CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2691-C58474	C58474	Mobility device use distance type	Distance use type with which the participant/subject uses their mobility device(s), if applicable	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F3052-C59275	C59275	Surgery procedure femoral derotation osteotomy hip laterality type	Laterality type relative to the hip surgical femoral derotation osteotomy procedure undergone by participant/subject	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Hip	False	Cerebral Palsy	Cerebral Palsy
F2290-C21117	C21117	Subject name	Name of subject/participant	Supplemental	Physical Therapy Individual Session	False	Cerebral Palsy	Cerebral Palsy
F2200-C22596	C22596	Therapy setting type	The setting related to therapy session	Supplemental	Speech and Language Therapy Treatment Session	False	Cerebral Palsy	Cerebral Palsy
F2016-C56286	C56286	NIH Toolbox Cognitive Cognition fluid composite age adjusted scale score	The age adjusted scale score for the Cognition Fluid Composite field of the NIH Toolbox Cognitive Battery	Supplemental	NIH Toolbox Cognitive Battery	False	Cerebral Palsy	Cerebral Palsy
F2015-C53661	C53661	Test of Everyday Attention for Children (TEA-Ch) - Map mission deviation excess five percent cutoff count	Count of the Mission Map count difference in excess of 5 percent cut-off as related to the Test of Everyday Attention for Children (TEA-Ch) assessment	Supplemental	Test of Everyday Attention for Children (TEA-Ch)	True	Cerebral Palsy	Cerebral Palsy
F3050-C59221	C59221	Surgery procedure hamstring lengthen knee perform type	Type of knee hamstring lengthening surgical procedure undergone by participant/subject	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Knee	False	Cerebral Palsy	Cerebral Palsy
F2691-C58482	C58482	Static upper extremity orthosis splint use frequency type	Frequency type with which the participant/subject uses their static upper extremity orthosis/splints, if applicable	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F2290-C22618	C22618	Therapy session minute duration	The duration of the patient or client's treatment session in minutes	Supplemental	Physical Therapy Individual Session	False	Cerebral Palsy	Cerebral Palsy
F3049-C59419	C59419	Passive range motion hip joint left side external rotation measurement value	Value of the left side hip joint external rotation passive range of motion measurement	Supplemental	Lower Extremity Passive Range of Motion Physical Exam	False	Cerebral Palsy	Cerebral Palsy
F2203-C22478	C22478	Attention deficit hyperactivity disorder indicator	The indicator related to the disorders of attention deficit disorder (ADD) and attention deficit hyperactivity disorder (ADHD)	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2200-C22604	C22604	Therapy consultative frequency	The consultative frequency (less than once a month) of the patient or client's treatment session	Supplemental	Speech and Language Therapy Treatment Session	False	Cerebral Palsy	Cerebral Palsy
F2289-C22865	C22865	Reader initial text	The free-text field related to the initials of the reader	Supplemental	Neuroimaging Cerebral Palsy Magnetic Resonance Imaging	False	Cerebral Palsy	Cerebral Palsy
F2016-C56294	C56294	NIH Toolbox Cognitive Cognition early childhood composite fully adjusted scale score	The fully adjusted scale score for the Cognition Early Childhood field of the NIH Toolbox Cognitive Battery	Supplemental	NIH Toolbox Cognitive Battery	False	Cerebral Palsy	Cerebral Palsy
F2015-C53696	C53696	Test of Everyday Attention for Children (TEA-Ch) - Walk-don't walk age scaled count	Count of the Walk, Don't Walk age scaled count as related to the Test of Everyday Attention for Children (TEA-Ch) assessment	Supplemental	Test of Everyday Attention for Children (TEA-Ch)	True	Cerebral Palsy	Cerebral Palsy
F2691-C58489	C58489	Seat lie position device type	Type of seated or lying position device currently used by the participant/subject	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F2201-C19143	C19143	Activity other text	The free text field related to "Activity types" specifying other text. The type of activity	Supplemental	Rehabilitation Therapies - Episodes of care	False	Cerebral Palsy	Cerebral Palsy
F2015-C53624	C53624	Test of Everyday Attention for Children (TEA-Ch) - Sky search attention score deviation excess five percent cutoff count	Count of the Sky Search attention score difference in excess of 5 percent cut-off as related to the Test of Everyday Attention for Children (TEA-Ch) assessment	Supplemental	Test of Everyday Attention for Children (TEA-Ch)	True	Cerebral Palsy	Cerebral Palsy
F2016-C56351	C56351	NIH Toolbox Cognitive Oral reading recognition english age 7 up national age adjusted percentage value	The national percentile (age adjusted) that the subject is in, with respect to the NIHTB Oral Reading Recognition ENG Age 7+ field of the NIH Toolbox Cognitive Battery	Supplemental	NIH Toolbox Cognitive Battery	False	Cerebral Palsy	Cerebral Palsy
F1968-C56425	C56425	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Verbal Comprehension percentile rank value	The percentile rank the subject placed into with respect to the Verbal Comprehension subtests, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	Supplemental	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	True	Cerebral Palsy	Cerebral Palsy
F3051-C59343	C59343	Surgery procedure toe flexor lengthen left ankle anatomic site	Anatomic site of the surgical toe flexor lengthening procedure performed on the left ankle	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
F2691-C58631	C58631	Position device type use indicator	Indicator whether the participant/subject currently uses the selected types of positioning devices	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F3054-C59206	C59206	Gait stride length orthotic condition right measurement	Value of the distance measured in meters from heel contact to heel contact on the right foot in the orthotic condition	Supplemental-Highly Recommended	Gait Analysis	False	Cerebral Palsy	Cerebral Palsy
F3050-C59236	C59236	Surgery procedure patellar tendon shorten advance left knee type	Type of the surgical patellar tendon shortening/advancement procedure performed on the left knee	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Knee	False	Cerebral Palsy	Cerebral Palsy
F2205-C22787	C22787	Risk Factor Questionnaire (RFQ) - age 12-17 vigorous physical activity indicator	Hours spent doing vigorous physical activities by the subject in an average week between the ages of 12 and 17, as part of the Risk Factor Questionnaire (RFQ)- Physical Activity and Sleep	Supplemental	Risk Factor Questionnaire (RFQ) - Physical Activity and Sleep	False	Cerebral Palsy	Cerebral Palsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.