CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 126 - 150 of 855

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2156-C22729	C22729	Pain touch sensitivity increase indicator	Indicator of whether the patient/participant has experienced an increase in sensitivity to pain or touch	Supplemental-Highly Recommended	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2156-C22728	C22728	Frequent nausea indicator	Indicator of whether the patient/participant has experienced frequent nausea	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2156-C22727	C22727	Breath shortness indicator	Indicator of whether the patient/participant has experienced shortness of breath	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2156-C22726	C22726	Palpitations indicator	Indicator of whether the patient/participant has experienced palpitations	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2156-C22725	C22725	Vocal hoarseness increase indicator	Indicator of whether the patient/participant has experienced an increase in vocal hoarseness	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2156-C22724	C22724	Speech difficulty indicator	Indicator of whether the patient/participant has difficulty with speech	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2156-C22723	C22723	Throat tight indicator	Indicator of whether the patient/participant has throat tightness	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2156-C22722	C22722	Swallow difficulty indicator	Indicator of whether the patient/participant has difficulty swallowing	Supplemental-Highly Recommended	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2156-C22721	C22721	Hearing very sensitive indicator	Indicator of whether the patient/participant has very sensitive hearing	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2156-C22720	C22720	Tremor indicator	Indicator of whether the patient/participant has tremors	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2156-C22719	C22719	Tinnitus indicator	Indicator of whether the patient/participant has tinnitus or a high-pitched ringing in his or her ears	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2156-C22718	C22718	Walk unsteady indicator	Indicator of whether the patient/participant feels unsteady when walking	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2156-C22717	C22717	Stand unsteady indicator	Indicator of whether the patient/participant feels unsteady when standing	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2156-C22716	C22716	Ear pressure indicator	Indicator of whether the patient/participant has pressure in his or her ears	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2156-C22715	C22715	Visual field reduced look straight ahead indicator	Indicator of whether the patient/participant's visual field is reduced or missing a portion when looking straight ahead with either or both eyes	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2156-C22714	C22714	Vision doubled indicator	Indicator of whether the patient/participant has double vision	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2156-C22713	C22713	Vision blurred indicator	Indicator of whether the patient/participant has blurred vision	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2156-C22712	C22712	Light sensitivity indicator	Indicator of whether the patient/participant is sensitive to light	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2156-C22711	C22711	Pain pressure behind eyes indicator	Indicator of whether the patient/participant feels pressure or pain behind his or her eyes	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2152-C22710	C22710	Medication prior or concomitant dose frequency other text	The free-text field related to 'Medication prior or concomitant dose frequency' specifying other text. Dosing frequency for the administration of the prior/concomitant medication	Supplemental	Medications (Prior and Current)	False	Chiari I Malformation	Chiari I Malformation
F2156-C22665	C22665	Medical history chronic constipation indicator	Indicator of whether the participant/subject has/had chronic constipation	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2190-C22577	C22577	Parenchymal morphology post surgical procedure brainstem change measurement	Measurement of the change in the patient's brainstem shape, if any	Supplemental	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2190-C22576	C22576	Parenchymal morphology post surgical procedure tonsil change measurement	Measurement related to the change in the patient's tonsil shape, if any	Supplemental	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2190-C22575	C22575	Surgical procedure performed date	Date the surgical procedure was performed on the subject	Supplemental	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2190-C22574	C22574	Surgical procedure complication mechanic displacement type	Type of mechanical displacement the subject has, if any	Supplemental	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation

Displaying 126 - 150 of 855

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.