391	C22391	Chiari malformation tethered spinal cord history severe growing pain indicator	The indicator related to a history of growing pains during childhood and adolescence	Supplemental	CMI - Tethered Cord Screening	False	Chiari I Malformation	Chiari I Malformation
F2156-C22758	C22758	Long-term memory loss indicator	Indicator of whether the patient/participant is experiencing a decline in long-term memory	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2151-C22106	C22106	Modified Ashworth Scale - Limb tone testing right ankle scale	The scale of limb tone testing for the right ankle, as part of the Modified Ashworth Scale	Supplemental	Modified Ashworth Scale - Limb Tone Testing	False	Chiari I Malformation	Chiari I Malformation
F2156-C22718	C22718	Walk unsteady indicator	Indicator of whether the patient/participant feels unsteady when walking	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2140-C21723	C21723	Coordination truncal instability assessment indicator	Indicator related to truncal instability or with a wide-based "drunken sailor" gait	Supplemental	Brainstem Signs/Symptoms	False	Chiari I Malformation	Chiari I Malformation
F2149-C21870	C21870	Medical history Lyme disease indicator	The indicator related to personal medical history of Lyme disease	Supplemental	Past History (on intake)	False	Chiari I Malformation	Chiari I Malformation
F0016-C18385	C18385	Birth time	Time the participant was born	Supplemental	Demographics	0	Chiari I Malformation	Chiari I Malformation
F2183-C22503	C22503	Craniocervical fusion indicator	The indicator related to craniocervical fusion	Supplemental	Chiari I Malformation Treatment	False	Chiari I Malformation	Chiari I Malformation
F2272-C55627	C55627	Neck Disability Index (NDI) - Pain intensity type	The element related to the intensity of the participant/subject's pain as part of the Neck Disability Index	Supplemental	Neck Disability Index (NDI)	False	Chiari I Malformation	Chiari I Malformation
F2182-C22472	C22472	Coagulopathy condition indicator	The indicator related to the condition coagulopathy, a condition in which the bloods ability to clot is impaired	Supplemental	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2165-C21715	C21715	Tongue function deviation assessment status	Status as related to tongue function deviation	Supplemental	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2194-C55661	C55661	Cervical compression surgical site tenderness anatomic site	The anatomic site related to cervical compression at surgical site	Supplemental	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
F2156-C22766	C22766	Pituitary problem diagnosis ever indicator	Indicator of whether the patient/participant has ever been diagnosed with a pituitary gland problem	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2152-C02022	C02022	Medication prior or concomitant dose unit of measure	Dosage unit of measure of the prior or concomitant medication administered	Supplemental	Medications (Prior and Current)	False	Chiari I Malformation	Chiari I Malformation
F2156-C22726	C22726	Palpitations indicator	Indicator of whether the patient/participant has experienced palpitations	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2149-C21879	C21879	Surgical history prosthetic implantation indicator	The indicator related to surgical history of prosthetic implantation	Supplemental	Past History (on intake)	False	Chiari I Malformation	Chiari I Malformation
F2272-C55644	C55644	Neck Disability Index - sleeping indicator	The sleeping pain indicator of the subject/participant as part of the Neck Disability Index	Supplemental	Neck Disability Index (NDI)	False	Chiari I Malformation	Chiari I Malformation

Displaying 551 - 575 of 861

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.