CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2122-C08503	C08503	36-item Short Form Health Survey (SF-36) - Health limited vigorous activities score	Score of surveyee-reported limited vigorous activities due to physical health as part of version 1.0 of 36-item Short Form Health Survey (SF-36)	Exploratory	Short Form 36-Item Health Survey (SF-36)	True	Cerebral Palsy	Cerebral Palsy
F2203-C17461	C17461	Cancer history type text	Text description of the type of cancer the participant/subject was or is diagnosed with	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2197-C18806	C18806	Country of residence other text	The free-text field related to 'Country of residence code' specifying other text. Code (ISO 3166-1 alpha-2) for the country where the participant/subject currently lives	Supplemental	Demographics	False	Cerebral Palsy	Cerebral Palsy
F2203-C17469	C17469	Cardiovascular history arrhythmia indicator	Indicator as to whether the participant/subject has or had a cardiac arrhythmia	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2293-C17493	C17493	Attention deficit disorder attention deficit hyperactivity disorder indicator	Indicator as to whether the participant/subject has or had attention deficit disorder (ADD) or attention deficit hyperactivity disorder (ADHD)	Supplemental	Motor Development History	False	Cerebral Palsy	Cerebral Palsy
F2198-C00205	C00205	Family income range	Range, in U.S. dollars, of the annual pre-tax, pre-deduction total income, of the household of which the participant/subject is a member	Supplemental	Social Status	False	Cerebral Palsy	Cerebral Palsy
F2691-C12673	C12673	Position device use indicator	Indicator of whether the participant/subject uses any positioning devices	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F2203-C17477	C17477	Cardiovascular history congenital heart disease indicator	Indicator as to whether the participant/subject has or had a congenital heart disease	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2294-C00023	C00023	Hand preference type	Hand which the participant/subject uses predominantly, not necessarily the hand he/she writes with exclusively	Core	Physical Examination	False	Cerebral Palsy	Cerebral Palsy
F2198-C12606	C12606	Health insurance private group type	Type of private or group health insurance, if any, in which the participant/subject is currently enrolled	Supplemental	Social Status	False	Cerebral Palsy	Cerebral Palsy
F2235-C15910	C15910	Assessment date and time	The date of participant's injury	Supplemental	Behavior Rating Inventory of Executive Function - Adult Version (BRIEF-A)	True	Cerebral Palsy	Cerebral Palsy
F2122-C08526	C08526	36-item Short Form Health Survey (SF-36) - Times calm peaceful score	Score of times feeling calm and peaceful during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)	Exploratory	Short Form 36-Item Health Survey (SF-36)	True	Cerebral Palsy	Cerebral Palsy
F2203-C17486	C17486	Psychiatric history clinical depressive diagnosis indicator	Indicator as to whether the participant/subject had a depressive disorder diagnosis	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2294-C17402	C17402	Site name	The name of the site for the study	Core	Physical Examination	False	Cerebral Palsy	Cerebral Palsy
F2200-C06058	C06058	Pain problem grade	Grade for the pain problem that indicates whether the person is describing their worst pain problem, their second worst pain problem, or their third worst pain problem	Supplemental	Speech and Language Therapy Treatment Session	False	Cerebral Palsy	Cerebral Palsy
F2203-C10521	C10521	Hearing affected by disease indicator	The indicator of whether the disease/disorder has affected the participant's/subject's hearing	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2122-C08534	C08534	36-item Short Form Health Survey (SF-36) - Healthy as anybody score	Score of how true or false surveyee perceived the statement: I am as healthy as anybody I know, as part of version 1.0 of 36-item Short Form Health Survey (SF-36)	Exploratory	Short Form 36-Item Health Survey (SF-36)	True	Cerebral Palsy	Cerebral Palsy
F2203-C19078	C19078	Cardiovascular history cardiac surgery other text	The free-text field related to 'Cardiovascular history cardiac surgery type' specifying other text. Type of cardiac surgery or mechanical intervention the participant/subject underwent	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2295-C01539	C01539	Temperature measurement	Measurement of the participant's/subject's body temperature	Supplemental	Vital Signs	False	Cerebral Palsy	Cerebral Palsy
F2289-C00001	C00001	Gestational age value	Time elapsed in weeks between the first day of the last normal menstrual period and the day of delivery of the participant/subject	Supplemental	Neuroimaging Cerebral Palsy Magnetic Resonance Imaging	False	Cerebral Palsy	Cerebral Palsy
F2203-C13520	C13520	Dysphagia indicator	Did the participant/subject have dysphagia (difficulty swallowing) identified at bedside assessment? The dysphagia screening should utilize a validated tool that incorporates a swallow assessment and an assessment of level of consciousness and neurological function	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2197-C00028	C00028	Language spoken fluent ISO code	Code (ISO 639-2)for each language that the participant/subject speaks fluently	Supplemental	Demographics	False	Cerebral Palsy	Cerebral Palsy
F2122-C08504	C08504	36-item Short Form Health Survey (SF-36) - Health limited moderate activities score	Score of surveyee-reported limited moderate activities due to physical health as part of version 1.0 of 36-item Short Form Health Survey (SF-36)	Exploratory	Short Form 36-Item Health Survey (SF-36)	True	Cerebral Palsy	Cerebral Palsy
F2201-C14292	C14292	Durable medical equipment indicator	Indicates if the participant/ subject was provided with any durable medical equipment	Supplemental	Rehabilitation Therapies - Episodes of care	False	Cerebral Palsy	Cerebral Palsy
F1305-C14699	C14699	Berg Balance Scale (BBS) - unsupport feet together scale	The scale for assessment of standing unsupported with feet together based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities	Supplemental	Berg Balance Scale (BBS)	False	Cerebral Palsy	Cerebral Palsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.