CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 651 - 675 of 855
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C22519 Syrinx width change measurement

Measurement of the change in the maximum width of the patient's spinal syrinx after the operation

 Supplemental Chiari I Malformation Treatment Outcomes False Chiari I Malformation Chiari I Malformation
C22520 Parenchymal morphology post surgical procedure tonsil shape type

Type of the shape of the patient's cerebellar tonsils post surgery

 Supplemental Chiari I Malformation Treatment Outcomes False Chiari I Malformation Chiari I Malformation
C22521 Assessment pre surgical procedure date

Date of the patient's pre-surgery evaluation

 Supplemental Chiari I Malformation Treatment Outcomes False Chiari I Malformation Chiari I Malformation
C22522 Surgical procedure complication pseudomeningocele indicator

Indicator related to the presence of a pseudomeningocele complication post-surgery

 Supplemental Chiari I Malformation Treatment Outcomes False Chiari I Malformation Chiari I Malformation
C22523 Shunt valve manufacturer other text

The free-text related to shunt valve manufacturer; specifying other text

 Exploratory Assessment of Shunt Function False Chiari I Malformation Chiari I Malformation
C22524 Surgical procedure complication pseudomeningocele type

Type of pseudomeningocele found in the patient's brain, if any

 Exploratory Chiari I Malformation Treatment Outcomes False Chiari I Malformation Chiari I Malformation
C22525 Parenchymal morphology post surgical procedure brainstem shape type

Type of the shape of the patient's brainstem post surgery

 Supplemental Chiari I Malformation Treatment Outcomes False Chiari I Malformation Chiari I Malformation
C22526 Shunt valve type

Type of Shunt Valve

 Supplemental Assessment of Shunt Function False Chiari I Malformation Chiari I Malformation
C22527 Shunt valve other text

The free-text related to shunt valve; specifying other text

 Supplemental Assessment of Shunt Function False Chiari I Malformation Chiari I Malformation
C22528 Surgical procedure complication cerebrospinal fluid disorder indicator

Indicator related to the complication of a cerebrospinal fluid (CSF) disorder

 Supplemental Chiari I Malformation Treatment Outcomes False Chiari I Malformation Chiari I Malformation
C22529 Shunt valve surgical implantation date

Date of surgical implantation

 Supplemental Assessment of Shunt Function False Chiari I Malformation Chiari I Malformation
C22530 Surgical procedure complication cerebrospinal fluid disorder type

Type of cerebrospinal fluid (CSF) disorder the patient has, if any

 Exploratory Chiari I Malformation Treatment Outcomes False Chiari I Malformation Chiari I Malformation
C22531 Shunt valve surgical site status

Shunt valve surgical site status

 Supplemental Assessment of Shunt Function False Chiari I Malformation Chiari I Malformation
C22532 Shunt valve removal date

Date shunt valve was removed

 Supplemental Assessment of Shunt Function False Chiari I Malformation Chiari I Malformation
C22533 Surgical procedure complication fluid collection indicator

Indicator related to the complication of a fluid collection within the brain

 Supplemental Chiari I Malformation Treatment Outcomes False Chiari I Malformation Chiari I Malformation
C22534 Surgical procedure complication fluid collection type

Type of fluid collection in the patient's brain post operation, if any

 Exploratory Chiari I Malformation Treatment Outcomes False Chiari I Malformation Chiari I Malformation
C22535 Shunt valve in place indicator

Shunt valve currenting in place

 Supplemental Assessment of Shunt Function False Chiari I Malformation Chiari I Malformation
C22536 Shunt valve set type

setting type (confirmation, mechanical, electronic)

 Supplemental Assessment of Shunt Function False Chiari I Malformation Chiari I Malformation
C22537 Shunt valve reservoir refill sit not collect reason

Reason the time to refill after compression with the subject/participant sitting down was not collected

 Supplemental Assessment of Shunt Function False Chiari I Malformation Chiari I Malformation
C22538 Shunt valve reservoir refill sit time

Shunt valve reservoir refill sitting time

 Supplemental Assessment of Shunt Function False Chiari I Malformation Chiari I Malformation
C22539 Shunt valve reservoir refill lying not collect reason

Reason the time to refill after compression with the subject/participant lying down was not collected

 Supplemental Assessment of Shunt Function False Chiari I Malformation Chiari I Malformation
C22540 Shunt valve reservoir resistance type

Resistance to reservoir compression

 Supplemental Assessment of Shunt Function False Chiari I Malformation Chiari I Malformation
C22541 Shunt valve reservoir refill lying duration

Time to refill after compression, with the subject/participant lying down

 Supplemental Assessment of Shunt Function False Chiari I Malformation Chiari I Malformation
C22542 Shunt valve manometric pressure type

Provide the shunt value for the manometric pressure

 Exploratory Assessment of Shunt Function False Chiari I Malformation Chiari I Malformation
C22543 Shunt valve functional assessment type

Shunt valve functional assessment type

 Supplemental Assessment of Shunt Function False Chiari I Malformation Chiari I Malformation
Displaying 651 - 675 of 855

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.