CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 151 - 175 of 861
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C22400 Spina bifida occulta diagnosis indicator

The indicator related to spina bifida in which there is a defect in the bony spinal canal without protrusion of the cord or meninges

Supplemental Co-Morbidities Chiari I Malformation Chiari I Malformation
C22401 Spina bifida myelomeningocele diagnosis indicator

The indicator related to myelomeningocele which is when before birth, the baby's backbone, spinal cord and the structure they float in (spinal canal) do not form or close normally

Exploratory Co-Morbidities Chiari I Malformation Chiari I Malformation
C22399 Spina bifida diagnosis indicator

The indicator related to diagnosis of spina bifida

Core Co-Morbidities Chiari I Malformation Chiari I Malformation
C22724 Speech difficulty indicator

Indicator of whether the patient/participant has difficulty with speech

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C22771 Snoring indicator

Indicator of whether the patient/participant snores during sleep

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C21717 Sleep disorder finding type

Type as related to sleep disorder

Supplemental Brainstem Signs/Symptoms Chiari I Malformation Chiari I Malformation
C22734 Skin change indicator

Indicator of whether the patient/participant has experienced a skin change

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C22409 Skin abnormality stretch mark indicator

The indicator related to evaluation of the presence of skin abnormality of stretch marks consistent with connective tissue disorders

Core Co-Morbidities Chiari I Malformation Chiari I Malformation
C22411 Skin abnormality peizogenic papule indicator

The indicator related to evaluation of the presence of skin abnormality of peizogenic papule consistent with connective tissue disorders

Exploratory Co-Morbidities Chiari I Malformation Chiari I Malformation
C22410 Skin abnormality hyperextensiblilty indicator

The indicator related to evaluation of the presence of skin abnormality of hyperextensiblilty consistent with connective tissue disorders

Core Co-Morbidities Chiari I Malformation Chiari I Malformation
C21719 Sixth cranial nerve palsy assessment status

Status as related to assessment of 6th cranial nerve palsy

Exploratory Brainstem Signs/Symptoms Chiari I Malformation Chiari I Malformation
C21719 Sixth cranial nerve palsy assessment status

Status as related to assessment of 6th cranial nerve palsy

Supplemental Chiari I Malformation Presentation Exam Chiari I Malformation Chiari I Malformation
C17402 Site name

The name of the site for the study

Supplemental Chiari I Malformation Presentation Exam Chiari I Malformation Chiari I Malformation
C22526 Shunt valve type

Type of Shunt Valve

Supplemental Assessment of Shunt Function Chiari I Malformation Chiari I Malformation
C22531 Shunt valve surgical site status

Shunt valve surgical site status

Supplemental Assessment of Shunt Function Chiari I Malformation Chiari I Malformation
C22529 Shunt valve surgical implantation date

Date of surgical implantation

Supplemental Assessment of Shunt Function Chiari I Malformation Chiari I Malformation
C22536 Shunt valve set type

setting type (confirmation, mechanical, electronic)

Supplemental Assessment of Shunt Function Chiari I Malformation Chiari I Malformation
C22544 Shunt valve scan type

Shunt valve scan type

Supplemental Assessment of Shunt Function Chiari I Malformation Chiari I Malformation
C22545 Shunt valve scan date

Date of shunt valve scan

Supplemental Assessment of Shunt Function Chiari I Malformation Chiari I Malformation
C22540 Shunt valve reservoir resistance type

Resistance to reservoir compression

Supplemental Assessment of Shunt Function Chiari I Malformation Chiari I Malformation
C22538 Shunt valve reservoir refill sit time

Shunt valve reservoir refill sitting time

Supplemental Assessment of Shunt Function Chiari I Malformation Chiari I Malformation
C22537 Shunt valve reservoir refill sit not collect reason

Reason the time to refill after compression with the subject/participant sitting down was not collected

Supplemental Assessment of Shunt Function Chiari I Malformation Chiari I Malformation
C22539 Shunt valve reservoir refill lying not collect reason

Reason the time to refill after compression with the subject/participant lying down was not collected

Supplemental Assessment of Shunt Function Chiari I Malformation Chiari I Malformation
C22541 Shunt valve reservoir refill lying duration

Time to refill after compression, with the subject/participant lying down

Supplemental Assessment of Shunt Function Chiari I Malformation Chiari I Malformation
C22532 Shunt valve removal date

Date shunt valve was removed

Supplemental Assessment of Shunt Function Chiari I Malformation Chiari I Malformation
Displaying 151 - 175 of 861

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.