CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 251 - 275 of 861
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C22184 Chiari malformation neurological examination venous pulsation visible indicator

The indicator related to venous pulsations being seen

Supplemental Neurological Exam Chiari I Malformation Chiari I Malformation
C22347 Chiari malformation cardiac onset symptom severity scale

The scale as related to cardiac at onset severity in Chiari malformation symptoms

Supplemental Chiari Symptom Onset Chiari I Malformation Chiari I Malformation
C00032 Race USA paternal category

Race(s) the participant's father most closely identifies with

Supplemental Demographics Chiari I Malformation Chiari I Malformation
C22463 Imaging intra-operative type

The type of intra-operative imaging utilized (if any)

Supplemental Chiari I Malformation Treatment Chiari I Malformation Chiari I Malformation
C22363 Reflex autonomic reflex axon reflex status

The response status as related to autonomic reflexes axon reflexes status

Supplemental Reflex Testing Chiari I Malformation Chiari I Malformation
C56973 Muscle spasm tenderness type

Type of muscle spasm tenderness

Supplemental Provocative-Other Testing Chiari I Malformation Chiari I Malformation
C22442 Medical history correction high arched palate abnormality indicator

The indicator related to medical history of or correction of an abnormality in the subject's high arched palate

Supplemental Co-Morbidities Chiari I Malformation Chiari I Malformation
C21722 Oculomotor saccadic pursuit assessment indicator

Indicator related to if there are saccades (quick movements of eye in same direction toward) and smooth pursuit (tracking object) eye movements which are two different types of oculomotor control

Supplemental Brainstem Signs/Symptoms Chiari I Malformation Chiari I Malformation
C22201 Chiari malformation neurological examination hearing intact indicator

The indicator related to hearing being intact to 128 Hz TF, and the Weber is midline

Supplemental Neurological Exam Chiari I Malformation Chiari I Malformation
C22369 Chiari malformation tethered spinal cord frequent urinate indicator

Indicator related to frequency of urination

Supplemental CMI - Tethered Cord Screening Chiari I Malformation Chiari I Malformation
C12611 Birth location state name

Name of the state/province/similar political division in which participant was born

Supplemental Demographics Chiari I Malformation Chiari I Malformation
C13523 Dizziness or vertigo indicator

Indicator of whether the participant/subject experienced dizziness or vertigo

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C21796 Limb length discrepancy absent indicator

The indicator related to limb length discrepancy absence

Supplemental General Exam Chiari I Malformation Chiari I Malformation
C08007 Diagnosis first given date and time

Date (and time if applicable and known) the participant/subject was initially diagnosed with the disease or disorder

Supplemental Chiari Symptom Onset Chiari I Malformation Chiari I Malformation
C22522 Surgical procedure complication pseudomeningocele indicator

Indicator related to the presence of a pseudomeningocele complication post-surgery

Supplemental Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
C22746 Urethral stricture prostate problem diagnosis ever indicator

Indicator of whether the patient/participant has ever been diagnosed with a urethral stricture or prostate problem

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C22015 Ocular movement disorder type

The type as related to ocular movement disorder

Supplemental Imbalance Chiari I Malformation Chiari I Malformation
C22539 Shunt valve reservoir refill lying not collect reason

Reason the time to refill after compression with the subject/participant lying down was not collected

Supplemental Assessment of Shunt Function Chiari I Malformation Chiari I Malformation
C10724 Echocardiogram perform date and time

Date (and time, if applicable and known) the echocardiography was performed

Supplemental CMI - Hereditary Disorder of Connective Tissue Screening (1) Chiari I Malformation Chiari I Malformation
C55655 Nystagmus rebound indicator

The indicator related to nystagmus rebound or assessment for presence of nystagmus in primary after persistent eccentric gaze

Supplemental Nystagmus/Strabismus Chiari I Malformation Chiari I Malformation
C01507 Blood pressure diastolic measurement

Measurement of pressure of the participant's blood against the artery walls during diastole (the relaxation phase) in millimeters of mercury (mmHg)

Supplemental General Exam Chiari I Malformation Chiari I Malformation
C22313 Chiari malformation visual symptoms onset important symptom scale

The scale as related to visual symptoms at onset importance in Chiari malformation symptoms

Supplemental Chiari Symptom Onset Chiari I Malformation Chiari I Malformation
C22754 Attain orgasm difficulty indicator

Indicator of whether the patient/participant experiences difficulty attaining orgasm

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C22102 Modified Ashworth Scale - Limb tone testing right wrist scale

The scale of limb tone testing for the right wrist, as part of the Modified Ashworth Scale

Supplemental Modified Ashworth Scale - Limb Tone Testing Chiari I Malformation Chiari I Malformation
C22256 Spine range of motion neck left rotation degree value

The value in degrees related to range in motion of neck to the left (80) in assessment of spine

Supplemental Spine: Range of Motion Assessment Chiari I Malformation Chiari I Malformation
Displaying 251 - 275 of 861

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.