CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Show All
Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 376 - 400 of 1249
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C19247 Subject ID

Subject identification ID

 Supplemental-Highly Recommended Medical History False Cerebral Palsy Cerebral Palsy
C19247 Subject ID

Subject identification ID

 Core Risk Factor Questionnaire (RFQ) - Physical Activity and Sleep False Cerebral Palsy Cerebral Palsy
C19247 Subject ID

Subject identification ID

 Core Speech and Language Therapy Treatment Session False Cerebral Palsy Cerebral Palsy
C19247 Subject ID

Subject identification ID

 Core Motor Development History False Cerebral Palsy Cerebral Palsy
C19247 Subject ID

Subject identification ID

 Core Vital Signs False Cerebral Palsy Cerebral Palsy
C19500 Assessment performed date

The date of assessment of the examination being performed

 Core Vital Signs False Cerebral Palsy Cerebral Palsy
C19500 Assessment performed date

The date of assessment of the examination being performed

 Supplemental Participant Condition Characteristics False Cerebral Palsy Cerebral Palsy
C19500 Assessment performed date

The date of assessment of the examination being performed

 Supplemental Neurological Examination False Cerebral Palsy Cerebral Palsy
C19500 Assessment performed date

The date of assessment of the examination being performed

 Supplemental Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) True Cerebral Palsy Cerebral Palsy
C19500 Assessment performed date

The date of assessment of the examination being performed

 Supplemental Speech and Language Therapy Treatment Session False Cerebral Palsy Cerebral Palsy
C19835 Pain indicator

Indicator of pain present

 Supplemental Physical Therapy Individual Session False Cerebral Palsy Cerebral Palsy
C19835 Pain indicator

Indicator of pain present

 Supplemental Occupational Therapy Treatment Session: Cerebral Palsy False Cerebral Palsy Cerebral Palsy
C19760 Medical history strabismus diagnosis indicator

Indicator of medical history of strabismus

 Supplemental Medical History False Cerebral Palsy Cerebral Palsy
C19769 Medical history pulmonary aspiration diagnosis indicator

Indicator of history of aspiration

 Supplemental Medical History False Cerebral Palsy Cerebral Palsy
C19835 Pain indicator

Indicator of pain present

 Supplemental Speech and Language Therapy Treatment Session False Cerebral Palsy Cerebral Palsy
C19835 Pain indicator

Indicator of pain present

 Supplemental Medical History False Cerebral Palsy Cerebral Palsy
C19836 Pain anatomic site text

Anatomic Site of body pain

 Supplemental Medical History False Cerebral Palsy Cerebral Palsy
C19856 Medical history gastrostomy tube since last visit indicator

Indicator of Gtube placed since last study visit

 Supplemental Medical History False Cerebral Palsy Cerebral Palsy
C20808 Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep restlessness assessment past week scale

The scale which represents how often the participant's sleep was restless in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

 Supplemental PROMIS Item Bank v1.0 - Sleep Disturbance True Cerebral Palsy Cerebral Palsy
C20816 Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep difficulty assessment past week scale

The scale which represents how often the participant had difficulty falling asleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

 Supplemental PROMIS Item Bank v1.0 - Sleep Disturbance True Cerebral Palsy Cerebral Palsy
C20825 Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep comfortable position trouble assessment past week scale

The scale which represents how often the participant had trouble getting into a comfortable position to sleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

 Supplemental PROMIS Item Bank v1.0 - Sleep Disturbance True Cerebral Palsy Cerebral Palsy
C20809 Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep quality assessment past week scale

The scale which represents the participant's description of his/her sleep quality in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

 Supplemental PROMIS Item Bank v1.0 - Sleep Disturbance True Cerebral Palsy Cerebral Palsy
C20817 Patient-Reported Outcome Measurement Information System (PROMIS) - Prior sleep lay bed long duration past week scale

The scale which represents how often the participant laid in bed for hours waiting to fall asleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

 Supplemental PROMIS Item Bank v1.0 - Sleep Disturbance True Cerebral Palsy Cerebral Palsy
C20827 Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep determination assessment past week scale

The scale which represents how often the participant tried hard to get to sleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

 Supplemental PROMIS Item Bank v1.0 - Sleep Disturbance True Cerebral Palsy Cerebral Palsy
C20810 Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep sufficient assessment past week scale

The scale which represents how often the participant got enough sleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

 Supplemental PROMIS Item Bank v1.0 - Sleep Disturbance True Cerebral Palsy Cerebral Palsy
Displaying 376 - 400 of 1249

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.