CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2203-C22665	C22665	Medical history chronic constipation indicator	Indicator of whether the participant/subject has/had chronic constipation	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2200-C22636	C22636	Speech language pathology focus area cognitive development skill intervention type	The type of intervention used for cognitive and developmental skills as part of the speech and language therapy treatment session	Supplemental	Speech and Language Therapy Treatment Session	False	Cerebral Palsy	Cerebral Palsy
F1968-C56438	C56438	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Full Scale IQ 2 composite score	The subject's Full Scale IQ composite score for only 2 subtests (Vocabulary and Matrix Reasoning), converted from his/her Full Scale T score for two subtests, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	Supplemental	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	True	Cerebral Palsy	Cerebral Palsy
F2016-C56318	C56318	NIH Toolbox Cognitive List scoring working memory age 7 up raw score	The raw score for the NIHTB List Scoring Working Memory Age 7+ field of the NIH Toolbox Cognitive Battery	Supplemental	NIH Toolbox Cognitive Battery	False	Cerebral Palsy	Cerebral Palsy
F3051-C59355	C59355	Surgery procedure tibial derotational osteotomy external left ankle anatomic site	Anatomic site of the surgical tibial derotational osteotomy external procedure performed on the left ankle	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
F2308-C22105	C22105	Modified Ashworth Scale - Limb tone testing left knee scale	The scale of limb tone testing for the left knee, as part of the Modified Ashworth Scale	Supplemental	Modified Ashworth Scale - Limb Tone Testing	False	Cerebral Palsy	Cerebral Palsy
F3042-C09582	C09582	Brief Pain Inventory (BPI) - relief received percentage number	Indicates the relief received from medication use, as part of the Brief Pain Inventory (BPI) form	Supplemental	Brief Pain Inventory (BPI) Short Form	True	Cerebral Palsy	Cerebral Palsy
F2291-C22888	C22888	Gait daily step count	The mean number of total steps taken in a full, usual day	Supplemental	Neurological Examination	False	Cerebral Palsy	Cerebral Palsy
F3051-C59315	C59315	Surgery procedure gastrocnemius resection right ankle type	Type of gastrocnemius resection surgical procedure performed on the right ankle	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
F2206-C22790	C22790	Risk Factor Questionnaire (RFQ) - residential history age 0-17 residence duration	Duration at residence lived from birth through age 17	Supplemental	Risk Factor Questionnaire (RFQ) - Residential History	False	Cerebral Palsy	Cerebral Palsy
F2691-C58509	C58509	Dedicate speech generating device name	Name of dedicated speech generating device	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F2202-C22596	C22596	Therapy setting type	The setting related to therapy session	Supplemental	Occupational Therapy Treatment Session: Cerebral Palsy	False	Cerebral Palsy	Cerebral Palsy
F2291-C14439	C14439	Motor exam global assessment abnormality type	Global assessment abnormality type found during the motor exam	Supplemental	Neurological Examination	False	Cerebral Palsy	Cerebral Palsy
F2060-C20823	C20823	Patient-Reported Outcome Measurement Information System (PROMIS) - Bedtime sadness assessment past week scale	The scale which represents how often the participant felt sad at bedtime in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	Supplemental	PROMIS Item Bank v1.0 - Sleep Disturbance	True	Cerebral Palsy	Cerebral Palsy
F2203-C22673	C22673	Medical history autism indicator	Indicator of whether participant/subject has Autism	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2200-C22644	C22644	Speech language pathology focus area vocation job intervention type	The type of intervention used for vocation and jobs as part of the speech and language therapy treatment session	Supplemental	Speech and Language Therapy Treatment Session	False	Cerebral Palsy	Cerebral Palsy
F2016-C56327	C56327	NIH Toolbox Cognitive Dimensional change card sort age 3 up unadjusted scale score	The unadjusted scale score for the NIHTB Dimensional Change Card Sort 3+ field of the NIH Toolbox Cognitive Battery	Supplemental	NIH Toolbox Cognitive Battery	False	Cerebral Palsy	Cerebral Palsy
F1968-C51670	C51670	School name	The name of the school that the subject currently attends, if applicable	Supplemental	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	True	Cerebral Palsy	Cerebral Palsy
F3051-C59363	C59363	Surgery procedure hindfoot arthrodesis right ankle anatomic site	Anatomic site of hindfoot arthrodesis surgical procedure performed on the right ankle	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
F2016-C56283	C56283	NIH Toolbox Cognitive Cognition fluid composite raw score	The raw score for the Cognition Fluid Composite field of the NIH Toolbox Cognitive Battery	Supplemental	NIH Toolbox Cognitive Battery	False	Cerebral Palsy	Cerebral Palsy
F2203-C10556	C10556	Pregnant ever indicator	Indicator as to whether or not the participant/subject has every been pregnant, both term and not to term	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F1046-C18874	C18874	Gene variant mutation category other text	The free-text field related to 'Gene variant or mutation category', specifying other text. Category of the variant or mutation detected on the gene	Supplemental	Mutation Analysis	False	Cerebral Palsy	Cerebral Palsy
F2015-C53657	C53657	Test of Everyday Attention for Children (TEA-Ch) - Map mission percentage value	Value of Mission Map percentile band as related to the Test of Everyday Attention for Children (TEA-Ch) assessment	Supplemental	Test of Everyday Attention for Children (TEA-Ch)	True	Cerebral Palsy	Cerebral Palsy
F3050-C59218	C59218	Surgery procedure distal femoral extension osteotomy right knee type	Type of distal femoral extension osteotomy surgical procedure performed on the right knee	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Knee	False	Cerebral Palsy	Cerebral Palsy
F2691-C58479	C58479	Orthosis laterality type	Laterality type of orthoses used by participant/subject	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.