CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F3052-C59307	C59307	Surgery procedure arthroplasty hip laterality type	Laterality type relative to the hip surgical arthroplasty procedure undergone by participant/subject	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Hip	False	Cerebral Palsy	Cerebral Palsy
F2016-C56284	C56284	NIH Toolbox Cognitive ? Cognition fluid composite computed score	The computed score for the Cognition Fluid Composite field of the NIH Toolbox Cognitive Battery	Supplemental	NIH Toolbox Cognitive Battery	False	Cerebral Palsy	Cerebral Palsy
F3049-C59454	C59454	Passive range motion ankle joint left side plantarflexion measurement value	Value of the left side ankle joint plantarflexion passive range of motion measurement	Supplemental	Lower Extremity Passive Range of Motion Physical Exam	False	Cerebral Palsy	Cerebral Palsy
F2691-C56951	C56951	Walker use type	Type of walker which the participant/subject uses, if applicable	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F3052-C59267	C59267	Surgery procedure psoas lengthen percutaneous left hip anatomic site other text	The free-text field related to "Surgery procedure psoas lengthen percutaneous left hip anatomic site" specifying other text	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Hip	False	Cerebral Palsy	Cerebral Palsy
F2015-C53658	C53658	Test of Everyday Attention for Children (TEA-Ch) - Map mission B score	Score of Mission Map B score as related to the Test of Everyday Attention for Children (TEA-Ch) assessment	Supplemental	Test of Everyday Attention for Children (TEA-Ch)	True	Cerebral Palsy	Cerebral Palsy
F2289-C22914	C22914	Ventricular dilatation third ventricle qualitative assessment status	The status related to qualitative assessment of third ventricle dilation	Supplemental	Neuroimaging Cerebral Palsy Magnetic Resonance Imaging	False	Cerebral Palsy	Cerebral Palsy
F2814-C58670	C58670	Visual impairment severity type	Type of visual impairment severity of the participant/subject	Supplemental	Participant Condition Characteristics	False	Cerebral Palsy	Cerebral Palsy
F2203-C17486	C17486	Psychiatric history clinical depressive diagnosis indicator	Indicator as to whether the participant/subject had a depressive disorder diagnosis	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2200-C06058	C06058	Pain problem grade	Grade for the pain problem that indicates whether the person is describing their worst pain problem, their second worst pain problem, or their third worst pain problem	Supplemental	Speech and Language Therapy Treatment Session	False	Cerebral Palsy	Cerebral Palsy
F2235-C54622	C54622	Brief Test of Executive Function Adult Version (BRIEF A) - Scale index result 90 percent confidence interval low bound value	Value of the lower bound of the 90% confidence interval for the result of the selected scale or index, as part of the Brief Test of Executive Function Adult Version (BRIEF A)	Supplemental	Behavior Rating Inventory of Executive Function - Adult Version (BRIEF-A)	True	Cerebral Palsy	Cerebral Palsy
F3051-C59359	C59359	Surgery procedure tibial derotational osteotomy internal right ankle anatomic site	Anatomic site of the tibial derotational osteotomy internal procedure performed on the right ankle	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
F2308-C22844	C22844	Modified Ashworth Scale - Limb tone testing left fingers scale	The scale of limb tone testing for the left fingers, as part of the Modified Ashworth Scale	Supplemental	Modified Ashworth Scale - Limb Tone Testing	False	Cerebral Palsy	Cerebral Palsy
F3042-C09586	C09586	Brief Pain Inventory (BPI) - pain normal work interference scale	Scale assessing how much the pain has interfered with normal work, as part of the Brief Pain Inventory (BPI) form	Supplemental	Brief Pain Inventory (BPI) Short Form	True	Cerebral Palsy	Cerebral Palsy
F2016-C56340	C56340	NIH Toolbox Cognitive Picture sequence memory age 3 up raw score	The raw score for the NIHTB Picture Sequence Memory Age 3+ field of the NIH Toolbox Cognitive Battery	Supplemental	NIH Toolbox Cognitive Battery	False	Cerebral Palsy	Cerebral Palsy
F2292-C00702	C00702	Alcohol use started age value	Age in years when participant/subject started ingesting alcoholic beverages, including social drinking	Supplemental	Behavioral History	False	Cerebral Palsy	Cerebral Palsy
F3051-C59319	C59319	Surgery procedure achilles tendon lengthen right ankle type	Type of achilles tendon lengthening surgical procedure performed on the right ankle	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
F2207-C05408	C05408	Hospital admission date and time	Date (and time, if applicable and known) the participant/subject was admitted to the hospital	Supplemental	Surgical and Hospitalization History	False	Cerebral Palsy	Cerebral Palsy
F2691-C58513	C58513	Access communication device type other text	Text describing the presence of any other type of access communication device used	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F2202-C22602	C22602	Therapy week frequency	The weekly frequency of the patient or client's treatment session	Supplemental	Occupational Therapy Treatment Session: Cerebral Palsy	False	Cerebral Palsy	Cerebral Palsy
F2291-C14443	C14443	Muscle tone assessment anatomic site	Anatomic location of the muscle tone as part of the motor examination	Supplemental	Neurological Examination	False	Cerebral Palsy	Cerebral Palsy
F2203-C22677	C22677	Medical history self injurious behavior disorder	Indicator of whether participant/subject has self-injurious behavior disorder	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F1046-C12798	C12798	Gene missense nonsense variant point mutation location type	Type of location of the missense/nonsense variant or point mutation	Supplemental	Mutation Analysis	False	Cerebral Palsy	Cerebral Palsy
F2201-C05135	C05135	Therapy rehabilitation end date time	Date (and time, if applicable and known) on which the therapy or rehabilitation ended	Supplemental	Rehabilitation Therapies - Episodes of care	False	Cerebral Palsy	Cerebral Palsy
F3051-C59367	C59367	Surgery procedure calcaneal osteotomy left ankle sliding anatomic site	Anatomic site of calcaneal osteotomy surgical sliding procedure performed on the left ankle	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.