CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 101 - 125 of 855
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C21697 Chiari I malformation chronic fatigue short-term memory loss irritable symptom indicator

The indicator related to complaints of chronic fatigue, short-term memory loss or irritability in defining signs and symptoms for Chiari I malformation

Exploratory Chiari List of 10 Chiari I Malformation Chiari I Malformation
C21698 Chiari I malformation generalize weakness stiff arm leg symptom indicator

The indicator related to generalized weakness/stiffness of your arms and legs in defining signs and symptoms for Chiari I malformation

Exploratory Chiari List of 10 Chiari I Malformation Chiari I Malformation
C21690 Chiari I malformation headache pressure daily occurrence indicator

Indicator related to headache pain/pressure at the back or base of your head in defining signs and symptoms for Chiari I malformation

Supplemental Chiari List of 10 Chiari I Malformation Chiari I Malformation
C21695 Chiari I malformation headache pressure eye ear light sensitive symptom indicator

The indicator related to any feeling of pressure in your eyes/ears or sensitivity to light in defining signs and symptoms for Chiari I malformation

Exploratory Chiari List of 10 Chiari I Malformation Chiari I Malformation
C21696 Chiari I malformation headache strain activity worsen symptom indicator

The indicator related to headache worsened by straining activities in defining signs and symptoms for Chiari I malformation

Supplemental-Highly Recommended Chiari List of 10 Chiari I Malformation Chiari I Malformation
C21691 Chiari I malformation neck pain stiff radiate shoulder symptom indicator

The indicator related to neck pain/stiffness radiating in your shoulders in defining signs and symptoms for Chiari I malformation

Exploratory Chiari List of 10 Chiari I Malformation Chiari I Malformation
C21693 Chiari I malformation position change dizzy symptom indicator

The indicator related to dizziness with position changes in defining signs and symptoms for Chiari I malformation

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C21693 Chiari I malformation position change dizzy symptom indicator

The indicator related to dizziness with position changes in defining signs and symptoms for Chiari I malformation

Supplemental Chiari List of 10 Chiari I Malformation Chiari I Malformation
C21692 Chiari I malformation prickle tingle numb arm leg frequent occurrence symptom indicator

The indicator related to frequent prickling, tingling or numbness in your arms/legs in defining signs and symptoms for Chiari I malformation

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C21692 Chiari I malformation prickle tingle numb arm leg frequent occurrence symptom indicator

The indicator related to frequent prickling, tingling or numbness in your arms/legs in defining signs and symptoms for Chiari I malformation

Supplemental Chiari List of 10 Chiari I Malformation Chiari I Malformation
C21699 Chiari I malformation shortness breath blur vision ring ear urinary urgency heart palpitation symptom indicator

The indicator related to complaints of shortness of breath, blurred vision, ringing in your ears, urinary ugency, or heart palpitations in defining signs and symptoms for Chiari I malformation

Exploratory Chiari List of 10 Chiari I Malformation Chiari I Malformation
C21694 Chiari I malformation unsteady stand walk symptom indicator

The indicator related to feelings of unsteadiness when standing or walking in defining signs and symptoms for Chiari I malformation

Exploratory Chiari List of 10 Chiari I Malformation Chiari I Malformation
C22292 Chiari malformation associate problem diagnosis type

The type related to any associated problems found at the patient's diagnosis of Chiari Malformation

Supplemental Chiari Symptom Onset Chiari I Malformation Chiari I Malformation
C22315 Chiari malformation auditory symptoms onset important symptom scale

The scale as related to auditory symptoms at onset importance in Chiari malformation symptoms

Supplemental Chiari Symptom Onset Chiari I Malformation Chiari I Malformation
C22340 Chiari malformation auditory symptoms onset symptom severity scale

The scale as related to auditory symptoms at onset severity in Chiari malformation symptoms

Supplemental Chiari Symptom Onset Chiari I Malformation Chiari I Malformation
C22324 Chiari malformation bowel bladder onset important symptom scale

The scale as related to bowel/bladder at onset importance in Chiari malformation symptoms

Supplemental Chiari Symptom Onset Chiari I Malformation Chiari I Malformation
C22351 Chiari malformation bowel bladder onset symptom severity scale

The scale as related to bowel/bladder at onset severity in Chiari malformation symptoms

Supplemental Chiari Symptom Onset Chiari I Malformation Chiari I Malformation
C22320 Chiari malformation brain fog onset important symptom scale

The scale as related to brain fog at onset importance in Chiari malformation symptoms

Supplemental Chiari Symptom Onset Chiari I Malformation Chiari I Malformation
C22345 Chiari malformation brain fog onset symptom severity scale

The scale as related to brain fog at onset severity in Chiari malformation symptoms

Supplemental Chiari Symptom Onset Chiari I Malformation Chiari I Malformation
C22323 Chiari malformation cardiac onset important symptom scale

The scale as related to cardiac at onset importance in Chiari malformation symptoms

Supplemental Chiari Symptom Onset Chiari I Malformation Chiari I Malformation
C22347 Chiari malformation cardiac onset symptom severity scale

The scale as related to cardiac at onset severity in Chiari malformation symptoms

Supplemental Chiari Symptom Onset Chiari I Malformation Chiari I Malformation
C22434 Chiari malformation conservative management duration

Duration of conservative management from time of initial imaging diagnosis

Supplemental Chiari I Malformation Treatment Chiari I Malformation Chiari I Malformation
C22432 Chiari malformation conservative management indicator

The indicator related to conservative management with no surgical treatment offered

Supplemental Chiari I Malformation Treatment Chiari I Malformation Chiari I Malformation
C22415 Chiari malformation family history indicator

The indicator relating to any family history of Chiari Malformation I, syringomelia, or any related disorders

Core Co-Morbidities Chiari I Malformation Chiari I Malformation
C22317 Chiari malformation fatigue onset important symptom scale

The scale as related to fatigue at onset importance in Chiari malformation symptoms

Supplemental Chiari Symptom Onset Chiari I Malformation Chiari I Malformation
Displaying 101 - 125 of 855

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.