CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 401 - 425 of 1249
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C59238 Surgery procedure rectus femoris release transfer knee perform indicator

Indicator of whether the participant/subject has undergone the knee rectus femoris release/transfer surgical procedure

 Supplemental Lower Extremity Orthopedic Surgical Procedures - Knee False Cerebral Palsy Cerebral Palsy
C22789 Risk Factor Questionnaire (RFQ) - age 12-17 sleep duration indicator

Hours of sleep the subject got in a week between the ages of 12 and 17, as part of the Risk Factor Questionnaire (RFQ)- Physical Activity and Sleep

 Supplemental Risk Factor Questionnaire (RFQ) - Physical Activity and Sleep False Cerebral Palsy Cerebral Palsy
C58499 Transfer device type

Type for all transfer devices currently used by the participant/subject

 Supplemental External Devices - CP False Cerebral Palsy Cerebral Palsy
C22613 Home modification durable medical equipment type

If the participant/ subject was provided with any home modification durable medical equipment, describes the type(s) of equipment received

 Supplemental Rehabilitation Therapies - Episodes of care False Cerebral Palsy Cerebral Palsy
C02411 Laterality type

Laterality type relative to the anatomic site of the body examined or affected

 Supplemental Neurological Examination False Cerebral Palsy Cerebral Palsy
C14703 Berg Balance Scale (BBS) - turn around scale

The scale for assessment of turning 360 degrees based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities

 Supplemental Berg Balance Scale (BBS) False Cerebral Palsy Cerebral Palsy
C20813 Patient-Reported Outcome Measurement Information System (PROMIS) - Awake lousy assessment past week scale

The scale which represents how often the participant felt lousy when he/she woke up in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

 Supplemental PROMIS Item Bank v1.0 - Sleep Disturbance True Cerebral Palsy Cerebral Palsy
C22663 Medical history gastroesophageal reflux disease (GERD) indicator

Indicator of whether the participant/subject has/had gastroesophageal reflux disease

 Supplemental Medical History False Cerebral Palsy Cerebral Palsy
C22634 Speech language pathology focus area language social pragmatic intervention type

The type of intervention used for social language and pragmatics as part of the speech and language therapy treatment session

 Supplemental Speech and Language Therapy Treatment Session False Cerebral Palsy Cerebral Palsy
C12792 Gene whole deletion indicator

Whether the entire gene was deleted

 Supplemental Mutation Analysis False Cerebral Palsy Cerebral Palsy
C51670 School name

The name of the school that the subject currently attends, if applicable

 Supplemental Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) True Cerebral Palsy Cerebral Palsy
C59353 Surgery procedure tibial derotational osteotomy ankle perform type

Type of ankle tibial derotational osteotomy surgical procedure undergone by participant/subject

 Supplemental Lower Extremity Orthopedic Surgical Procedures - Ankle False Cerebral Palsy Cerebral Palsy
C22103 Modified Ashworth Scale - Limb tone testing left hip scale

The scale of limb tone testing for the left hip, as part of the Modified Ashworth Scale

 Supplemental Modified Ashworth Scale - Limb Tone Testing False Cerebral Palsy Cerebral Palsy
C09580 Brief Pain Inventory (BPI) - current pain rating scale

Scale rating the pain the subject is feeling right now, as part of the Brief Pain Inventory (BPI) form

 Supplemental Brief Pain Inventory (BPI) Short Form True Cerebral Palsy Cerebral Palsy
C21107 Gait abnormality assessment other text

The free-text field for other type of abnormal gait

 Supplemental Neurological Examination False Cerebral Palsy Cerebral Palsy
C59313 Surgery procedure gastrocnemius resection ankle laterality type

Laterality type relative to the ankle surgical gastrocnemius resection procedure undergone by participant/subject

 Supplemental Lower Extremity Orthopedic Surgical Procedures - Ankle False Cerebral Palsy Cerebral Palsy
C08669 Risk Factor Questionnaire (RFQ) - birth age 17 residential history first residence pesticide use indicator

Indicator as to whether the participant's/subject's first residence was located near pesticide spraying activities during the span of residence

 Supplemental Risk Factor Questionnaire (RFQ) - Residential History False Cerebral Palsy Cerebral Palsy
C58507 Android application text

Text describing the type of Android application used

 Supplemental External Devices - CP False Cerebral Palsy Cerebral Palsy
C21117 Subject name

Name of subject/participant

 Supplemental Occupational Therapy Treatment Session: Cerebral Palsy False Cerebral Palsy Cerebral Palsy
C14436 Nystagmus type

Type of involuntary movement of the eyeballs; its presence or absence is used to diagnose a variety of neurological and visual disorders

 Supplemental Neurological Examination False Cerebral Palsy Cerebral Palsy
C20821 Patient-Reported Outcome Measurement Information System (PROMIS) - Bedtime worry assessment past week scale

The scale which represents how often the participant felt worried at bedtime in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

 Supplemental PROMIS Item Bank v1.0 - Sleep Disturbance True Cerebral Palsy Cerebral Palsy
C22671 Medical history abnormal sleep EEG indicator

Indicator of whether a participant/subject has/had an abnormal sleep EEG

 Supplemental Medical History False Cerebral Palsy Cerebral Palsy
C22642 Speech language pathology focus area education school intervention type

The type of intervention used for education and school as part of the speech and language therapy treatment session

 Supplemental Speech and Language Therapy Treatment Session False Cerebral Palsy Cerebral Palsy
C53222 Test of Everyday Attention for Children (TEA-Ch) - Sky search correct identified targets deviation excess five percent cutoff count

Count of Sky Search of difference of the number of correctly identified targets in excess of 5% cut-off as related to the Test of Everyday Attention for Children (TEA-Ch) assessment

 Supplemental Test of Everyday Attention for Children (TEA-Ch) True Cerebral Palsy Cerebral Palsy
C12801 Gene point mutation nonsense variant codon type

Type of nonsense variant or point mutation

 Supplemental Mutation Analysis False Cerebral Palsy Cerebral Palsy
Displaying 401 - 425 of 1249

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.