CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 251 - 275 of 855

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2158-C22531	C22531	Shunt valve surgical site status	Shunt valve surgical site status	Supplemental	Assessment of Shunt Function	False	Chiari I Malformation	Chiari I Malformation
F2146-C21686	C21686	Beighton Score - Motion elbow hyperextend score	Score/assessment of ability to complete the motion hyperextended elbow as part of the Beighton Score	Supplemental	CMI - Hereditary Disorder of Connective Tissue Screening (1)	False	Chiari I Malformation	Chiari I Malformation
F2153-C22043	C22043	Motor strength testing right hamstring scale	The amount of movement in the right hamstring	Supplemental	Motor Strength Testing	False	Chiari I Malformation	Chiari I Malformation
F2145-C01565	C01565	Blood pressure systolic measurement	Measurement of pressure of the participant's blood against the artery walls during systole (the contraction phase) in millimeters of mercury (mmHg)	Supplemental	General Exam	False	Chiari I Malformation	Chiari I Malformation
F2163-C22292	C22292	Chiari malformation associate problem diagnosis type	The type related to any associated problems found at the patient's diagnosis of Chiari Malformation	Supplemental	Chiari Symptom Onset	False	Chiari I Malformation	Chiari I Malformation
F2190-C22525	C22525	Parenchymal morphology post surgical procedure brainstem shape type	Type of the shape of the patient's brainstem post surgery	Supplemental	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2155-C22270	C22270	Reflex deep tendon reflex adductor response score	The response score related to deep tendon reflex testing of adductor (obturator:l2-4)	Supplemental	Reflex Testing	False	Chiari I Malformation	Chiari I Malformation
F2158-C22541	C22541	Shunt valve reservoir refill lying duration	Time to refill after compression, with the subject/participant lying down	Supplemental	Assessment of Shunt Function	False	Chiari I Malformation	Chiari I Malformation
F2147-C21761	C21761	Chiari malformation screening hypermobility family indicator	The indicator related to family members having joint hypermobility syndrome which is a condition that features joints that easily move beyond the normal range. Expected for that particular joint in a screening diagnosis for Chiari malformation	Supplemental	CMI - Hereditary Disorders of Connective Tissue Screening (2)	False	Chiari I Malformation	Chiari I Malformation
F2153-C22051	C22051	Motor strength testing right ehl scale	The amount of movement in the right ehl	Supplemental	Motor Strength Testing	False	Chiari I Malformation	Chiari I Malformation
F2145-C21687	C21687	Beighton Score - Motion knee hyperextend score	Score/assessment of ability to complete the Motion hyperextended knee as part of Beighton Score	Supplemental	General Exam	False	Chiari I Malformation	Chiari I Malformation
F2156-C22762	C22762	Chronic fatigue indicator	Indicator of whether the patient/participant is experiencing or exhibits chronic fatigue	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2152-C02008	C02008	Medication prior or concomitant end date and time	The date (and time, if applicable and known) the administration of the prior/concomitant medication ended	Supplemental	Medications (Prior and Current)	False	Chiari I Malformation	Chiari I Malformation
F2165-C18495	C18495	Protocol ID number	The designated number used to identify the protocol or study to which participants/subjects will be enrolled	Supplemental	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2141-C21690	C21690	Chiari I malformation headache pressure daily occurrence indicator	Indicator related to headache pain/pressure at the back or base of your head in defining signs and symptoms for Chiari I malformation	Supplemental	Chiari List of 10	False	Chiari I Malformation	Chiari I Malformation
F2183-C22506	C22506	Thoracolumbar brace text	The free-text field related to how long the brace was utilized	Supplemental	Chiari I Malformation Treatment	False	Chiari I Malformation	Chiari I Malformation
F2165-C22248	C22248	Reflex deep tendon reflex pectoralis response score	The response score related to deep tendon reflex testing of pectoralis (ant. thoracic: c5-t1)	Supplemental	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2272-C55639	C55639	Neck Disability Index - reading indicator	The pain indicator of reading as it relates to the Neck Disability Index	Supplemental	Neck Disability Index (NDI)	False	Chiari I Malformation	Chiari I Malformation
F2156-C22770	C22770	Need urinate multiple times while sleep indicator	Indicator of whether the patient/participant experiences the need to urinate more than once while sleeping	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2182-C22475	C22475	Medical history spinal stenosis indicator	The indicator related to any medical history of spinal stenosis in the subject, in which the subject's spine narrows	Supplemental	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2152-C18737	C18737	Medication prior or concomitant route type other text	The free-text field related to 'Medication prior or concomitant route type', specifying other text. Type of access route for the administration of the prior/concomitant medication	Supplemental	Medications (Prior and Current)	False	Chiari I Malformation	Chiari I Malformation
F2165-C21725	C21725	Strabismus assessment indicator	The indicator related to strabismus which is a condition that interferes with binocular vision because it prevents a person from directing both eyes simultaneously towards the same fixation point	Supplemental	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F1807-C58781	C58781	Gender identity type other text	The free-text field related to 'Gender identity type', specifying other text	Supplemental	General Core	False	Chiari I Malformation	Chiari I Malformation
F2165-C22276	C22276	Reflex deep tendon reflex hamstring response score	The response score related to deep tendon reflex testing of hamstring (sciatic/tibial:l4-s2)	Supplemental	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2157-C22225	C22225	Sensory abnormal tingling pain indicator	The indicator related to abnormal tingling pain	Supplemental	Sensory Symptoms	False	Chiari I Malformation	Chiari I Malformation

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.