CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

Displaying 1126 - 1150 of 1249

Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2203-C22666	C22666	Medical history oropharyngeal dysphagia indicator	Indicator of whether the participant/subject has/had oropharyngeal dysphagia	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2200-C22637	C22637	Speech language pathology focus area augmentative alternative communication intervention type	The type of intervention used for augmentative and alternative communication (AAC) as part of the speech and language therapy treatment session	Supplemental	Speech and Language Therapy Treatment Session	False	Cerebral Palsy	Cerebral Palsy
F2016-C56278	C56278	NIH Toolbox Cognitive Cognition crystallized composite computed score	The computed score for the Cognition Crystallized Composite field of the NIH Toolbox Cognitive Battery	Supplemental	NIH Toolbox Cognitive Battery	False	Cerebral Palsy	Cerebral Palsy
F2016-C56319	C56319	NIH Toolbox Cognitive List scoring working memory age 7 up computed score	The computed score for the NIHTB List Scoring Working Memory Age 7+ field of the NIH Toolbox Cognitive Battery	Supplemental	NIH Toolbox Cognitive Battery	False	Cerebral Palsy	Cerebral Palsy
F1046-C17893	C17893	Gene missense nonsense variant point mutation location other text	The free-text field about missense/nonsense variant or point mutation at locations other than the exon and intron	Supplemental	Mutation Analysis	False	Cerebral Palsy	Cerebral Palsy
F2015-C53650	C53650	Test of Everyday Attention for Children (TEA-Ch) - Sky search dual task decrement B score	B Score of the Sky Search dual task decrement value as related to the Test of Everyday Attention for Children (TEA-Ch) assessment	Supplemental	Test of Everyday Attention for Children (TEA-Ch)	True	Cerebral Palsy	Cerebral Palsy
F3052-C59307	C59307	Surgery procedure arthroplasty hip laterality type	Laterality type relative to the hip surgical arthroplasty procedure undergone by participant/subject	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Hip	False	Cerebral Palsy	Cerebral Palsy
F3049-C59454	C59454	Passive range motion ankle joint left side plantarflexion measurement value	Value of the left side ankle joint plantarflexion passive range of motion measurement	Supplemental	Lower Extremity Passive Range of Motion Physical Exam	False	Cerebral Palsy	Cerebral Palsy
F2691-C56951	C56951	Walker use type	Type of walker which the participant/subject uses, if applicable	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F2291-C22889	C22889	Sensory system abnormality symptom description text	Text representing the patient's description of his/her abnormal symptoms in his/her sensory system	Supplemental	Neurological Examination	False	Cerebral Palsy	Cerebral Palsy
F3052-C59267	C59267	Surgery procedure psoas lengthen percutaneous left hip anatomic site other text	The free-text field related to "Surgery procedure psoas lengthen percutaneous left hip anatomic site" specifying other text	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Hip	False	Cerebral Palsy	Cerebral Palsy
F2207-C04804	C04804	Hospital discharge date and time	Date (and time, if applicable and known) the participant/subject was discharged from the hospital	Supplemental	Surgical and Hospitalization History	False	Cerebral Palsy	Cerebral Palsy
F2814-C58670	C58670	Visual impairment severity type	Type of visual impairment severity of the participant/subject	Supplemental	Participant Condition Characteristics	False	Cerebral Palsy	Cerebral Palsy
F2202-C22597	C22597	Therapy participant count	The number of patients participating in the therapy session	Supplemental	Occupational Therapy Treatment Session: Cerebral Palsy	False	Cerebral Palsy	Cerebral Palsy
F2291-C14440	C14440	Muscle bulk assessment anatomic site	Anatomic location of the muscle bulk exam as part of the motor examination	Supplemental	Neurological Examination	False	Cerebral Palsy	Cerebral Palsy
F2060-C20825	C20825	Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep comfortable position trouble assessment past week scale	The scale which represents how often the participant had trouble getting into a comfortable position to sleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	Supplemental	PROMIS Item Bank v1.0 - Sleep Disturbance	True	Cerebral Palsy	Cerebral Palsy
F2203-C22674	C22674	Medical history obsessive compulsive disorder indicator	Indicator of whether participant/subject has Obsessive Compulsive Disorder (OCD)	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2201-C05130	C05130	Therapy or rehabilitation type	Type of therapy or rehabilitation services received by the participant/subject	Supplemental	Rehabilitation Therapies - Episodes of care	False	Cerebral Palsy	Cerebral Palsy
F2016-C56286	C56286	NIH Toolbox Cognitive Cognition fluid composite age adjusted scale score	The age adjusted scale score for the Cognition Fluid Composite field of the NIH Toolbox Cognitive Battery	Supplemental	NIH Toolbox Cognitive Battery	False	Cerebral Palsy	Cerebral Palsy
F2016-C56328	C56328	NIH Toolbox Cognitive Dimensional change card sort age 3 up age adjusted scale score	The age adjusted scale score for the NIHTB Dimensional Change Card Sort 3+ field of the NIH Toolbox Cognitive Battery	Supplemental	NIH Toolbox Cognitive Battery	False	Cerebral Palsy	Cerebral Palsy
F3052-C59286	C59286	Surgery procedure varus derotational osteotomy proximal femur left hip type other text	The free-text field related to "Surgery procedure varus derotational osteotomy proximal femur left hip type" specifying other text.	NeuroRehab Supplemental-Highly Recommended	Lower Extremity Orthopedic Surgical Procedures - Hip	False	Cerebral Palsy	Cerebral Palsy
F3052-C59310	C59310	Surgery procedure arthroplasty left hip perform type other text	The free-text field related to "Surgery procedure arthroplasty left hip perform type" specifying other text	NeuroRehab Supplemental-Highly Recommended	Lower Extremity Orthopedic Surgical Procedures - Hip	False	Cerebral Palsy	Cerebral Palsy
F3052-C59281	C59281	Surgery procedure varus derotational osteotomy proximal femur hip laterality type	Laterality type relative to the hip surgical varus derotational osteotomy of proximal femur procedure undergone by participant/subject	NeuroRehab Supplemental-Highly Recommended	Lower Extremity Orthopedic Surgical Procedures - Hip	False	Cerebral Palsy	Cerebral Palsy
F2122-C08532	C08532	36-item Short Form Health Survey (SF-36) - Times interfered social physical or emotional score	Score of times physical health or emotional problems interfered with social activities (like visiting with friends, relatives, etc) during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)	Exploratory	Short Form 36-Item Health Survey (SF-36)	True	Cerebral Palsy	Cerebral Palsy
F2122-C08502	C08502	36-item Short Form Health Survey (SF-36) - Now heath score	Score of surveyee-reported present general heath compared to a year ago as part of version 1.0 of 36-item Short Form Health Survey (SF-36)	Exploratory	Short Form 36-Item Health Survey (SF-36)	True	Cerebral Palsy	Cerebral Palsy

Displaying 1126 - 1150 of 1249

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.