CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 326 - 350 of 855
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C58780 Birth sex assigned type other text

The free-text field related to 'Birth sex assigned type', specifying other text

Supplemental Demographics Chiari I Malformation Chiari I Malformation
C22761 Irritability indicator

Indicator of whether the patient/participant is experiencing or exhibits irritability

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C22465 Medical history cervical radiculopathy disc disease indicator

The indicator related to the history of cervical radiculopathy or disc disease

Supplemental Co-Morbidities Chiari I Malformation Chiari I Malformation
C17402 Site name

The name of the site for the study

Supplemental Chiari I Malformation Presentation Exam Chiari I Malformation Chiari I Malformation
C22721 Hearing very sensitive indicator

Indicator of whether the patient/participant has very sensitive hearing

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C21765 Chiari malformation screening dental development poor enamel temporomandibular joint problem indicator

The indicator related to having any developmental problems with teeth, poor dental enamel or temporomandibular joint disorder in a screening diagnosis for Chiari malformation

Supplemental CMI - Hereditary Disorders of Connective Tissue Screening (2) Chiari I Malformation Chiari I Malformation
C21689 Beighton Score - Total score

Total score as related to the Beighton Score

Supplemental General Exam Chiari I Malformation Chiari I Malformation
C22505 Thoracolumbar brace indicator

The indicator related to the implementation of a thoracolumbar brace

Supplemental Chiari I Malformation Treatment Chiari I Malformation Chiari I Malformation
C22213 Reflex deep tendon reflex jaw response score

The response score related to deep tendon reflex testing of jaw (trigeminal: cn v)

Supplemental Chiari I Malformation Presentation Exam Chiari I Malformation Chiari I Malformation
C55638 Neck Disability Index - lifting indicator

The pain indicator of lifting as part of the Neck Disability Index

Supplemental Neck Disability Index (NDI) Chiari I Malformation Chiari I Malformation
C22769 Unexpected breast milk production indicator

Indicator of whether the patient/participant is experiencing unexpected breast milk production

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C21722 Oculomotor saccadic pursuit assessment indicator

Indicator related to if there are saccades (quick movements of eye in same direction toward) and smooth pursuit (tracking object) eye movements which are two different types of oculomotor control

Supplemental Chiari I Malformation Presentation Exam Chiari I Malformation Chiari I Malformation
C05400 Injury date time

Date (and time, if applicable and known) of injury

Supplemental CMI - Headache Score Chiari I Malformation Chiari I Malformation
C21777 Abdomen soft non tender indicator

The indicator related to identifying a soft and non tender abdomen

Supplemental General Exam Chiari I Malformation Chiari I Malformation
C21703 Coordination Romberg maintain stance eye close assessment scale

The scale related to assessment of Romberg's test of neurological function of maintaining way of standing with eyes closed

Supplemental Coordination Chiari I Malformation Chiari I Malformation
C22272 Reflex deep tendon reflex achilles response score

The response score related to deep tendon reflex testing of achilles (tibial:s1)

Supplemental Chiari I Malformation Presentation Exam Chiari I Malformation Chiari I Malformation
C22710 Medication prior or concomitant dose frequency other text

The free-text field related to 'Medication prior or concomitant dose frequency' specifying other text. Dosing frequency for the administration of the prior/concomitant medication

Supplemental Medications (Prior and Current) Chiari I Malformation Chiari I Malformation
C19833 Psychiatric depression indicator

Indicator of history of depression

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C19831 Psychiatric anxiety indicator

Indicator of anxiety

Supplemental Co-Morbidities Chiari I Malformation Chiari I Malformation
C22237 Surgical procedure anatomic site other text

The free text field related to other anatomic site of surgical procedure

Supplemental Surgical Site Assessment Chiari I Malformation Chiari I Malformation
C22394 Tonsil position change measurement

Measurement related to the change in the position of the patient's lowest tonsil between pre surgical and post surgical images

Supplemental Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
C22212 Chiari malformation neurological examination deep tendon reflex symmetrical indicator

The indicator related to deep tendon reflexes (DTRs) 1-2+ and symmetrical

Supplemental Neurological Exam Chiari I Malformation Chiari I Malformation
C22031 Motor strength testing right triceps scale

The amount of movement in the right triceps muscle

Supplemental Motor Strength Testing Chiari I Malformation Chiari I Malformation
C22509 Shunt type

Shunt type

Supplemental Assessment of Shunt Function Chiari I Malformation Chiari I Malformation
C21925 Balance falls frequency

The frequency as related to falls

Supplemental Imbalance Chiari I Malformation Chiari I Malformation
Displaying 326 - 350 of 855

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.