CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 301 - 325 of 855
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C22739 Extremity stiffness indicator

Indicator of whether the patient/participant has experienced stiffness in his or her extremities

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C21707 Coordination finger to nose left upper extremity tap assessment scale

The scale related to assessment of the ability to complete the motion of finger to nose (left upper extremity) tap

Supplemental Coordination Chiari I Malformation Chiari I Malformation
C21923 Balance unsteady stand walk indicator

The indicator related to feelings of unsteadiness when standing or walking

Supplemental Imbalance Chiari I Malformation Chiari I Malformation
C22357 Chiari malformation identify speciality diagnosis type

The type of specialty of the individual responsible for diagnosis

Supplemental Chiari Symptom Onset Chiari I Malformation Chiari I Malformation
C21680 Allergy reaction latex indicator

Indicator related to allergic reaction to latex

Supplemental Allergy Chiari I Malformation Chiari I Malformation
C22499 Hydrocephalus diagnosis required intervention six month indicator

The indicator related to required intervention on a Hydrocephalus diagnosed six months post Chiari decompression

Supplemental Chiari I Malformation Treatment Chiari I Malformation Chiari I Malformation
C22747 Current diarrhea indicator

Indicator of whether the patient/participant currently experiences diarrhea

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C01507 Blood pressure diastolic measurement

Measurement of pressure of the participant's blood against the artery walls during diastole (the relaxation phase) in millimeters of mercury (mmHg)

Supplemental General Exam Chiari I Malformation Chiari I Malformation
C06005 Data collected date and time

Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed

Supplemental Modified Ashworth Scale - Limb Tone Testing Chiari I Malformation Chiari I Malformation
C22378 Chiari malformation tethered spinal cord urinate incomplete indicator

The indicator related to incomplete urination

Supplemental CMI - Tethered Cord Screening Chiari I Malformation Chiari I Malformation
C05454 Hypertension indicator

Indicator of hypertension. In adults, hypertension is defined as a systolic pressure >= 140 and a diastolic >= 90. In children, it is defined as systolic blood pressure >95th percentile for age

Supplemental Past History (on intake) Chiari I Malformation Chiari I Malformation
C22507 Spinal deformity stabilization indicator

The indicator related to the surgical stabilization of spinal deformity

Supplemental Chiari I Malformation Treatment Chiari I Malformation Chiari I Malformation
C55640 Neck Disability Index - headaches type

The element related to the type of headaches the participant/subject has as part of the Neck Disability Index

Supplemental Neck Disability Index (NDI) Chiari I Malformation Chiari I Malformation
C22755 Sexual dysfunction indicator

Indicator of whether the patient/participant experiences sexual dysfunction such as inability to attain orgasm, erectile dysfunction, inability to ejaculate

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C22103 Modified Ashworth Scale - Limb tone testing left hip scale

The scale of limb tone testing for the left hip, as part of the Modified Ashworth Scale

Supplemental Modified Ashworth Scale - Limb Tone Testing Chiari I Malformation Chiari I Malformation
C22386 Chiari malformation tethered spinal cord restless leg syndrome indicator

The indicator related to restless leg syndrome

Supplemental CMI - Tethered Cord Screening Chiari I Malformation Chiari I Malformation
C22715 Visual field reduced look straight ahead indicator

Indicator of whether the patient/participant's visual field is reduced or missing a portion when looking straight ahead with either or both eyes

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C19779 Medical history asthma pulmonary assessment indicator

Indicator of history of asthma

Supplemental Past History (on intake) Chiari I Malformation Chiari I Malformation
C00032 Race USA paternal category

Race(s) the participant/subject's father most closely identifies with

Supplemental Demographics Chiari I Malformation Chiari I Malformation
C22437 Suboccipital craniectomy size superior inferior measurement

The measurement related to the size of the suboccipital craniectomy superiorly or inferiorly

Supplemental Chiari I Malformation Treatment Chiari I Malformation Chiari I Malformation
C02011 Medication prior or concomitant dose frequency

Frequency of use of a prior/concomitant medication

Supplemental Medications (Prior and Current) Chiari I Malformation Chiari I Malformation
C19247 Subject ID

Subject identification ID

Supplemental Chiari I Malformation Presentation Exam Chiari I Malformation Chiari I Malformation
C22723 Throat tight indicator

Indicator of whether the patient/participant has throat tightness

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C21875 Surgical history cardiac bypass stent indicator

The indicator related to surgical history of cardiac bypass/stent

Supplemental Past History (on intake) Chiari I Malformation Chiari I Malformation
C22483 Chiari decompression verification decompression obex choroid plexus fourth ventricle indicator

The indicator related to the verification of decompression within the obex or the choroid plexus of the 4th ventricle

Supplemental Chiari I Malformation Treatment Chiari I Malformation Chiari I Malformation
Displaying 301 - 325 of 855

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.