CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 376 - 400 of 855

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2157-C22226	C22226	Sensory abnormal stabbing pain indicator	The indicator related to abnormal stabbing pain	Supplemental	Sensory Symptoms	False	Chiari I Malformation	Chiari I Malformation
F2183-C22437	C22437	Suboccipital craniectomy size superior inferior measurement	The measurement related to the size of the suboccipital craniectomy superiorly or inferiorly	Supplemental	Chiari I Malformation Treatment	False	Chiari I Malformation	Chiari I Malformation
F2156-C22739	C22739	Extremity stiffness indicator	Indicator of whether the patient/participant has experienced stiffness in his or her extremities	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2145-C01520	C01520	Head circumference measurement	Circumferential measurement of the head at the widest point - the distance from above the eyebrows and ears and around the back of the head	Supplemental	General Exam	False	Chiari I Malformation	Chiari I Malformation
F2163-C22357	C22357	Chiari malformation identify speciality diagnosis type	The type of specialty of the individual responsible for diagnosis	Supplemental	Chiari Symptom Onset	False	Chiari I Malformation	Chiari I Malformation
F2151-C22058	C22058	Modified Ashworth Scale - Limb tone testing right shoulder scale	The scale of limb tone testing for the right shoulder, as part of the Modified Ashworth Scale	Supplemental	Modified Ashworth Scale - Limb Tone Testing	False	Chiari I Malformation	Chiari I Malformation
F2149-C12875	C12875	Echocardiogram mitral valve prolapse indicator	Indicator of the absence or presence of prolapse of the mitral valve, often with regurgitation, associated with myxomatous proliferation of the leaflets of the mitral valve as assessed by echocardiography	Supplemental	Past History (on intake)	False	Chiari I Malformation	Chiari I Malformation
F0001-C00012	C00012	Education level USA type	Highest grade or level of school participant/subject has completed or the highest degree received	Supplemental	Social Status	False	Chiari I Malformation	Chiari I Malformation
F2183-C22483	C22483	Chiari decompression verification decompression obex choroid plexus fourth ventricle indicator	The indicator related to the verification of decompression within the obex or the choroid plexus of the 4th ventricle	Supplemental	Chiari I Malformation Treatment	False	Chiari I Malformation	Chiari I Malformation
F2194-C56977	C56977	Trigger point type	Type of trigger points	Supplemental	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
F2156-C22747	C22747	Current diarrhea indicator	Indicator of whether the patient/participant currently experiences diarrhea	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2164-C22378	C22378	Chiari malformation tethered spinal cord urinate incomplete indicator	The indicator related to incomplete urination	Supplemental	CMI - Tethered Cord Screening	False	Chiari I Malformation	Chiari I Malformation
F2151-C22104	C22104	Modified Ashworth Scale - Limb tone testing right knee scale	The scale of limb tone testing for the right knee, as part of the Modified Ashworth Scale	Supplemental	Modified Ashworth Scale - Limb Tone Testing	False	Chiari I Malformation	Chiari I Malformation
F2140-C21720	C21720	Vertigo assessment indicator	Indicator as related to assessment of vertigo	Supplemental	Brainstem Signs/Symptoms	False	Chiari I Malformation	Chiari I Malformation
F2149-C19806	C19806	Medical history endocrine diabetes indicator	Indicator of diabetes	Supplemental	Past History (on intake)	False	Chiari I Malformation	Chiari I Malformation
F0016-C00033	C00033	Race USA maternal category	Race(s) the participant/subject's mother most closely identifies with	Supplemental	Demographics	False	Chiari I Malformation	Chiari I Malformation
F2183-C22491	C22491	Cranioplasty cerebelloplasty performed type	The type of cranioplasty/cerebelloplasty (if any) performed	Supplemental	Chiari I Malformation Treatment	False	Chiari I Malformation	Chiari I Malformation
F2194-C56985	C56985	Stair climbing difficulty type	The difficulty the participant/subject has when climbing stairs	Supplemental	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
F2156-C22755	C22755	Sexual dysfunction indicator	Indicator of whether the patient/participant experiences sexual dysfunction such as inability to attain orgasm, erectile dysfunction, inability to ejaculate	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2182-C22454	C22454	Pseudotumor papilledema family history condition indicator	The indicator related to personal or family history of pseudotumors or papilledema	Supplemental	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2164-C22386	C22386	Chiari malformation tethered spinal cord restless leg syndrome indicator	The indicator related to restless leg syndrome	Supplemental	CMI - Tethered Cord Screening	False	Chiari I Malformation	Chiari I Malformation
F2152-C02015	C02015	Medication prior or concomitant route type	Type of access route for the administration of the prior/concomitant medication	Supplemental	Medications (Prior and Current)	False	Chiari I Malformation	Chiari I Malformation
F2156-C22715	C22715	Visual field reduced look straight ahead indicator	Indicator of whether the patient/participant's visual field is reduced or missing a portion when looking straight ahead with either or both eyes	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2141-C21692	C21692	Chiari I malformation prickle tingle numb arm leg frequent occurrence symptom indicator	The indicator related to frequent prickling, tingling or numbness in your arms/legs in defining signs and symptoms for Chiari I malformation	Supplemental	Chiari List of 10	False	Chiari I Malformation	Chiari I Malformation
F2149-C21876	C21876	Surgical history pacemaker indicator	The indicator related to surgical history of a pacemaker	Supplemental	Past History (on intake)	False	Chiari I Malformation	Chiari I Malformation

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.