CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 276 - 300 of 855
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C21734 Imaging syrinx highest level spinal segment number

The number as related to the highest level of syrinx, reported in terms of most superior spinal segment along syrinx

Supplemental Chiari I Malformation Imaging Chiari I Malformation Chiari I Malformation
C22526 Shunt valve type

Type of Shunt Valve

Supplemental Assessment of Shunt Function Chiari I Malformation Chiari I Malformation
C22040 Motor strength testing intrinsic right hand scale

The amount of movement in the intrinsic muscles of the right hand

Supplemental Motor Strength Testing Chiari I Malformation Chiari I Malformation
C01521 Heart rate

The participant's pulse or number of contractions (heart beats) per minute

Supplemental General Exam Chiari I Malformation Chiari I Malformation
C55646 Eye convergence retraction indicator

The indicator related to eye convergence and retraction

Supplemental Nystagmus/Strabismus Chiari I Malformation Chiari I Malformation
C01582 Height unit of measure

Unit of measure for the height numerical value for participant

Supplemental Chiari Symptom Onset Chiari I Malformation Chiari I Malformation
C22521 Assessment pre surgical procedure date

Date of the patient's pre-surgery evaluation

Supplemental Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
C22538 Shunt valve reservoir refill sit time

Shunt valve reservoir refill sitting time

Supplemental Assessment of Shunt Function Chiari I Malformation Chiari I Malformation
C22048 Motor strength testing left ankle df scale

The amount of movement in the left ankle df

Supplemental Motor Strength Testing Chiari I Malformation Chiari I Malformation
C21684 Beighton Score - Motion thumb forearm assessment score

Score/Assessment of the motion thumb to forearm as part of the Beighton Score

Supplemental General Exam Chiari I Malformation Chiari I Malformation
C22311 Chiari malformation imbalance dizziness onset important symptom scale

The scale as related to imbalance/dizziness at onset importance in Chiari malformation symptoms

Supplemental Chiari Symptom Onset Chiari I Malformation Chiari I Malformation
C21750 Imaging posterior cranial fossa tentorial angle measurement

The measurement as related to the angle between line drawn along the tentorium with line drawn from the internal occipital protuberance to the opisthion; Alternative measurement: angle between line drawn paralell to clivus and line drawn paralell to tentorium, independent of orientation of occipital bone

Supplemental Chiari I Malformation Imaging Chiari I Malformation Chiari I Malformation
C22255 Spine range of motion neck right rotation degree value

The value in degrees related to range in motion of neck to the right (80) in assessment of spine

Supplemental Spine: Range of Motion Assessment Chiari I Malformation Chiari I Malformation
C21769 Chiari malformation screening orthopedic flat feet scoliosis chest deformity screen indicator

The indicator related to having flat feet, scoliosis (spinal curvature), or a chest deformity in a screening for Chiari malformation

Supplemental CMI - Hereditary Disorders of Connective Tissue Screening (2) Chiari I Malformation Chiari I Malformation
C22181 Chiari malformation neurological examination speech fluent comprehension intact indicator

The indicator related to speech being fluent and comprehension intact

Supplemental Neurological Exam Chiari I Malformation Chiari I Malformation
C21763 Temporal artery tenderness absent assessment text

The free text field related to not having any tenderness in temporal arteries which supply blood to the head and brain

Supplemental General Exam Chiari I Malformation Chiari I Malformation
C56957 Cranio-cervical junction axial loading status

The status for cranio-cervical junction axial loading

Supplemental Provocative-Other Testing Chiari I Malformation Chiari I Malformation
C22333 Chiari malformation neck pain onset symptom severity scale

The scale as related to neck pain at onset severity in Chiari malformation symptoms

Supplemental Chiari Symptom Onset Chiari I Malformation Chiari I Malformation
C22189 Chiari malformation neurological examination facial sensation normal indicator

The indicator related to having normal facial sensation to touch and pin

Supplemental Neurological Exam Chiari I Malformation Chiari I Malformation
C21784 Peripheral edema clubbing cyanosis absence text

The free text field related to identifying an absence of peripheral edema, clubbing or cyanosis

Supplemental General Exam Chiari I Malformation Chiari I Malformation
C22351 Chiari malformation bowel bladder onset symptom severity scale

The scale as related to bowel/bladder at onset severity in Chiari malformation symptoms

Supplemental Chiari Symptom Onset Chiari I Malformation Chiari I Malformation
C11065 Gravida maternal value

Total number of times the participant's/subject's mother has been pregnant, regardless of whether these pregnancies were carried to term

Supplemental Co-Morbidities Chiari I Malformation Chiari I Malformation
C02411 Laterality type

Laterality type relative to the anatomic site of the body examined or affected

Supplemental Surgical Site Assessment Chiari I Malformation Chiari I Malformation
C22463 Imaging intra-operative type

The type of intra-operative imaging utilized (if any)

Supplemental Chiari I Malformation Treatment Chiari I Malformation Chiari I Malformation
C22034 Motor strength testing right wrist extension scale

The amount of movement in the extension of the right wrist muscles

Supplemental Motor Strength Testing Chiari I Malformation Chiari I Malformation
Displaying 276 - 300 of 855

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.