CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 426 - 450 of 855
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C22470 Diamond blackfan anemia disorder indicator

The indicator related to the presence of the disorder Diamond-Blackfan anemia (DBA), in which the bone marrow malfunctions and fails to produce enough red blood cells

Supplemental Co-Morbidities Chiari I Malformation Chiari I Malformation
C02016 Medication prior or concomitant start date and time

The date (and time, if applicable and known) on which the prior/concomitant medication usage began

Supplemental Medications (Prior and Current) Chiari I Malformation Chiari I Malformation
C19500 Assessment performed date

The date of assessment of the examination being performed

Supplemental Chiari I Malformation Presentation Exam Chiari I Malformation Chiari I Malformation
C22725 Vocal hoarseness increase indicator

Indicator of whether the patient/participant has experienced an increase in vocal hoarseness

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C21693 Chiari I malformation position change dizzy symptom indicator

The indicator related to dizziness with position changes in defining signs and symptoms for Chiari I malformation

Supplemental Chiari List of 10 Chiari I Malformation Chiari I Malformation
C21877 Surgical history defibrillator indicator

The indicator related to surgical history of using a defibrillator

Supplemental Past History (on intake) Chiari I Malformation Chiari I Malformation
C22360 Assessment post surgical procedure date

Date related to post operative evaluation

Supplemental Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
C22260 Reflex deep tendon reflex brachioradialis response score

The response score related to deep tendon reflex testing of brachioradialis (radial:c5-6)

Supplemental Chiari I Malformation Presentation Exam Chiari I Malformation Chiari I Malformation
C55642 Neck Disability Index - work indicator

The work pain indicator of the subject/participant as part of the Neck Disability Index

Supplemental Neck Disability Index (NDI) Chiari I Malformation Chiari I Malformation
C22773 Precipitating cause test date

Date on which the selected Precipitating Cause Test Type was performed

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C22478 Attention deficit hyperactivity disorder indicator

The indicator related to the disorders of attention deficit disorder (ADD) and attention deficit hyperactivity disorder (ADHD)

Supplemental Co-Morbidities Chiari I Malformation Chiari I Malformation
C19500 Assessment performed date

The date of assessment of the examination being performed

Supplemental Motor Strength Testing Chiari I Malformation Chiari I Malformation
C56962 Cervical extraction type

Type of cervical extraction (sitting)

Supplemental Provocative-Other Testing Chiari I Malformation Chiari I Malformation
C21701 Coordination gait tandem assessment scale

The scale related to assessment of manner of person's walking where toes of the back foot touch the heel of the front foot at each step

Supplemental Coordination Chiari I Malformation Chiari I Malformation
C21674 Allergy medication antibiotic name

Name to indicate the antibiotic causing the allergy

Supplemental Allergy Chiari I Malformation Chiari I Malformation
C21797 Upper lower limb pulse intact indicator

The indicator related to intact upper and lower limbs

Supplemental General Exam Chiari I Malformation Chiari I Malformation
C22569 Surgical procedure complication infection indicator

Indicator relating to the complication of infection

Supplemental Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
C22245 Surgical procedure hardware anatomic site other text

The free-text field related to other anatomic site of hardware in surgical procedure

Supplemental Surgical Site Assessment Chiari I Malformation Chiari I Malformation
C22398 Cerebrospinal fluid ventral space change measurement

Measurement related to the change in width of the ventral cerebrospinal fluid (CSF) space at the foramen magnum

Supplemental Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
C21841 Headache pain relief factor score

The score related to pain relief factor for headache

Supplemental CMI - Headache Score Chiari I Malformation Chiari I Malformation
C22217 Chiari malformation neurological examination coordination rapid alternating movement intact indicator

The indicator related to coordination and rapid alternating movements being intact

Supplemental Neurological Exam Chiari I Malformation Chiari I Malformation
C21733 Imaging syrinx length spinal segment count

The number of spinal segments for length of syrinx as measure on sagittal MRI scan

Supplemental Chiari I Malformation Imaging Chiari I Malformation Chiari I Malformation
C12175 Dual X-ray absorptiometry performed date

Date the dual X-ray absorptiometry (DXA) was performed

Supplemental CMI - Hereditary Disorder of Connective Tissue Screening (1) Chiari I Malformation Chiari I Malformation
C22039 Motor strength testing right quadricep scale

The amount of movement in the right quadricep

Supplemental Motor Strength Testing Chiari I Malformation Chiari I Malformation
C22577 Parenchymal morphology post surgical procedure brainstem change measurement

Measurement of the change in the patient's brainstem shape, if any

Supplemental Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
Displaying 426 - 450 of 855

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.