CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F3042-C09583	C09583	Brief Pain Inventory (BPI) - pain general activity interference scale	Scale assessing how much the pain has interfered with general activity, as part of the Brief Pain Inventory (BPI) form	Supplemental	Brief Pain Inventory (BPI) Short Form	True	Cerebral Palsy	Cerebral Palsy
F2291-C22889	C22889	Sensory system abnormality symptom description text	Text representing the patient's description of his/her abnormal symptoms in his/her sensory system	Supplemental	Neurological Examination	False	Cerebral Palsy	Cerebral Palsy
F3051-C59316	C59316	Surgery procedure achilles tendon lengthen ankle perform indicator	Indicator of whether the participant/subject has undergone the ankle achilles tendon lengthening surgical procedure	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
F2207-C04804	C04804	Hospital discharge date and time	Date (and time, if applicable and known) the participant/subject was discharged from the hospital	Supplemental	Surgical and Hospitalization History	False	Cerebral Palsy	Cerebral Palsy
F2691-C58510	C58510	Nonspeak communication device type	Type for all non-speaking communication devices currently used by the participant/subject	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F2202-C22597	C22597	Therapy participant count	The number of patients participating in the therapy session	Supplemental	Occupational Therapy Treatment Session: Cerebral Palsy	False	Cerebral Palsy	Cerebral Palsy
F2291-C14440	C14440	Muscle bulk assessment anatomic site	Anatomic location of the muscle bulk exam as part of the motor examination	Supplemental	Neurological Examination	False	Cerebral Palsy	Cerebral Palsy
F3053-C59183	C59183	Acetabular index right measurement	The measurement in degrees of the right acetabular index	Supplemental	Pelvic Radiographs	False	Cerebral Palsy	Cerebral Palsy
F3050-C59211	C59211	Surgery procedure anterior hemi epiphyseodesis left knee other text	The free-text field related to "Surgery procedure anterior hemi-epiphyseodesis left knee type" specifying other text	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Knee	False	Cerebral Palsy	Cerebral Palsy
F2691-C58472	C58472	Communications device use indicator	Indicator of whether the participant/subject uses any communication devices	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F3052-C59273	C59273	Surgery procedure psoas lengthen open right hip anatomic site other text	The free-text field related to "Surgery procedure psoas lengthen open right hip anatomic site" specifying other text	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Hip	False	Cerebral Palsy	Cerebral Palsy
F2290-C15910	C15910	Assessment date and time	The date of participant's injury	Supplemental	Physical Therapy Individual Session	False	Cerebral Palsy	Cerebral Palsy
F2203-C19057	C19057	Diabetes mellitus complications other text	The free-text field related to 'Diabetes mellitus complications type' specifying other text. Type(s) of complications related to diabetes mellitus the participant/subject has experienced or is experiencing	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2295-C01523	C01523	Head circumference unit of measure	Unit of measure for the head circumference numerical value	Supplemental	Vital Signs	False	Cerebral Palsy	Cerebral Palsy
F2200-C22594	C22594	Communication Function Classification System communication method used type	The type of communication method(s) used, given by the Communication Function Classification System (CFCS)	Supplemental	Speech and Language Therapy Treatment Session	False	Cerebral Palsy	Cerebral Palsy
F2235-C54631	C54631	Brief Test of Executive Function Adult Version (BRIEF A) - Inconsistency scale score	Score for the Inconsistency Scale, as part of the Brief Test of Executive Function Adult Version (BRIEF A)	Supplemental	Behavior Rating Inventory of Executive Function - Adult Version (BRIEF-A)	True	Cerebral Palsy	Cerebral Palsy
F2016-C56284	C56284	NIH Toolbox Cognitive ? Cognition fluid composite computed score	The computed score for the Cognition Fluid Composite field of the NIH Toolbox Cognitive Battery	Supplemental	NIH Toolbox Cognitive Battery	False	Cerebral Palsy	Cerebral Palsy
F2203-C12207	C12207	Gastrointestinal therapy take nutrition supplement indicator	Indicator whether the participant/subject is taking nutritional supplements	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F1046-C18875	C18875	Gene targeted variant mutational analysis other text	The free-text field related to 'Gene targeted variant or mutational analysis type', specifying other text. Type of targeted variant or mutational analysis performed for the gene	Supplemental	Mutation Analysis	False	Cerebral Palsy	Cerebral Palsy
F2015-C53658	C53658	Test of Everyday Attention for Children (TEA-Ch) - Map mission B score	Score of Mission Map B score as related to the Test of Everyday Attention for Children (TEA-Ch) assessment	Supplemental	Test of Everyday Attention for Children (TEA-Ch)	True	Cerebral Palsy	Cerebral Palsy
F3050-C59219	C59219	Surgery procedure distal femoral extension osteotomy right knee other text	The free-text field related to "Surgery procedure distal femoral extension osteotomy right knee type" specifying other text	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Knee	False	Cerebral Palsy	Cerebral Palsy
F2691-C58480	C58480	AFO type	Type of ankle-foot orthosis (AFO) used by the participant/subject	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F2290-C22603	C22603	Therapy month frequency	The monthly frequency of the patient or client's treatment session	Supplemental	Physical Therapy Individual Session	False	Cerebral Palsy	Cerebral Palsy
F3049-C59417	C59417	Passive range motion hip joint left side internal rotation measurement value	Value of the left side hip joint internal rotation passive range of motion measurement	Supplemental	Lower Extremity Passive Range of Motion Physical Exam	False	Cerebral Palsy	Cerebral Palsy
F2203-C19856	C19856	Medical history gastrostomy tube since last visit indicator	Indicator of Gtube placed since last study visit	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.