CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2145-C01507	C01507	Blood pressure diastolic measurement	Measurement of pressure of the participant's blood against the artery walls during diastole (the relaxation phase) in millimeters of mercury (mmHg)	Supplemental	General Exam	False	Chiari I Malformation	Chiari I Malformation
F2151-C06005	C06005	Data collected date and time	Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed	Supplemental	Modified Ashworth Scale - Limb Tone Testing	False	Chiari I Malformation	Chiari I Malformation
F2183-C22482	C22482	Surgical procedure tonsillar reduction type	The type of tonsillar reduction utilized	Supplemental	Chiari I Malformation Treatment	False	Chiari I Malformation	Chiari I Malformation
F2149-C05454	C05454	Hypertension indicator	Indicator of hypertension. In adults, hypertension is defined as a systolic pressure >= 140 and a diastolic >= 90. In children, it is defined as systolic blood pressure >95th percentile for age	Supplemental	Past History (on intake)	False	Chiari I Malformation	Chiari I Malformation
F2164-C22375	C22375	Chiari malformation tethered spinal cord urinary drench incontinence indicator	The indicator related to urinary drenching (in context of urinary incontinence)	Supplemental	CMI - Tethered Cord Screening	False	Chiari I Malformation	Chiari I Malformation
F2156-C22755	C22755	Sexual dysfunction indicator	Indicator of whether the patient/participant experiences sexual dysfunction such as inability to attain orgasm, erectile dysfunction, inability to ejaculate	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2151-C22103	C22103	Modified Ashworth Scale - Limb tone testing left hip scale	The scale of limb tone testing for the left hip, as part of the Modified Ashworth Scale	Supplemental	Modified Ashworth Scale - Limb Tone Testing	False	Chiari I Malformation	Chiari I Malformation
F2183-C22490	C22490	Valsalva challenge perform indicator	The indicator related to whether a valsalva challenge was performed in order to assess the integrity of the closure	Supplemental	Chiari I Malformation Treatment	False	Chiari I Malformation	Chiari I Malformation
F2156-C22715	C22715	Visual field reduced look straight ahead indicator	Indicator of whether the patient/participant's visual field is reduced or missing a portion when looking straight ahead with either or both eyes	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2194-C56984	C56984	Range of motion at hip external side type	The hip that the participant/subject feels pain on during external range of motion	Supplemental	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
F2149-C19779	C19779	Medical history asthma pulmonary assessment indicator	Indicator of history of asthma	Supplemental	Past History (on intake)	False	Chiari I Malformation	Chiari I Malformation
F2182-C22453	C22453	Medical history dysautonomia indicator	The indicator related to any reported history of POTS (postural orthostatic tachycardia syndrome), NMH (Neurally mediated Hypotension) or fainting	Supplemental	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2164-C22385	C22385	Chiari malformation tethered spinal cord leg pain indicator	The indicator related to leg pain	Supplemental	CMI - Tethered Cord Screening	False	Chiari I Malformation	Chiari I Malformation
F0016-C00032	C00032	Race USA paternal category	Race(s) the participant/subject's father most closely identifies with	Supplemental	Demographics	False	Chiari I Malformation	Chiari I Malformation
F2152-C02011	C02011	Medication prior or concomitant dose frequency	Frequency of use of a prior/concomitant medication	Supplemental	Medications (Prior and Current)	False	Chiari I Malformation	Chiari I Malformation
F2183-C22498	C22498	Cranioplasty cerebelloplasty performed six month type	The type of cranioplasty/ cerebelloplasty performed post Chiari decompression at the 6 month point	Supplemental	Chiari I Malformation Treatment	False	Chiari I Malformation	Chiari I Malformation
F2193-C55658	C55658	Strabismus indicator	The indicator related to strabismu (esotropia/exotropia/skew deviation)	Supplemental	Nystagmus/Strabismus	False	Chiari I Malformation	Chiari I Malformation
F2148-C05400	C05400	Injury date time	Date (and time, if applicable and known) of injury	Supplemental	CMI - Headache Score	False	Chiari I Malformation	Chiari I Malformation
F2154-C22186	C22186	Chiari malformation I neurological examination ptosis absent extraocular muscles intact pupils equal round light reaction indicator	The indicator related to extraocular muscles (EOMs) are intact, intact pupils equal round react light (PERRL), and no ptosis	Supplemental	Neurological Exam	False	Chiari I Malformation	Chiari I Malformation
F2163-C22320	C22320	Chiari malformation brain fog onset important symptom scale	The scale as related to brain fog at onset importance in Chiari malformation symptoms	Supplemental	Chiari Symptom Onset	False	Chiari I Malformation	Chiari I Malformation
F2145-C21777	C21777	Abdomen soft non tender indicator	The indicator related to identifying a soft and non tender abdomen	Supplemental	General Exam	False	Chiari I Malformation	Chiari I Malformation
F2148-C21788	C21788	Headache quality score	The score related to the quality of the patient's headache	Supplemental	CMI - Headache Score	False	Chiari I Malformation	Chiari I Malformation
F2154-C22203	C22203	Chiari malformation neurological examination dysarthria dysphonia absent indicator	The indicator related to not having dysarthria or dysphonia	Supplemental	Neurological Exam	False	Chiari I Malformation	Chiari I Malformation
F2163-C22340	C22340	Chiari malformation auditory symptoms onset symptom severity scale	The scale as related to auditory symptoms at onset severity in Chiari malformation symptoms	Supplemental	Chiari Symptom Onset	False	Chiari I Malformation	Chiari I Malformation
F2182-C00007	C00007	Birth date	Date (and time, if applicable and known) the participant/subject was born	Supplemental	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.