CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F3049-C59407	C59407	Passive range motion hip joint right side flexion measurement value	Value of the right side hip joint flexion passive range of motion measurement	Supplemental	Lower Extremity Passive Range of Motion Physical Exam	False	Cerebral Palsy	Cerebral Palsy
F2015-C53715	C53715	Test of Everyday Attention for Children (TEA-Ch) - Code transmission total correct age scaled count	Count of the Code transmission total correct age scaled number of correctly identified targets as related to the Test of Everyday Attention for Children (TEA-Ch) assessment	Supplemental	Test of Everyday Attention for Children (TEA-Ch)	True	Cerebral Palsy	Cerebral Palsy
F2200-C22597	C22597	Therapy participant count	The number of patients participating in the therapy session	Supplemental	Speech and Language Therapy Treatment Session	False	Cerebral Palsy	Cerebral Palsy
F2015-C53640	C53640	Test of Everyday Attention for Children (TEA-Ch) - Creature counting timing score B score	Score of Creature Counting timing score B score as related to the Test of Everyday Attention for Children (TEA-Ch) assessment	Supplemental	Test of Everyday Attention for Children (TEA-Ch)	True	Cerebral Palsy	Cerebral Palsy
F2203-C14126	C14126	Seizure classification type	The type of seizures present by classification	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F3050-C59222	C59222	Surgery procedure hamstring lengthen percutaneous knee laterality type	Laterality type relative to the knee surgical hamstring lengthening percutaneous procedure undergone by participant/subject	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Knee	False	Cerebral Palsy	Cerebral Palsy
F2691-C58483	C58483	Static upper extremity orthosis splint use anatomic site	Anatomic site of the static upper extremity orthosis/splints use	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F3052-C59284	C59284	Surgery procedure varus derotational osteotomy proximal femur left hip type	Type of the surgical varus derotational osteotomy proximal femur procedure performed on the left hip	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Hip	False	Cerebral Palsy	Cerebral Palsy
F2290-C22619	C22619	Therapy bill unit service value	The total units of service billed for the patient or client's therapy treatment session	Supplemental	Physical Therapy Individual Session	False	Cerebral Palsy	Cerebral Palsy
F3049-C59421	C59421	Passive range motion hip joint right side external rotation measurement value	Value of the right side hip joint external rotation passive range of motion measurement	Supplemental	Lower Extremity Passive Range of Motion Physical Exam	False	Cerebral Palsy	Cerebral Palsy
F2016-C56280	C56280	NIH Toolbox Cognitive Cognition crystallized composite age adjusted scale score	The age adjusted scale score for the Cognition Crystallized Composite field of the NIH Toolbox Cognitive Battery	Supplemental	NIH Toolbox Cognitive Battery	False	Cerebral Palsy	Cerebral Palsy
F2203-C22646	C22646	Medical history retinopathy of prematurity indicator	Indicator of whether the participant/subject has been affected by Retinopathy of prematurity	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2295-C12608	C12608	Respiratory pattern status	Assessment of the respiratory breathing pattern	Supplemental	Vital Signs	False	Cerebral Palsy	Cerebral Palsy
F3051-C59401	C59401	Surgery procedure first metatarsal osteotomy arthrodesis ankle perform indicator	Indicator of whether the participant/subject has undergone the ankle first metatarsal osteotomy/arthrodesis surgical procedure	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
F2200-C22618	C22618	Therapy session minute duration	The duration of the patient or client's treatment session in minutes	Supplemental	Speech and Language Therapy Treatment Session	False	Cerebral Palsy	Cerebral Palsy
F2289-C22866	C22866	Imaging magnetic resonance imaging date and time	The date and time related to the magnetic resonance imaging	Supplemental	Neuroimaging Cerebral Palsy Magnetic Resonance Imaging	False	Cerebral Palsy	Cerebral Palsy
F1046-C17895	C17895	Genes sequenced with no mutations text	The free-text field about additional genes sequenced with no mutations detected	Supplemental	Mutation Analysis	False	Cerebral Palsy	Cerebral Palsy
F2015-C53652	C53652	Test of Everyday Attention for Children (TEA-Ch) - Sky search dual task decrement deviation excess five percent cutoff count	Count of Sky Search dual task decrement difference of the Sky Search dual task decrement value in excess of 5% cut-off as related to the Test of Everyday Attention for Children (TEA-Ch) assessment	Supplemental	Test of Everyday Attention for Children (TEA-Ch)	True	Cerebral Palsy	Cerebral Palsy
F2203-C17462	C17462	Cardiovascular history abnormal echocardiogram decreased left ventricular function indicator	Indicator as to whether the participant/subject has or had an abnormal echocardiogram (ECG) specifically exhibiting decreased left ventricular (LV) function	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2197-C21121	C21121	Subject zip postal code number	The number of the subject/participant's zip/postal code	Supplemental	Demographics	False	Cerebral Palsy	Cerebral Palsy
F3052-C59292	C59292	Surgery procedure pelvic osteotomy left hip perform type other text	The free-text field related to "Surgery procedure pelvic osteotomy left hip perform type" specifying other text.	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Hip	False	Cerebral Palsy	Cerebral Palsy
F2290-C22904	C22904	Physical therapy focus area type	The type related to physical therapy focus area	Supplemental	Physical Therapy Individual Session	False	Cerebral Palsy	Cerebral Palsy
F3049-C59436	C59436	Passive range motion knee joint left side extension measurement value	Value of the left side knee joint extension passive range of motion measurement	Supplemental	Lower Extremity Passive Range of Motion Physical Exam	False	Cerebral Palsy	Cerebral Palsy
F2016-C56288	C56288	NIH Toolbox Cognitive Cognition fluid composite fully adjusted scale score	The fully adjusted scale score for the Cognition Fluid Composite field of the NIH Toolbox Cognitive Battery	Supplemental	NIH Toolbox Cognitive Battery	False	Cerebral Palsy	Cerebral Palsy
F2203-C22655	C22655	Medical history respiratory distress syndrome indicator	Indicator of whether the participant/subject has been diagnosed with respiratory distress syndrome	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.