CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2207-C12674	C12674	Surgical history procedure scoliosis type	Type of surgical procedure the participant/ subject has undergone for the treatment of scoliosis	Supplemental	Surgical and Hospitalization History	False	Cerebral Palsy	Cerebral Palsy
F2201-C12683	C12683	Mobility device type	Type for all mobility devices currently used by the participant/subject	Supplemental	Rehabilitation Therapies - Episodes of care	False	Cerebral Palsy	Cerebral Palsy
F2201-C18883	C18883	Orthosis other text	The free-text field related to 'Orthosis type' specifying other text. Type of orthosis (i.e., external orthopedic appliance that prevents or assists the movement of the spine or limbs)	Supplemental	Rehabilitation Therapies - Episodes of care	False	Cerebral Palsy	Cerebral Palsy
F2294-C01014	C01014	Physical exam abnormality significance type	An indication if the physical exam abnormality in a specific body system is clinically significant	Supplemental	Physical Examination	False	Cerebral Palsy	Cerebral Palsy
F1968-C00023	C00023	Hand preference type	Hand which the participant/subject uses predominantly, not necessarily the hand he/she writes with exclusively	Supplemental	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	True	Cerebral Palsy	Cerebral Palsy
F2691-C58471	C58471	ADL device use indicator	Indicator of whether the participant/subject uses any ADL (activities of daily living) devices	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F2814-C00001	C00001	Gestational age value	Time elapsed in weeks between the first day of the last normal menstrual period and the day of delivery of the participant/subject	Supplemental	Participant Condition Characteristics	False	Cerebral Palsy	Cerebral Palsy
F2198-C00226	C00226	Health insurance type	Type of insurance that the participant/subject currently has providing coverage for medical, surgical or hospital care	Supplemental	Social Status	False	Cerebral Palsy	Cerebral Palsy
F1807-C00322	C00322	Medical history condition text	Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history	Core	General Core	False	Cerebral Palsy	Cerebral Palsy
F2207-C04804	C04804	Hospital discharge date and time	Date (and time, if applicable and known) the participant/subject was discharged from the hospital	Supplemental	Surgical and Hospitalization History	False	Cerebral Palsy	Cerebral Palsy
F2207-C12675	C12675	Surgical history procedure tendon release type	Type of surgical procedure the participant/ subject has undergone for tendon release	Supplemental	Surgical and Hospitalization History	False	Cerebral Palsy	Cerebral Palsy
F2201-C12943	C12943	Orthosis type	Type of orthosis (i.e., external orthopedic appliance that prevents or assists the movement of the spine or limbs)	Supplemental	Rehabilitation Therapies - Episodes of care	False	Cerebral Palsy	Cerebral Palsy
F2207-C18805	C18805	Hospitalization other text	The free-text field related to 'Hospitalization reason' specifying other text. Reason why the participant/subject was hospitalized, excluding all surgeries	Supplemental	Surgical and Hospitalization History	False	Cerebral Palsy	Cerebral Palsy
F2691-C18870	C18870	Mobility device other text	The free-text field related to 'Mobility device type' specifying other text. Type for all mobility devices currently used by the participant/subject	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F2294-C01015	C01015	Physical exam performed indicator	Indicator of whether a physical exam was performed on the participant/subject	Supplemental	Physical Examination	False	Cerebral Palsy	Cerebral Palsy
F2691-C58472	C58472	Communications device use indicator	Indicator of whether the participant/subject uses any communication devices	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F2295-C01581	C01581	Weight unit of measure	Unit of measure for the weight numerical value	Core	Vital Signs	False	Cerebral Palsy	Cerebral Palsy
F2293-C12665	C12665	Certainty of response type	Certainty of recollection of the response or information	Supplemental	Motor Development History	False	Cerebral Palsy	Cerebral Palsy
F2198-C00202	C00202	Education school participation status	Status of participant/subject's current attendance at school	Supplemental	Social Status	False	Cerebral Palsy	Cerebral Palsy
F2207-C12677	C12677	Surgical history procedure tympanostomy same ear count	Count of times that the participant/subject has undergone tympanostomy tube insertion in the same ear	Supplemental	Surgical and Hospitalization History	False	Cerebral Palsy	Cerebral Palsy
F2207-C18868	C18868	Surgical history procedure scoliosis other text	The free-text field related to 'Surgical history procedure scoliosis type' specifying other text. Type of surgical procedure the participant/ subject has undergone for the treatment of scoliosis	Supplemental	Surgical and Hospitalization History	False	Cerebral Palsy	Cerebral Palsy
F2691-C18883	C18883	Orthosis other text	The free-text field related to 'Orthosis type' specifying other text. Type of orthosis (i.e., external orthopedic appliance that prevents or assists the movement of the spine or limbs)	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F2207-C05108	C05108	Surgical or therapeutic procedure type	Type of surgical or therapeutic procedure received by the participant/subject	Supplemental	Surgical and Hospitalization History	False	Cerebral Palsy	Cerebral Palsy
F2207-C12678	C12678	Hospitalization non surgical total lifetime count	Count of the total number of times that the participant/subject has been hospitalized for a non-surgical reason	Supplemental	Surgical and Hospitalization History	False	Cerebral Palsy	Cerebral Palsy
F2207-C18869	C18869	Surgical history procedure tendon release other text	The free-text field related to 'Surgical history procedure tendon release type' specifying other text. Type of surgical procedure the participant/ subject has undergone for tendon release	Supplemental	Surgical and Hospitalization History	False	Cerebral Palsy	Cerebral Palsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.