CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

Search Form

Displaying 1 - 25 of 901
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C22760 Word selection anomia indicator

Indicator of whether the patient/participant is experiencing or exhibits problems with recalling words

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C01581 Weight unit of measure

Unit of measure for the weight numerical value

Supplemental Chiari Symptom Onset Chiari I Malformation Chiari I Malformation
C01581 Weight unit of measure

Unit of measure for the weight numerical value

Supplemental General Exam Chiari I Malformation Chiari I Malformation
C01541 Weight measurement

Measurement of participant's/subject's weight

Supplemental General Exam Chiari I Malformation Chiari I Malformation
C01541 Weight measurement

Measurement of participant's/subject's weight

Supplemental Chiari Symptom Onset Chiari I Malformation Chiari I Malformation
C10709 Walking assistive device indicator

Indicator of whether the participant/subject uses an assistive device for walking

Supplemental Chiari I Malformation Presentation Exam Chiari I Malformation Chiari I Malformation
C22718 Walk unsteady indicator

Indicator of whether the patient/participant feels unsteady when walking

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C22725 Vocal hoarseness increase indicator

Indicator of whether the patient/participant has experienced an increase in vocal hoarseness

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C22715 Visual field reduced look straight ahead indicator

Indicator of whether the patient/participant's visual field is reduced or missing a portion when looking straight ahead with either or both eyes

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C22714 Vision doubled indicator

Indicator of whether the patient/participant has double vision

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C22713 Vision blurred indicator

Indicator of whether the patient/participant has blurred vision

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C21720 Vertigo assessment indicator

Indicator as related to assessment of vertigo

Supplemental Brainstem Signs/Symptoms Chiari I Malformation Chiari I Malformation
C22494 Ventral decompression type

The type of ventral decompression utilitized (if any)

Supplemental Chiari I Malformation Treatment Chiari I Malformation Chiari I Malformation
C22490 Valsalva challenge perform indicator

The indicator related to whether a valsalva challenge was performed in order to assess the integrity of the closure

Supplemental Chiari I Malformation Treatment Chiari I Malformation Chiari I Malformation
C22740 Urination urge control difficulty indicator

Indicator of whether the patient/participant has experienced difficulty controlling the urge to urinate

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C22741 Urination initiation difficulty indicator

Indicator of whether the patient/participant has experienced difficulty initiating urination

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C06020 Urinary incontinence past three months indicator

Indicator of involuntary urine leakage (incontinence) within the last three months. Urinary incontinence is defined by International Continence Society (Abrams et al. 2002) as the complaint of any involuntary leakage of urine

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C22746 Urethral stricture prostate problem diagnosis ever indicator

Indicator of whether the patient/participant has ever been diagnosed with a urethral stricture or prostate problem

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C21797 Upper lower limb pulse intact indicator

The indicator related to intact upper and lower limbs

Supplemental General Exam Chiari I Malformation Chiari I Malformation
C22769 Unexpected breast milk production indicator

Indicator of whether the patient/participant is experiencing unexpected breast milk production

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C56959 Truncal flexion type

The participant/subject's truncal flexion capability

Supplemental Provocative-Other Testing Chiari I Malformation Chiari I Malformation
C56960 Truncal extension type

The participant/subject's truncal extension capability

Supplemental Provocative-Other Testing Chiari I Malformation Chiari I Malformation
C56977 Trigger point type

Type of trigger points

Supplemental Provocative-Other Testing Chiari I Malformation Chiari I Malformation
C56986 Trigger point trapezius type

Type of trapezius trigger point

Supplemental Provocative-Other Testing Chiari I Malformation Chiari I Malformation
C56980 Trigger point suboccipital type

Type of suboccipital trigger point

Supplemental Provocative-Other Testing Chiari I Malformation Chiari I Malformation
Displaying 1 - 25 of 901

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.