CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 176 - 200 of 855
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C21769 Chiari malformation screening orthopedic flat feet scoliosis chest deformity screen indicator

The indicator related to having flat feet, scoliosis (spinal curvature), or a chest deformity in a screening for Chiari malformation

Supplemental CMI - Hereditary Disorders of Connective Tissue Screening (2) Chiari I Malformation Chiari I Malformation
C21767 Chiari malformation screening orthopedic joint hip dislocation unusual pain screen indicator

The indicator related to any kind of hip or any other joint dislocation, unusual joint pain, or susceptibility to joint injury in a screening for Chiari malformation

Supplemental CMI - Hereditary Disorders of Connective Tissue Screening (2) Chiari I Malformation Chiari I Malformation
C21771 Chiari malformation screening wound prolong heal separation indicator

The indicator related to experiencing prolonged wound healing or separation in a screening for Chiari malformation

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C21771 Chiari malformation screening wound prolong heal separation indicator

The indicator related to experiencing prolonged wound healing or separation in a screening for Chiari malformation

Supplemental CMI - Hereditary Disorders of Connective Tissue Screening (2) Chiari I Malformation Chiari I Malformation
C22382 Chiari malformation tethered spinal cord decrease pelvic sensation indicator

The indicator related to a decrease of sensation in the pelvic region

Supplemental CMI - Tethered Cord Screening Chiari I Malformation Chiari I Malformation
C22369 Chiari malformation tethered spinal cord frequent urinate indicator

Indicator related to frequency of urination

Supplemental CMI - Tethered Cord Screening Chiari I Malformation Chiari I Malformation
C22391 Chiari malformation tethered spinal cord history severe growing pain indicator

The indicator related to a history of growing pains during childhood and adolescence

Supplemental CMI - Tethered Cord Screening Chiari I Malformation Chiari I Malformation
C22388 Chiari malformation tethered spinal cord knee bent sleep back pain indicator

The indicator related to knees bent at night to relieve back or leg discomfort

Supplemental CMI - Tethered Cord Screening Chiari I Malformation Chiari I Malformation
C22385 Chiari malformation tethered spinal cord leg pain indicator

The indicator related to leg pain

Supplemental CMI - Tethered Cord Screening Chiari I Malformation Chiari I Malformation
C22383 Chiari malformation tethered spinal cord loss sexual intercourse ability indicator

The indicator related to the loss of ability to perform physiological sexual functions

Supplemental CMI - Tethered Cord Screening Chiari I Malformation Chiari I Malformation
C22389 Chiari malformation tethered spinal cord low back leg pain urinary symptom stair walk indicator

The indicator related to low back pain, leg pain, or urinary symptoms while walking up stairs

Supplemental CMI - Tethered Cord Screening Chiari I Malformation Chiari I Malformation
C22381 Chiari malformation tethered spinal cord occasional fecal incontinence indicator

The indicator related to the occasional incontinence (in context of stool)

Supplemental CMI - Tethered Cord Screening Chiari I Malformation Chiari I Malformation
C22380 Chiari malformation tethered spinal cord past urodynamic test indicator

The indicator related to past urodynamic testing

Supplemental CMI - Tethered Cord Screening Chiari I Malformation Chiari I Malformation
C22384 Chiari malformation tethered spinal cord persistent low back pain indicator

The indicator related to persistent or unexplained low back pain

Supplemental CMI - Tethered Cord Screening Chiari I Malformation Chiari I Malformation
C22379 Chiari malformation tethered spinal cord reoccur bladder kidney indicator

The indicator related to recurring urinary bladder or kidney infection

Supplemental CMI - Tethered Cord Screening Chiari I Malformation Chiari I Malformation
C22386 Chiari malformation tethered spinal cord restless leg syndrome indicator

The indicator related to restless leg syndrome

Supplemental CMI - Tethered Cord Screening Chiari I Malformation Chiari I Malformation
C22387 Chiari malformation tethered spinal cord sole numbness indicator

The indicator related to numbness in the soles of an individual's feet

Supplemental CMI - Tethered Cord Screening Chiari I Malformation Chiari I Malformation
C22375 Chiari malformation tethered spinal cord urinary drench incontinence indicator

The indicator related to urinary drenching (in context of urinary incontinence)

Supplemental CMI - Tethered Cord Screening Chiari I Malformation Chiari I Malformation
C22374 Chiari malformation tethered spinal cord urinary dribble incontinence indicator

The indicator related to dribbling (in the context of urinary incontinence)

Supplemental CMI - Tethered Cord Screening Chiari I Malformation Chiari I Malformation
C22371 Chiari malformation tethered spinal cord urinary incontinence indicator

The indicator related to urinary incontinence

Supplemental CMI - Tethered Cord Screening Chiari I Malformation Chiari I Malformation
C22378 Chiari malformation tethered spinal cord urinate incomplete indicator

The indicator related to incomplete urination

Supplemental CMI - Tethered Cord Screening Chiari I Malformation Chiari I Malformation
C22366 Chiari malformation tethered spinal cord urine hold trouble indicator

The indicator related to trouble holding your urine

Supplemental CMI - Tethered Cord Screening Chiari I Malformation Chiari I Malformation
C22313 Chiari malformation visual symptoms onset important symptom scale

The scale as related to visual symptoms at onset importance in Chiari malformation symptoms

Supplemental Chiari Symptom Onset Chiari I Malformation Chiari I Malformation
C22337 Chiari malformation visual symptoms onset symptom severity scale

The scale as related to visual symptoms at onset severity in Chiari malformation symptoms

Supplemental Chiari Symptom Onset Chiari I Malformation Chiari I Malformation
C22762 Chronic fatigue indicator

Indicator of whether the patient/participant is experiencing or exhibits chronic fatigue

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
Displaying 176 - 200 of 855

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.