CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1807-C00020	C00020	Ethnicity USA category	Category of ethnicity the participant/subject most closely identifies with	Core	General Core	False	Chiari I Malformation	Chiari I Malformation
F2182-C22476	C22476	Spinal cord tethered none indicator	The indicator related to not having the condition of tethered spinal cord (low lying conus medullaris)	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2182-C22429	C22429	Motor vehicle accident injury indicator	The indicator relating to any previous or current injuries due to a motor vehicle accident (MVA)	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2182-C22405	C22405	Cutaneous stigmata occult tethered spinal cord capillary hemengioma indicator	The indicator related to skin abnormalities associated with spina bifida or cutaneous stigmata occult tethered spinal cord specific for capillary hemengioma	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F1807-C00030	C00030	Race USA category	The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories	Core	General Core	False	Chiari I Malformation	Chiari I Malformation
F2182-C22447	C22447	Hydrocephalus family history untreated indicator	The indicator related to any personal or immediate family history of untreated hydrocephalus	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2156-C22205	C22205	Cough cry laugh sneeze pain worse indicator	The indicator related to pain worsened by coughing, crying, laughing, sneezing, orgasms, bowel movements	Core	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2182-C22430	C22430	Brain injury unspecified indicator	The indicator relating to any unspecified brain injuries the subject has had	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2182-C01058	C01058	Traumatic Brain Injury symptom indicator	Indicator of whether the participant/subject exhibited the specific TBI physical symptom/sign	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2182-C21887	C21887	Injury whiplash indicator	The indicator relating to injury in the form of whiplash	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2182-C22406	C22406	Cutaneous stigmata occult tethered spinal cord lipoma indicator	The indicator related to skin abnormalities associated with spina bifida or cutaneous stigmata occult tethered spinal cord specific for lipoma	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F0016-C58676	C58676	Birth sex assigned type	Self-reported phenotypic sex of participant/subject, assigned at birth	Core	Demographics	False	Chiari I Malformation	Chiari I Malformation
F1807-C00313	C00313	Medical history condition SNOMED CT code	Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject	Core	General Core	False	Chiari I Malformation	Chiari I Malformation
F2182-C22448	C22448	Hydrocephalus family history treated indicator	The indicator related to any personal or immediate family history of treated hydrocephalus	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2182-C22415	C22415	Chiari malformation family history indicator	The indicator relating to any family history of Chiari Malformation I, syringomelia, or any related disorders	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2182-C22431	C22431	Neck injury unspecified indicator	The indicator relating to any unspecified neck injuries the subject has had	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2182-C22399	C22399	Spina bifida diagnosis indicator	The indicator related to diagnosis of spina bifida	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2182-C22407	C22407	Cutaneous stigmata occult thread spinal cord appendage indicator	The indicator related to skin abnormalities associated with spina bifida or cutaneous stigmata occult tethered spinal cord specific for appendage	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F0016-C00007	C00007	Birth date	Date (and time, if applicable and known) the participant/subject was born	Core	Demographics	False	Chiari I Malformation	Chiari I Malformation
F0016-C58677	C58677	Gender identity type	Gender identity self-identified by the subject/participant. Gender type may or may not match sex assigned at birth	Core	Demographics	False	Chiari I Malformation	Chiari I Malformation
F1807-C00322	C00322	Medical history condition text	Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history	Core	General Core	False	Chiari I Malformation	Chiari I Malformation
F2182-C22479	C22479	Spinal cord tethered lipoma indicator	The indicator related to having lipoma as the condition of tethered spinal cord (low lying conus medullaris)	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2182-C22408	C22408	Cutaneous stigmata occult tethered spinal cord meningocele manque indicator	The indicator related to skin abnormalities associated with spina bifida or cutaneous stigmata occult tethered spinal cord specific for meningocele manque	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F0016-C00020	C00020	Ethnicity USA category	Category of ethnicity the participant/subject most closely identifies with	Core	Demographics	False	Chiari I Malformation	Chiari I Malformation
F1807-C58676	C58676	Birth sex assigned type	Self-reported phenotypic sex of participant/subject, assigned at birth	Core	General Core	False	Chiari I Malformation	Chiari I Malformation

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.