CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

Displaying 1126 - 1150 of 1249

Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2203-C17480	C17480	Diabetes mellitus complications type	Type(s) of complications related to diabetes mellitus the participant/subject has experienced or is experiencing	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2294-C01012	C01012	Physical exam body system result type	Assessment result of each body system examined	Supplemental	Physical Examination	False	Cerebral Palsy	Cerebral Palsy
F2198-C12819	C12819	Disability benefit indicator	Indicator of whether participant/subject receives disability benefit payments	Supplemental	Social Status	False	Cerebral Palsy	Cerebral Palsy
F2203-C10507	C10507	Genetic diagnosis confirmation type	Manner in which genetic diagnosis was confirmed	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2122-C08529	C08529	36-item Short Form Health Survey (SF-36) - Times worn out score	Score of times feeling worn out during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)	Exploratory	Short Form 36-Item Health Survey (SF-36)	True	Cerebral Palsy	Cerebral Palsy
F2295-C01520	C01520	Head circumference measurement	Circumferential measurement of the head at the widest point - the distance from above the eyebrows and ears and around the back of the head	Supplemental	Vital Signs	False	Cerebral Palsy	Cerebral Palsy
F2203-C10541	C10541	Diabetes treatment type	Type of treatment the participant/subject is receiving or has received for diabetes mellitus	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2197-C00005	C00005	Birth country name	Name for country where the participant/subject was born	Core	Demographics	False	Cerebral Palsy	Cerebral Palsy
F1016-C10971	C10971	Manual muscle testing visit type	The type of visit at which the manual muscle testing was performed	Core	Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale	False	Cerebral Palsy	Cerebral Palsy
F2289-C02411	C02411	Laterality type	Laterality type relative to the anatomic site of the body examined or affected	Supplemental	Neuroimaging Cerebral Palsy Magnetic Resonance Imaging	False	Cerebral Palsy	Cerebral Palsy
F2203-C14130	C14130	Seizure focal classification type	The type of focal epileptic seizures, considered to originate within networks limited to one hemisphere, which may be discretely localized or more widely distributed, and may originate in subcortical structures, experience by the participant/subject	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2197-C00313	C00313	Medical history condition SNOMED CT code	Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject	Core	Demographics	False	Cerebral Palsy	Cerebral Palsy
F1305-C14695	C14695	Berg Balance Scale (BBS) - unsupport sit scale	The scale for assessment of sitting with back unsupported but feet supported on floor or on a stool based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities	Supplemental	Berg Balance Scale (BBS)	False	Cerebral Palsy	Cerebral Palsy
F2292-C00713	C00713	Drug or substance current illicit use indicator	Indicator of participant's/subject's use of illegal drugs, prescription or over-the-counter drugs in the past year for purposes other than those for which they are meant to be used, or in large amounts	Supplemental-Highly Recommended	Behavioral History	False	Cerebral Palsy	Cerebral Palsy
F2207-C17971	C17971	Hospitalization non surgical number	Number used to identify the non-surgical hospitalization being described	Supplemental	Surgical and Hospitalization History	False	Cerebral Palsy	Cerebral Palsy
F2122-C08507	C08507	36-item Short Form Health Survey (SF-36) - Health limited climbing one stair score	Score of surveyee-reported limited climbing one flight of stairs due to physical health as part of version 1.0 of 36-item Short Form Health Survey (SF-36)	Exploratory	Short Form 36-Item Health Survey (SF-36)	True	Cerebral Palsy	Cerebral Palsy
F2201-C18870	C18870	Mobility device other text	The free-text field related to 'Mobility device type' specifying other text. Type for all mobility devices currently used by the participant/subject	Supplemental	Rehabilitation Therapies - Episodes of care	False	Cerebral Palsy	Cerebral Palsy
F2293-C12658	C12658	Clinical event or milestone achieved age value	Age when the participant/subject achieved the clinical event or milestone	Core	Motor Development History	False	Cerebral Palsy	Cerebral Palsy
F2291-C18503	C18503	Assessment unable text	The free-text field to explain why there was no assessment of nystagmus performed	Supplemental	Neurological Examination	False	Cerebral Palsy	Cerebral Palsy
F2122-C08515	C08515	36-item Short Form Health Survey (SF-36) - Limited work activities physical health indicator	Indicator for surveyee-reported limited work or activities as a result of physical health during past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)	Exploratory	Short Form 36-Item Health Survey (SF-36)	True	Cerebral Palsy	Cerebral Palsy
F2291-C18944	C18944	Reflex exam global assessment other text	The free-text field related to 'Reflex exam global assessment result' specifying other text. The global assessment of the ability and condition of reflexes	Supplemental	Neurological Examination	False	Cerebral Palsy	Cerebral Palsy
F2122-C08523	C08523	36-item Short Form Health Survey (SF-36) - Times pep score	Score of times feeling full of pep during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)	Exploratory	Short Form 36-Item Health Survey (SF-36)	True	Cerebral Palsy	Cerebral Palsy
F2206-C08662	C08662	Risk Factor Questionnaire (RFQ) - residential history age 0 17 first residence city text	Text specifying the participant's/subject's first city or town of residence	Supplemental	Risk Factor Questionnaire (RFQ) - Residential History	False	Cerebral Palsy	Cerebral Palsy
F2291-C11026	C11026	Neuromuscular Exam Muscle weakness indicator	Indicator whether there is muscle weakness in the muscle or muscle group examined	Supplemental	Neurological Examination	False	Cerebral Palsy	Cerebral Palsy
F3042-C09581	C09581	Brief Pain Inventory (BPI) - treatment received text	Text of treatment/medication subject receives for the pain, as part of the Brief Pain Inventory (BPI) form	Supplemental	Brief Pain Inventory (BPI) Short Form	True	Cerebral Palsy	Cerebral Palsy

Displaying 1126 - 1150 of 1249

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.