CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 26 - 50 of 855

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Operations

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2194-C56987	C56987	Trigger point rhomboid type	Type of rhomboid trigger point	Supplemental	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
F2194-C56982	C56982	Trigger point paracervical type	Type of paracervical trigger point	Supplemental	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
F2156-C22720	C22720	Tremor indicator	Indicator of whether the patient/participant has tremors	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2182-C01058	C01058	Traumatic Brain Injury symptom indicator	Indicator of whether the participant/subject exhibited the specific TBI physical symptom/sign	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2190-C22377	C22377	Tonsil right cerebellar measurement	Measurement related to the lowest position of the patient's right cerebellar tonsil	Supplemental-Highly Recommended	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2190-C22394	C22394	Tonsil position change measurement	Measurement related to the change in the position of the patient's lowest tonsil between pre surgical and post surgical images	Supplemental	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2190-C22376	C22376	Tonsil lowest position measurement	Measurement of the lowest position of the patient's tonsils	Supplemental-Highly Recommended	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2190-C22393	C22393	Tonsil left cerebellar measurement	Measurement related to the lowest position of the patient's left cerebellar tonsil	Supplemental-Highly Recommended	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2140-C21715	C21715	Tongue function deviation assessment status	Status as related to tongue function deviation	Supplemental	Brainstem Signs/Symptoms	False	Chiari I Malformation	Chiari I Malformation
F2165-C21715	C21715	Tongue function deviation assessment status	Status as related to tongue function deviation	Supplemental	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2140-C21716	C21716	Tongue function atrophy assessment status	Status as related to tongue function atrophy	Supplemental	Brainstem Signs/Symptoms	False	Chiari I Malformation	Chiari I Malformation
F2194-C56992	C56992	Toe walking weakness type	Type of toe walking weakness	Exploratory	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
F2194-C56991	C56991	Toe walking type	Type of toe walking	Exploratory	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
F2145-C21795	C21795	TMJ intact indicator	The indicator related to an intact TMJ	Supplemental	General Exam	False	Chiari I Malformation	Chiari I Malformation
F2156-C22719	C22719	Tinnitus indicator	Indicator of whether the patient/participant has tinnitus or a high-pitched ringing in his or her ears	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2194-C56965	C56965	Tinels sign type	The reading of the participant/subject's Tinel's signs	Exploratory	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
F2194-C56967	C56967	Tinels sign positive side type	The side of the body that the participant/subject's Tinel's signs read positive	Exploratory	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
F2194-C56968	C56968	Tinels sign negative side type	The side on which the participant/subject's Tinel's signs read negative	Exploratory	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
F2156-C22765	C22765	Thyroid problem diagnosis ever indicator	Indicator of whether the patient/participant has ever been diagnosed with a thyroid problem	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2149-C18150	C18150	Thyroid disease indicator	Indicator for thyroid disease	Supplemental	Past History (on intake)	False	Chiari I Malformation	Chiari I Malformation
F2156-C22723	C22723	Throat tight indicator	Indicator of whether the patient/participant has throat tightness	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2183-C22506	C22506	Thoracolumbar brace text	The free-text field related to how long the brace was utilized	Supplemental	Chiari I Malformation Treatment	False	Chiari I Malformation	Chiari I Malformation
F2183-C22505	C22505	Thoracolumbar brace indicator	The indicator related to the implementation of a thoracolumbar brace	Supplemental	Chiari I Malformation Treatment	False	Chiari I Malformation	Chiari I Malformation
F2145-C21763	C21763	Temporal artery tenderness absent assessment text	The free text field related to not having any tenderness in temporal arteries which supply blood to the head and brain	Supplemental	General Exam	False	Chiari I Malformation	Chiari I Malformation
F2145-C21762	C21762	Temporal artery tenderness absent assessment indicator	The indicator related to not having any tenderness in temporal arteries which supply blood to the head and brain	Supplemental	General Exam	False	Chiari I Malformation	Chiari I Malformation

Displaying 26 - 50 of 855

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.