CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 326 - 350 of 861
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C21769 Chiari malformation screening orthopedic flat feet scoliosis chest deformity screen indicator

The indicator related to having flat feet, scoliosis (spinal curvature), or a chest deformity in a screening for Chiari malformation

Supplemental CMI - Hereditary Disorders of Connective Tissue Screening (2) Chiari I Malformation Chiari I Malformation
C15917 Headache typical pain intensity rate scale

Rating scale for the pain of this headache on a scale of 0 -10

Supplemental Strain - Related Headache Chiari I Malformation Chiari I Malformation
C22362 Imaging post surgical procedure date

Date of post surgical imaging

Supplemental Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
C22199 Chiari malformation neurological examination tongue palate pharynx intact indicator

The indicator related to tongue, palate and pharynx being intact

Supplemental Neurological Exam Chiari I Malformation Chiari I Malformation
C22264 Reflex deep tendon reflex patellar response score

The response score related to deep tendon reflex testing of patellar (femoral:l2-4)

Supplemental Chiari I Malformation Presentation Exam Chiari I Malformation Chiari I Malformation
C21763 Temporal artery tenderness absent assessment text

The free text field related to not having any tenderness in temporal arteries which supply blood to the head and brain

Supplemental General Exam Chiari I Malformation Chiari I Malformation
C16046 Pregnancy labor delivery complication indicator

Indicator of whether there were complications during labor/delivery

Supplemental Co-Morbidities Chiari I Malformation Chiari I Malformation
C22232 Surgical procedure anatomic site

The anatomic site related to surgical procedure

Supplemental Surgical Site Assessment Chiari I Malformation Chiari I Malformation
C22211 Chiari malformation neurological examination pronator drift absent indicator

The indicator related to not having pronator drift

Supplemental Neurological Exam Chiari I Malformation Chiari I Malformation
C21784 Peripheral edema clubbing cyanosis absence text

The free text field related to identifying an absence of peripheral edema, clubbing or cyanosis

Supplemental General Exam Chiari I Malformation Chiari I Malformation
C06005 Data collected date and time

Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed

Supplemental Assessment of Shunt Function Chiari I Malformation Chiari I Malformation
C22034 Motor strength testing right wrist extension scale

The amount of movement in the extension of the right wrist muscles

Supplemental Motor Strength Testing Chiari I Malformation Chiari I Malformation
C21833 Headache symptom association type

The type as related to symptoms consistently associated with headache

Supplemental CMI - Headache Score Chiari I Malformation Chiari I Malformation
C22489 Dural additional closure agent type

The type of dural closure supplements used (if any)

Supplemental Chiari I Malformation Treatment Chiari I Malformation Chiari I Malformation
C56983 Range of motion at hip internal side type

The hip that the participant/subject feels pain on during internal range of motion

Supplemental Provocative-Other Testing Chiari I Malformation Chiari I Malformation
C21944 Dizziness motion related duration type

The duration as related to the motion related dizziness

Supplemental Imbalance Chiari I Malformation Chiari I Malformation
C22753 Sexual arousal difficulty maintain indicator

Indicator of whether the patient/participant is experiencing difficulty maintaining sexual arousal

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C22384 Chiari malformation tethered spinal cord persistent low back pain indicator

The indicator related to persistent or unexplained low back pain

Supplemental CMI - Tethered Cord Screening Chiari I Malformation Chiari I Malformation
C21841 Headache pain relief factor score

The score related to pain relief factor for headache

Supplemental CMI - Headache Score Chiari I Malformation Chiari I Malformation
C22713 Vision blurred indicator

Indicator of whether the patient/participant has blurred vision

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C00207 Marital or partner status

Status of participant/subject's current domestic relationship, whether marital or partnered

Supplemental Social Status Chiari I Malformation Chiari I Malformation
C22497 Suboptimal response revision requirement indicator

The indicator related to whether a suboptimal response to decompression required revision

Supplemental Chiari I Malformation Treatment Chiari I Malformation Chiari I Malformation
C22099 Modified Ashworth Scale - Limb tone testing left elbow scale

The scale of limb tone testing for the left elbow, as part of the Modified Ashworth Scale

Supplemental Modified Ashworth Scale - Limb Tone Testing Chiari I Malformation Chiari I Malformation
C22761 Irritability indicator

Indicator of whether the patient/participant is experiencing or exhibits irritability

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C22465 Medical history cervical radiculopathy disc disease indicator

The indicator related to the history of cervical radiculopathy or disc disease

Supplemental Co-Morbidities Chiari I Malformation Chiari I Malformation
Displaying 326 - 350 of 861

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.