CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2146-C01521	C01521	Heart rate	The participant's pulse or number of contractions (heart beats) per minute	Supplemental	CMI - Hereditary Disorder of Connective Tissue Screening (1)	False	Chiari I Malformation	Chiari I Malformation
F2194-C56989	C56989	Heel walking type	Type of heel walking	Supplemental	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
F2194-C56990	C56990	Heel walking weakness type	Type of heel walking weakness	Supplemental	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
F2146-C01522	C01522	Height measurement	Measurement of participant's height	Supplemental	CMI - Hereditary Disorder of Connective Tissue Screening (1)	False	Chiari I Malformation	Chiari I Malformation
F2163-C01522	C01522	Height measurement	Measurement of participant's height	Supplemental	Chiari Symptom Onset	False	Chiari I Malformation	Chiari I Malformation
F2145-C01522	C01522	Height measurement	Measurement of participant's height	Supplemental	General Exam	False	Chiari I Malformation	Chiari I Malformation
F2146-C01582	C01582	Height unit of measure	Unit of measure for the height numerical value for participant	Supplemental	CMI - Hereditary Disorder of Connective Tissue Screening (1)	False	Chiari I Malformation	Chiari I Malformation
F2145-C01582	C01582	Height unit of measure	Unit of measure for the height numerical value for participant	Supplemental	General Exam	False	Chiari I Malformation	Chiari I Malformation
F2163-C01582	C01582	Height unit of measure	Unit of measure for the height numerical value for participant	Supplemental	Chiari Symptom Onset	False	Chiari I Malformation	Chiari I Malformation
F2146-C22775	C22775	Hereditary disorder connective tissue diagnosis type	The type related to hereditary disorder of connective tissues	Supplemental-Highly Recommended	CMI - Hereditary Disorder of Connective Tissue Screening (1)	False	Chiari I Malformation	Chiari I Malformation
F2146-C22402	C22402	Hereditary disorder connective tissue diagnosis indicator	The indicator related to personal or family history of double-jointedness or excessive joint flexibility or dislocations, also known as Hereditary Disorder of Connective Tissue (HDCT)	Supplemental-Highly Recommended	CMI - Hereditary Disorder of Connective Tissue Screening (1)	False	Chiari I Malformation	Chiari I Malformation
F2182-C22402	C22402	Hereditary disorder connective tissue diagnosis indicator	The indicator related to personal or family history of double-jointedness or excessive joint flexibility or dislocations, also known as Hereditary Disorder of Connective Tissue (HDCT)	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2146-C22776	C22776	Hereditary disorder type	The type related to hereditary disorder of connective tissues	Supplemental-Highly Recommended	CMI - Hereditary Disorder of Connective Tissue Screening (1)	False	Chiari I Malformation	Chiari I Malformation
F2165-C22774	C22774	Hoarseness assessment indicator	The indicator related to hoarseness which describes abnormal voice changes	Supplemental	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2140-C22774	C22774	Hoarseness assessment indicator	The indicator related to hoarseness which describes abnormal voice changes	Exploratory	Brainstem Signs/Symptoms	False	Chiari I Malformation	Chiari I Malformation
F2183-C22499	C22499	Hydrocephalus diagnosis required intervention six month indicator	The indicator related to required intervention on a Hydrocephalus diagnosed six months post Chiari decompression	Supplemental	Chiari I Malformation Treatment	False	Chiari I Malformation	Chiari I Malformation
F2182-C22450	C22450	Hydrocephalus family history aqueductal stenosis indicator	The indicator related to personal or immediate family history of hydrocephalus, specifically aqueductal stenosis, or the narrowing of the aqueducts in the brain causing the blockage of the flow of cerebrospinal fluid (CSF)	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2182-C22449	C22449	Hydrocephalus family history slit ventricle indicator	The indicator related to personal or immediate family history of hydrocephalus, specifically slit ventricle syndrome	Supplemental	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2182-C22448	C22448	Hydrocephalus family history treated indicator	The indicator related to any personal or immediate family history of treated hydrocephalus	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2182-C22447	C22447	Hydrocephalus family history untreated indicator	The indicator related to any personal or immediate family history of untreated hydrocephalus	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2182-C22451	C22451	Hydrocephalus family history ventricle variant indicator	The indicator related to personal or immediate family history of hydrocephalus, specifically any ventricular variants, such as cavum septum pellucidum and cavum vergi	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2149-C05454	C05454	Hypertension indicator	Indicator of hypertension. In adults, hypertension is defined as a systolic pressure >= 140 and a diastolic >= 90. In children, it is defined as systolic blood pressure >95th percentile for age	Supplemental	Past History (on intake)	False	Chiari I Malformation	Chiari I Malformation
F2172-C21730	C21730	Imaging cerebellar tonsil left position measurement	The measurement related to left tonsillar position relative to foramen magnum	Core	Chiari I Malformation Imaging	False	Chiari I Malformation	Chiari I Malformation
F2172-C21728	C21728	Imaging cerebellar tonsil lowest position measurement	The measurement related to lowest tonsillar position relative to foramen magnum	Core	Chiari I Malformation Imaging	False	Chiari I Malformation	Chiari I Malformation
F2172-C21729	C21729	Imaging cerebellar tonsil right position measurement	The measurement related to right tonsillar position relative to foramen magnum	Core	Chiari I Malformation Imaging	False	Chiari I Malformation	Chiari I Malformation

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.