CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 326 - 350 of 855
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C01521 Heart rate

The participant's pulse or number of contractions (heart beats) per minute

Supplemental CMI - Hereditary Disorder of Connective Tissue Screening (1) Chiari I Malformation Chiari I Malformation
C56989 Heel walking type

Type of heel walking

Supplemental Provocative-Other Testing Chiari I Malformation Chiari I Malformation
C56990 Heel walking weakness type

Type of heel walking weakness

Supplemental Provocative-Other Testing Chiari I Malformation Chiari I Malformation
C01522 Height measurement

Measurement of participant's height

Supplemental Chiari Symptom Onset Chiari I Malformation Chiari I Malformation
C01522 Height measurement

Measurement of participant's height

Supplemental General Exam Chiari I Malformation Chiari I Malformation
C01522 Height measurement

Measurement of participant's height

Supplemental CMI - Hereditary Disorder of Connective Tissue Screening (1) Chiari I Malformation Chiari I Malformation
C01582 Height unit of measure

Unit of measure for the height numerical value for participant

Supplemental CMI - Hereditary Disorder of Connective Tissue Screening (1) Chiari I Malformation Chiari I Malformation
C01582 Height unit of measure

Unit of measure for the height numerical value for participant

Supplemental General Exam Chiari I Malformation Chiari I Malformation
C01582 Height unit of measure

Unit of measure for the height numerical value for participant

Supplemental Chiari Symptom Onset Chiari I Malformation Chiari I Malformation
C22775 Hereditary disorder connective tissue diagnosis type

The type related to hereditary disorder of connective tissues

Supplemental-Highly Recommended CMI - Hereditary Disorder of Connective Tissue Screening (1) Chiari I Malformation Chiari I Malformation
C22402 Hereditary disorder connective tissue diagnosis indicator

The indicator related to personal or family history of double-jointedness or excessive joint flexibility or dislocations, also known as Hereditary Disorder of Connective Tissue (HDCT)

Supplemental-Highly Recommended CMI - Hereditary Disorder of Connective Tissue Screening (1) Chiari I Malformation Chiari I Malformation
C22402 Hereditary disorder connective tissue diagnosis indicator

The indicator related to personal or family history of double-jointedness or excessive joint flexibility or dislocations, also known as Hereditary Disorder of Connective Tissue (HDCT)

Core Co-Morbidities Chiari I Malformation Chiari I Malformation
C22776 Hereditary disorder type

The type related to hereditary disorder of connective tissues

Supplemental-Highly Recommended CMI - Hereditary Disorder of Connective Tissue Screening (1) Chiari I Malformation Chiari I Malformation
C22774 Hoarseness assessment indicator

The indicator related to hoarseness which describes abnormal voice changes

Supplemental Chiari I Malformation Presentation Exam Chiari I Malformation Chiari I Malformation
C22774 Hoarseness assessment indicator

The indicator related to hoarseness which describes abnormal voice changes

Exploratory Brainstem Signs/Symptoms Chiari I Malformation Chiari I Malformation
C22499 Hydrocephalus diagnosis required intervention six month indicator

The indicator related to required intervention on a Hydrocephalus diagnosed six months post Chiari decompression

Supplemental Chiari I Malformation Treatment Chiari I Malformation Chiari I Malformation
C22450 Hydrocephalus family history aqueductal stenosis indicator

The indicator related to personal or immediate family history of hydrocephalus, specifically aqueductal stenosis, or the narrowing of the aqueducts in the brain causing the blockage of the flow of cerebrospinal fluid (CSF)

Core Co-Morbidities Chiari I Malformation Chiari I Malformation
C22449 Hydrocephalus family history slit ventricle indicator

The indicator related to personal or immediate family history of hydrocephalus, specifically slit ventricle syndrome

Supplemental Co-Morbidities Chiari I Malformation Chiari I Malformation
C22448 Hydrocephalus family history treated indicator

The indicator related to any personal or immediate family history of treated hydrocephalus

Core Co-Morbidities Chiari I Malformation Chiari I Malformation
C22447 Hydrocephalus family history untreated indicator

The indicator related to any personal or immediate family history of untreated hydrocephalus

Core Co-Morbidities Chiari I Malformation Chiari I Malformation
C22451 Hydrocephalus family history ventricle variant indicator

The indicator related to personal or immediate family history of hydrocephalus, specifically any ventricular variants, such as cavum septum pellucidum and cavum vergi

Core Co-Morbidities Chiari I Malformation Chiari I Malformation
C05454 Hypertension indicator

Indicator of hypertension. In adults, hypertension is defined as a systolic pressure >= 140 and a diastolic >= 90. In children, it is defined as systolic blood pressure >95th percentile for age

Supplemental Past History (on intake) Chiari I Malformation Chiari I Malformation
C21730 Imaging cerebellar tonsil left position measurement

The measurement related to left tonsillar position relative to foramen magnum

Core Chiari I Malformation Imaging Chiari I Malformation Chiari I Malformation
C21728 Imaging cerebellar tonsil lowest position measurement

The measurement related to lowest tonsillar position relative to foramen magnum

Core Chiari I Malformation Imaging Chiari I Malformation Chiari I Malformation
C21729 Imaging cerebellar tonsil right position measurement

The measurement related to right tonsillar position relative to foramen magnum

Core Chiari I Malformation Imaging Chiari I Malformation Chiari I Malformation
Displaying 326 - 350 of 855

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.