CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 251 - 275 of 855
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C00015 Education year count

Number of years of education completed (age 5 and beyond)

Supplemental-Highly Recommended General Core Chiari I Malformation Chiari I Malformation
C58514 Empty sella turcica present indicator

The indicator related to presence of empty sella turcica

Exploratory Chiari I Malformation Imaging Chiari I Malformation Chiari I Malformation
C00020 Ethnicity USA category

Category of ethnicity the participant/subject most closely identifies with

Core General Core Chiari I Malformation Chiari I Malformation
C00020 Ethnicity USA category

Category of ethnicity the participant/subject most closely identifies with

Core Demographics Chiari I Malformation Chiari I Malformation
C00022 Ethnicity USA maternal category

Ethnicity the participant/subject's mother most closely identifies with

Supplemental Demographics Chiari I Malformation Chiari I Malformation
C00021 Ethnicity USA paternal category

Ethnicity the participant/subject's father most closely identifies with

Supplemental Demographics Chiari I Malformation Chiari I Malformation
C22742 Excessive urination frequency indicator

Indicator of whether the patient/participant's urination frequency has been excessive

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C22733 Extremity specific area pain decreased sensation indicator

Indicator of whether the patient/participant has experienced pain or decreased sensation in a specific area of his or her extremities

Supplemental-Highly Recommended Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C22739 Extremity stiffness indicator

Indicator of whether the patient/participant has experienced stiffness in his or her extremities

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C22736 Extremity weakness indicator

Indicator of whether the patient/participant has experienced weakness of his or her extremities

Supplemental-Highly Recommended Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C55648 Eye absent visual fixation primary position type

The type as related to the primary position in absence of visual fixation

Supplemental Nystagmus/Strabismus Chiari I Malformation Chiari I Malformation
C55646 Eye convergence retraction indicator

The indicator related to eye convergence and retraction

Supplemental Nystagmus/Strabismus Chiari I Malformation Chiari I Malformation
C55650 Eye visual fixation left lateral gaze type

The type as related to left lateral gaze in visual fixation

Supplemental-Highly Recommended Nystagmus/Strabismus Chiari I Malformation Chiari I Malformation
C55647 Eye visual fixation primary position type

The type as related to the primary position during visual fixation

Supplemental-Highly Recommended Nystagmus/Strabismus Chiari I Malformation Chiari I Malformation
C55649 Eye visual fixation right lateral gaze type

The type as related to right lateral gaze in visual fixation

Supplemental-Highly Recommended Nystagmus/Strabismus Chiari I Malformation Chiari I Malformation
C55651 Eye visual fixation vertical downgaze type

The type as related to vertical downgaze in visual fixation

Supplemental-Highly Recommended Nystagmus/Strabismus Chiari I Malformation Chiari I Malformation
C55652 Eye visual fixation vertical upgaze type

The type as related to vertical upgaze in visual fixation

Supplemental Nystagmus/Strabismus Chiari I Malformation Chiari I Malformation
C22477 Family history allergy multiple mast cell disease activation disorder indicator

The indicator relating to personal or family history of allergy or multiple sensitivities, Mast Cell Disease, or Mast Cell Activation Disorder

Exploratory Co-Morbidities Chiari I Malformation Chiari I Malformation
C22455 Family history cranial synostosis condition type

The type related to personal or family history of the condition of cranial synostosis

Supplemental Co-Morbidities Chiari I Malformation Chiari I Malformation
C22427 Fetal alcohol syndrome condition indicator

The indicator related to the condition of fetal alcohol syndrome, which the group of signs and symptoms of birth defects caused by a woman drinking alcohol during pregnancy

Exploratory Co-Morbidities Chiari I Malformation Chiari I Malformation
C22728 Frequent nausea indicator

Indicator of whether the patient/participant has experienced frequent nausea

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C21714 Gag reflect status

Status as related to gag reflex

Supplemental Chiari I Malformation Presentation Exam Chiari I Malformation Chiari I Malformation
C21714 Gag reflect status

Status as related to gag reflex

Supplemental Brainstem Signs/Symptoms Chiari I Malformation Chiari I Malformation
C11061 Gait assessment result

Result of the gait assessment

Supplemental Imbalance Chiari I Malformation Chiari I Malformation
C58677 Gender identity type

Gender identity self-identified by the subject/participant. Gender type may or may not match sex assigned at birth

Core Demographics Chiari I Malformation Chiari I Malformation
Displaying 251 - 275 of 855

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.