CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2183-C22491	C22491	Cranioplasty cerebelloplasty performed type	The type of cranioplasty/cerebelloplasty (if any) performed	Supplemental	Chiari I Malformation Treatment	False	Chiari I Malformation	Chiari I Malformation
F2156-C22751	C22751	Crohns disease colitis diagnosis ever indicator	Indicator of whether the patient/participant has ever been diagnosed with Crohn's disease or colitis	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2156-C22747	C22747	Current diarrhea indicator	Indicator of whether the patient/participant currently experiences diarrhea	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2145-C21789	C21789	Cutaneous stigma absent indicator	The indicator related to an absence of cutaneous stigma	Supplemental	General Exam	False	Chiari I Malformation	Chiari I Malformation
F2145-C21792	C21792	Cutaneous stigma absent text	The free text field related to an absence of cutaneous stigma	Supplemental	General Exam	False	Chiari I Malformation	Chiari I Malformation
F2182-C22405	C22405	Cutaneous stigmata occult tethered spinal cord capillary hemengioma indicator	The indicator related to skin abnormalities associated with spina bifida or cutaneous stigmata occult tethered spinal cord specific for capillary hemengioma	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2182-C22404	C22404	Cutaneous stigmata occult tethered spinal cord dimple indicator	The indicator related to skin abnormalities associated with spina bifida or cutaneous stigmata occult tethered spinal cord specific for skin dimple	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2182-C22403	C22403	Cutaneous stigmata occult tethered spinal cord hair tuft indicator	The indicator related to skin abnormalities associated with spina bifida or cutaneous stigmata occult tethered spinal cord specific for hair tuft	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2182-C22406	C22406	Cutaneous stigmata occult tethered spinal cord lipoma indicator	The indicator related to skin abnormalities associated with spina bifida or cutaneous stigmata occult tethered spinal cord specific for lipoma	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2182-C22408	C22408	Cutaneous stigmata occult tethered spinal cord meningocele manque indicator	The indicator related to skin abnormalities associated with spina bifida or cutaneous stigmata occult tethered spinal cord specific for meningocele manque	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2182-C22407	C22407	Cutaneous stigmata occult thread spinal cord appendage indicator	The indicator related to skin abnormalities associated with spina bifida or cutaneous stigmata occult tethered spinal cord specific for appendage	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2155-C06005	C06005	Data collected date and time	Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed	Supplemental	Reflex Testing	False	Chiari I Malformation	Chiari I Malformation
F2151-C06005	C06005	Data collected date and time	Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed	Supplemental	Modified Ashworth Scale - Limb Tone Testing	False	Chiari I Malformation	Chiari I Malformation
F2138-C06005	C06005	Data collected date and time	Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed	Supplemental	Allergy	False	Chiari I Malformation	Chiari I Malformation
F2164-C06005	C06005	Data collected date and time	Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed	Supplemental	CMI - Tethered Cord Screening	False	Chiari I Malformation	Chiari I Malformation
F2158-C06005	C06005	Data collected date and time	Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed	Supplemental	Assessment of Shunt Function	False	Chiari I Malformation	Chiari I Malformation
F0016-C22780	C22780	Date time clock type	Type of clock used to record date and time	Supplemental	Demographics	0	Chiari I Malformation	Chiari I Malformation
F2163-C08007	C08007	Diagnosis first given date and time	Date (and time if applicable and known) the participant/subject was initially diagnosed with the disease or disorder	Supplemental	Chiari Symptom Onset	False	Chiari I Malformation	Chiari I Malformation
F2182-C22470	C22470	Diamond blackfan anemia disorder indicator	The indicator related to the presence of the disorder Diamond-Blackfan anemia (DBA), in which the bone marrow malfunctions and fails to produce enough red blood cells	Supplemental	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2150-C21944	C21944	Dizziness motion related duration type	The duration as related to the motion related dizziness	Supplemental	Imbalance	False	Chiari I Malformation	Chiari I Malformation
F2150-C21931	C21931	Dizziness motion related indicator	The indicator related to motion related dizziness	Supplemental	Imbalance	False	Chiari I Malformation	Chiari I Malformation
F2156-C13523	C13523	Dizziness or vertigo indicator	Indicator of whether the participant/subject experienced dizziness or vertigo	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2146-C12175	C12175	Dual X-ray absorptiometry performed date	Date the dual X-ray absorptiometry (DXA) was performed	Supplemental	CMI - Hereditary Disorder of Connective Tissue Screening (1)	False	Chiari I Malformation	Chiari I Malformation
F2183-C22489	C22489	Dural additional closure agent type	The type of dural closure supplements used (if any)	Supplemental	Chiari I Malformation Treatment	False	Chiari I Malformation	Chiari I Malformation
F2183-C22488	C22488	Dural closure technique type	The type of dural closure technique utilized (if any)	Supplemental	Chiari I Malformation Treatment	False	Chiari I Malformation	Chiari I Malformation

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.