CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 226 - 250 of 1249
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C22898 Occupational therapy therapist name

The name related to the occupational therapy therapist

Supplemental Occupational Therapy Treatment Session: Cerebral Palsy Cerebral Palsy Cerebral Palsy
C14460 Reflex assessment anatomic site

The location or category for reflex assessment of limbs

Supplemental Neurological Examination Cerebral Palsy Cerebral Palsy
C53668 Test of Everyday Attention for Children (TEA-Ch) - Score dual task B score

Score of the Score dual task B score as related to the Test of Everyday Attention for Children (TEA-Ch) assessment

Supplemental Test of Everyday Attention for Children (TEA-Ch) Cerebral Palsy Cerebral Palsy
C56346 NIH Toolbox Cognitive – Picture sequence memory age 3 up fully adjusted scale score

The fully adjusted scale score for the NIHTB Picture Sequence Memory Age 3+ field of the NIH Toolbox Cognitive Battery

Supplemental NIH Toolbox Cognitive Battery Cerebral Palsy Cerebral Palsy
C59338 Surgery procedure posterior tibialis lengthen left ankle type

Type of posterior tibialis lengthening surgical procedure performed on the left ankle

Supplemental Lower Extremity Orthopedic Surgical Procedures - Ankle Cerebral Palsy Cerebral Palsy
C52422 Surgical history procedure neurological surgery type

Type of neurological surgery procedure

Supplemental Surgical and Hospitalization History Cerebral Palsy Cerebral Palsy
C58623 Number days week count

Count of days per week a stander used by the participant/subject

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C59201 Gait profile score orthotic condition left value

Value of the clinical index, Gait Profile Score (GPS) that is used to describe the gait pathology on the left side in the orthotic condition

Supplemental Gait Analysis Cerebral Palsy Cerebral Palsy
C56298 NIH Toolbox Cognitive – Cognition total composition age adjusted scale score

The total composite age adjusted scale score for the Cognition field of the NIH Toolbox Cognitive Battery

Supplemental NIH Toolbox Cognitive Battery Cerebral Palsy Cerebral Palsy
C59231 Surgery procedure hamstring lengthen open right knee anatomic site other text

The free-text field related to "Surgery procedure hamstring lengthen open right knee anatomic site" specifying other text

Supplemental Lower Extremity Orthopedic Surgical Procedures - Knee Cerebral Palsy Cerebral Palsy
C22782 Risk Factor Questionnaire (RFQ) - age 2-5 moderate physical activity indicator

Hours spent doing moderate physical activities by the subject in an average week between the ages of 2 and 5, as part of the Risk Factor Questionnaire (RFQ)- Physical Activity and Sleep

Supplemental Risk Factor Questionnaire (RFQ) - Physical Activity and Sleep Cerebral Palsy Cerebral Palsy
C58492 Bath device type

Type for all bathing devices currently used by the participant/subject

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C53701 Test of Everyday Attention for Children (TEA-Ch) - Walk-don't walk deviation excess five percent cutoff coun

Count of the Walk, Don't Walk difference in excess of 5 percent cut-off as related to the Test of Everyday Attention for Children (TEA-Ch) assessment

Supplemental Test of Everyday Attention for Children (TEA-Ch) Cerebral Palsy Cerebral Palsy
C22606 Therapy rehabilitation location type

The location where the participant/subject received their rehabilitation therapy

Supplemental Rehabilitation Therapies - Episodes of care Cerebral Palsy Cerebral Palsy
C22905 Physcial therapy minute duration

The duration in minutes related to physical therapy

Supplemental Physical Therapy Individual Session Cerebral Palsy Cerebral Palsy
C20806 Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep lightness assessment past week scale

The scale which represents how often the participant's sleep was light in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

Supplemental PROMIS Item Bank v1.0 - Sleep Disturbance Cerebral Palsy Cerebral Palsy
C59346 Surgery procedure toe flexor lengthen tenotomy left ankle anatomic site

Anatomic site of the toe flexor lengthen tenotomy procedure performed on the left ankle

Supplemental Lower Extremity Orthopedic Surgical Procedures - Ankle Cerebral Palsy Cerebral Palsy
C22058 Modified Ashworth Scale - Limb tone testing right shoulder scale

The scale of limb tone testing for the right shoulder, as part of the Modified Ashworth Scale

Supplemental Modified Ashworth Scale - Limb Tone Testing Cerebral Palsy Cerebral Palsy
C56308 NIH Toolbox Cognitive ? Picture vocabulary age 3 up fully adjusted scale score

The fully adjusted scale score for the NIHTB Picture Vocabulary Age 3+ field of the NIH Toolbox Cognitive Battery

Supplemental NIH Toolbox Cognitive Battery Cerebral Palsy Cerebral Palsy
C59239 Surgery procedure rectus femoris release transfer knee laterality type

Laterality type relative to the knee surgical rectus femoris release/transfer procedure undergone by participant/subject

Supplemental Lower Extremity Orthopedic Surgical Procedures - Knee Cerebral Palsy Cerebral Palsy
C58500 Transportation device type other text

Text describing the presence of any other transfer device used

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C53709 Test of Everyday Attention for Children (TEA-Ch) - Opposite worlds opposite world total time age scaled value

Value of the Opposite Worlds Opposite World total time age scaled value as related to the Test of Everyday Attention for Children (TEA-Ch) assessment

Supplemental Test of Everyday Attention for Children (TEA-Ch) Cerebral Palsy Cerebral Palsy
C22614 Home medical equipment other text

The free-text field related to Home medical equipment type' specifying other text. If the participant/ subject was provided with any home medical equipment, describes the type(s) of equipment received

Supplemental Rehabilitation Therapies - Episodes of care Cerebral Palsy Cerebral Palsy
C20814 Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep problem assessment past week scale

The scale which represents how often the participant had a problem with sleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

Supplemental PROMIS Item Bank v1.0 - Sleep Disturbance Cerebral Palsy Cerebral Palsy
C22664 Medical history delayed gastric empty indicator

Indicator of whether the participant/subject has/had delayed gastric emptying

Supplemental Medical History Cerebral Palsy Cerebral Palsy
Displaying 226 - 250 of 1249

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.