CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2691-C58503	C58503	Communication device category type other text	The free-text field related to 'Communication devices category type', specifying other text	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F2291-C14432	C14432	Mental status exam abnormality indicator	Whether the mental assessment showed abnormal results	Supplemental	Neurological Examination	False	Cerebral Palsy	Cerebral Palsy
F2016-C56291	C56291	NIH Toolbox Cognitive Cognition early childhood composite unadjusted scale score	The unadjusted scale score for the Cognition Early Childhood Composite field of the NIH Toolbox Cognitive Battery	Supplemental	NIH Toolbox Cognitive Battery	False	Cerebral Palsy	Cerebral Palsy
F2200-C22632	C22632	Speech language pathology focus area language receptive understand intervention type	The type of intervention used for receptive language and understanding as part of the speech and language therapy treatment session	Supplemental	Speech and Language Therapy Treatment Session	False	Cerebral Palsy	Cerebral Palsy
F3051-C59357	C59357	Surgery procedure tibial derotational osteotomy internal ankle laterality type	Laterality type relative to the ankle surgical tibial derotational osteotomy internal procedure undergone by participant/subject	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
F2015-C53669	C53669	Test of Everyday Attention for Children (TEA-Ch) - Score dual task deviation from first count	Count of the Score dual task difference from First (Version A) Score dual task count as related to the Test of Everyday Attention for Children (TEA-Ch) assessment	Supplemental	Test of Everyday Attention for Children (TEA-Ch)	True	Cerebral Palsy	Cerebral Palsy
F2198-C12605	C12605	Caregiver primary type	Type of relationship that the person who serves as the participant/subject's primary caregiver has with the participant/subject	Supplemental	Social Status	False	Cerebral Palsy	Cerebral Palsy
F2308-C22107	C22107	Modified Ashworth Scale - Limb tone testing left ankle scale	The scale of limb tone testing for the left ankle, as part of the Modified Ashworth Scale	Supplemental	Modified Ashworth Scale - Limb Tone Testing	False	Cerebral Palsy	Cerebral Palsy
F3042-C09584	C09584	Brief Pain Inventory (BPI) - pain mood interference scale	Scale assessing how much the pain has interfered with mood, as part of the Brief Pain Inventory (BPI) form	Supplemental	Brief Pain Inventory (BPI) Short Form	True	Cerebral Palsy	Cerebral Palsy
F2202-C22897	C22897	Occupation therapy intervention type	The type as related to intervention in occupational therapy	Supplemental	Occupational Therapy Treatment Session: Cerebral Palsy	False	Cerebral Palsy	Cerebral Palsy
F2292-C00700	C00700	Alcohol use stopped age value	Age in years when participant/subject stopped ingesting alcoholic beverages, including social drinking	Supplemental	Behavioral History	False	Cerebral Palsy	Cerebral Palsy
F3051-C59317	C59317	Surgery procedure achilles tendon lengthen ankle laterality type	Laterality type relative to the ankle surgical achilles tendon lengthening procedure undergone by participant/subject	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
F2691-C58511	C58511	Nonspeak communication device type other text	Text describing the presence of any other type of non-speaking communication device used	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F2201-C18768	C18768	Therapy or rehabilitation other text	The free-text field related to 'Therapy or rehabilitation type' specifying other text. Type of therapy or rehabilitation services received by the participant/subject	Supplemental	Rehabilitation Therapies - Episodes of care	False	Cerebral Palsy	Cerebral Palsy
F2291-C14441	C14441	Muscle bulk assessment abnormality indicator	Whether the muscle bulk assessment found any abnormalities	Supplemental	Neurological Examination	False	Cerebral Palsy	Cerebral Palsy
F2016-C56299	C56299	NIH Toolbox Cognitive Cognition total composite national age adjusted percentage value	The national percentile (age adjusted) that the subject is in, with respect to the Cognition Total Composite field of the NIH Toolbox Cognitive Battery	Supplemental	NIH Toolbox Cognitive Battery	False	Cerebral Palsy	Cerebral Palsy
F3051-C59365	C59365	Surgery procedure calcaneal osteotomy ankle laterality type	Laterality type relative to the ankle surgical calcaneal osteotomy procedure undergone by participant/subject	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
F2015-C53702	C53702	Test of Everyday Attention for Children (TEA-Ch) - Opposite worlds same world total time value	Value of the total time (seconds) taken to complete the Same World test of the Opposite Worlds test as related to the Test of Everyday Attention for Children (TEA-Ch) assessment	Supplemental	Test of Everyday Attention for Children (TEA-Ch)	True	Cerebral Palsy	Cerebral Palsy
F2207-C21669	C21669	Surgical therapeutic procedure ICD-10-CM other text	The free-text field related to 'Surgical or therapeutic procedure ICD-10-CM code' specifying other text. Code from the International Classification of Diseases, Tenth Revision, Clinical Modification (ICD-10-CM) for the selected surgical procedure	Supplemental	Surgical and Hospitalization History	False	Cerebral Palsy	Cerebral Palsy
F2198-C22588	C22588	Location post-acute discharge type	Indicates the participant's/ subject's current location after discharge from the acute hospital	Supplemental	Social Status	False	Cerebral Palsy	Cerebral Palsy
F2308-C22850	C22850	Modified Ashworth Scale - Limb tone testing left elbow muscle movement type	The type of the muscle movement of limb tone testing for the left elbow, as part of the Modified Ashworth Scale	Supplemental	Modified Ashworth Scale - Limb Tone Testing	False	Cerebral Palsy	Cerebral Palsy
F2292-C00708	C00708	Alcohol use related to hospitalization indicator	Indicator of whether the participant/subject has been hospitalized for an alcohol-related problem (i.e., esophageal varices, delirium tremens (DTs), cirrhosis and others)	Supplemental	Behavioral History	False	Cerebral Palsy	Cerebral Palsy
F3051-C59325	C59325	Surgery procedure anterior tibialis tendon transfer right ankle type	Type of anterior tibialis tendon transfer surgical procedure performed on the right ankle	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
F2205-C22781	C22781	Risk Factor Questionnaire (RFQ) - ages 2-5 vigorous physical activity indicator	Hours spent doing vigorous physical activities by the subject in an average week between the ages of 2 and 5, as part of the Risk Factor Questionnaire (RFQ) - Physical Activity and Sleep	Supplemental	Risk Factor Questionnaire (RFQ) - Physical Activity and Sleep	False	Cerebral Palsy	Cerebral Palsy
F2691-C58571	C58571	Dynamic lower extremity stretch orthosis splint frequency use laterality type	Laterality type of dynamic lower extremity stretching orthosis splints frequency used by participant/subject	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.