CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2295-C01553	C01553	Blood pressure measurement position type	Indicator of the participant's position during the blood pressure measurement	Supplemental	Vital Signs	False	Cerebral Palsy	Cerebral Palsy
F2200-C22599	C22599	Therapy participant family caregiver count	The number of family members and/or caregivers participating in the treatment session	Supplemental	Speech and Language Therapy Treatment Session	False	Cerebral Palsy	Cerebral Palsy
F2289-C02411	C02411	Laterality type	Laterality type relative to the anatomic site of the body examined or affected	Supplemental	Neuroimaging Cerebral Palsy Magnetic Resonance Imaging	False	Cerebral Palsy	Cerebral Palsy
F2016-C56289	C56289	NIH Toolbox Cognitive Cognition early childhood composite raw score	The raw score for the Cognition Early Childhood Composite field of the NIH Toolbox Cognitive Battery	Supplemental	NIH Toolbox Cognitive Battery	False	Cerebral Palsy	Cerebral Palsy
F2203-C14130	C14130	Seizure focal classification type	The type of focal epileptic seizures, considered to originate within networks limited to one hemisphere, which may be discretely localized or more widely distributed, and may originate in subcortical structures, experience by the participant/subject	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2015-C53666	C53666	Test of Everyday Attention for Children (TEA-Ch) - Score dual task percentage value	Value of the Score dual task Percentile band as related to the Test of Everyday Attention for Children (TEA-Ch) assessment	Supplemental	Test of Everyday Attention for Children (TEA-Ch)	True	Cerebral Palsy	Cerebral Palsy
F3050-C59224	C59224	Surgery procedure hamstring lengthen percutaneous right knee anatomic site	Anatomic site of the surgical hamstring lengthening percutaneous procedure performed on the right knee	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Knee	False	Cerebral Palsy	Cerebral Palsy
F2691-C58485	C58485	Dynamic lower extremity stretch orthosis splint use anatomic site	Anatomic site of the dynamic lower extremity stretching orthosis/splints use	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F2290-C22621	C22621	Pain scale type	The type of pain scale used to measure the patient or client's pain	Supplemental	Physical Therapy Individual Session	False	Cerebral Palsy	Cerebral Palsy
F3049-C59423	C59423	Passive range motion hip joint right side abduction measurement value	Value of the right side hip joint abduction passive range of motion measurement	Supplemental	Lower Extremity Passive Range of Motion Physical Exam	False	Cerebral Palsy	Cerebral Palsy
F2203-C22648	C22648	Medical history optic neuropathy indicator	Indicator of whether the participant/subject has been affected by optic neuropathy	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F3051-C59403	C59403	Surgery procedure first metatarsal osteotomy arthrodesis left ankle type	Anatomic site of first metatarsal osteotomy/arthrodesis surgical procedure performed on the left ankle	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
F2200-C22620	C22620	Child Effort Rating - Overall scale	The scale representing the overall rating for "Child Effort" across the entire session	Supplemental	Speech and Language Therapy Treatment Session	False	Cerebral Palsy	Cerebral Palsy
F2289-C22868	C22868	Imaging magnetic resonance imaging signal abnormality present indicator	The indicator related to magnetic resonance imaging signal abnormalities being present	Supplemental	Neuroimaging Cerebral Palsy Magnetic Resonance Imaging	False	Cerebral Palsy	Cerebral Palsy
F2308-C22862	C22862	Modified Ashworth Scale - Limb tone testing right toes muscle movement type	The type of the muscle movement of limb tone testing for the right toes, as part of the Modified Ashworth Scale	Supplemental	Modified Ashworth Scale - Limb Tone Testing	False	Cerebral Palsy	Cerebral Palsy
F2016-C56297	C56297	NIH Toolbox Cognitive Cognition total composition unadjusted scale score	The total composite unadjusted scale score for the Cognition field of the NIH Toolbox Cognitive Battery	Supplemental	NIH Toolbox Cognitive Battery	False	Cerebral Palsy	Cerebral Palsy
F2203-C17464	C17464	Cardiovascular history abnormal echocardiogram left ventricular hypertrophy indicator	Indicator as to whether the participant/subject has or had an abnormal echocardiogram (ECG) specifically exhibiting left ventricular hypertrophy (LVH)	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2197-C22587	C22587	Paternal birth date	Date (and time, if applicable and known) the father of the participant/subject was born	Supplemental	Demographics	False	Cerebral Palsy	Cerebral Palsy
F2015-C53700	C53700	Test of Everyday Attention for Children (TEA-Ch) - Walk-don't walk deviation from first count	Count of the Walk, don't Walk difference from First (Version A) Walk, Don't Walk total correct count as related to the Test of Everyday Attention for Children (TEA-Ch) assessment	Supplemental	Test of Everyday Attention for Children (TEA-Ch)	True	Cerebral Palsy	Cerebral Palsy
F3052-C59294	C59294	Surgery procedure hip open reduction perform indicator	Indicator of whether the participant/subject has undergone the hip open reduction surgical procedure	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Hip	False	Cerebral Palsy	Cerebral Palsy
F3049-C59441	C59441	Passive range motion knee joint left side popliteal angle measurement value	Value of the left side knee joint popliteal angle passive range of motion measurement	Supplemental	Lower Extremity Passive Range of Motion Physical Exam	False	Cerebral Palsy	Cerebral Palsy
F2203-C22657	C22657	Medical history recurrent pneumonia indicator	Indicator of whether the participant/subject has been diagnosed with recurrent pneumonia	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F3052-C59254	C59254	Surgery procedure adductor lengthen percutaneous left hip anatomic site other text	The free-text field related to "Surgery procedure adductor lengthen percutaneous left hip anatomic site" specifying other text	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Hip	False	Cerebral Palsy	Cerebral Palsy
F2200-C22628	C22628	Face Legs Activity Cry Consolability (FLACC) - Consolability score	The score of the consolability portion as part of the Face, Legs, Activity, Cry, Consolability scale (FLACC)	Supplemental	Speech and Language Therapy Treatment Session	False	Cerebral Palsy	Cerebral Palsy
F2289-C22877	C22877	Imaging brain infarction diagnosis indicator	The indicator related to brain infarction being diagnosed from imaging	Supplemental	Neuroimaging Cerebral Palsy Magnetic Resonance Imaging	False	Cerebral Palsy	Cerebral Palsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.