CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2060-C20810	C20810	Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep sufficient assessment past week scale	The scale which represents how often the participant got enough sleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	Supplemental	PROMIS Item Bank v1.0 - Sleep Disturbance	True	Cerebral Palsy	Cerebral Palsy
F3050-C59226	C59226	Surgery procedure hamstring lengthen percutaneous right knee anatomic site other text	The free-text field related to "Surgery procedure hamstring lengthen percutaneous right knee anatomic site" specifying other text	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Knee	False	Cerebral Palsy	Cerebral Palsy
F2203-C19760	C19760	Medical history strabismus diagnosis indicator	Indicator of medical history of strabismus	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F1968-C00012	C00012	Education level USA type	Highest grade or level of school participant/subject has completed or the highest degree received	Supplemental	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	True	Cerebral Palsy	Cerebral Palsy
F2202-C19835	C19835	Pain indicator	Indicator of pain present	Supplemental	Occupational Therapy Treatment Session: Cerebral Palsy	False	Cerebral Palsy	Cerebral Palsy
F2203-C14127	C14127	Seizure generalized classification type	The type of generalized epileptic seizures, considered to originate at some point within, and rapidly engage, bilaterally distributed networks and may include such bilateral networks as ortical and subcortical structures, but do not necessarily include the entire cortex, experienced by the participant/subject	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2200-C22641	C22641	Speech language pathology focus area leisure community intervention type	The type of intervention used for leisure and/or community as part of the speech and language therapy treatment session	Supplemental	Speech and Language Therapy Treatment Session	False	Cerebral Palsy	Cerebral Palsy
F2290-C22595	C22595	Therapy session type	The type of session in which the patient or client received therapy	Supplemental	Physical Therapy Individual Session	False	Cerebral Palsy	Cerebral Palsy
F3051-C59341	C59341	Surgery procedure toe flexor lengthen ankle perform type	Type of ankle toe flexor lengthening surgical procedure undergone by participant/subject	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
F2016-C56277	C56277	NIH Toolbox Cognitive Cognition crystallized composite raw score	The raw score for the Cognition Crystallized Composite field of the NIH Toolbox Cognitive Battery	Supplemental	NIH Toolbox Cognitive Battery	False	Cerebral Palsy	Cerebral Palsy
F2691-C58626	C58626	Transfer device type other text	Text describing the presence of any other transfer device used	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F2291-C14460	C14460	Reflex assessment anatomic site	The location or category for reflex assessment of limbs	Supplemental	Neurological Examination	False	Cerebral Palsy	Cerebral Palsy
F2060-C20818	C20818	Patient-Reported Outcome Measurement Information System (PROMIS) - Awake early time lack sleep assessment past week scale	The scale which represents how often the participant woke up too early and could not fall back asleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	Supplemental	PROMIS Item Bank v1.0 - Sleep Disturbance	True	Cerebral Palsy	Cerebral Palsy
F3054-C59202	C59202	Gait profile score orthotic condition right value	Value of the clinical index, Gait Profile Score (GPS) that is used to describe the gait pathology on the right side in the orthotic condition	Supplemental	Gait Analysis	False	Cerebral Palsy	Cerebral Palsy
F3050-C59234	C59234	Surgery procedure patellar tendon shorten advance perform indicator	Indicator of whether the participant/subject has undergone the knee patellar tendon shortening/advancement surgical procedure	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Knee	False	Cerebral Palsy	Cerebral Palsy
F2203-C22647	C22647	Medical history high myopia indicator	Indicator of whether the participant/subject has been affected by high myopia	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2015-C53649	C53649	Test of Everyday Attention for Children (TEA-Ch) - Sky search dual task decrement percentage value	Value of the Sky Search dual task decrement percentile band of number of correctly identified targets as related to the Test of Everyday Attention for Children (TEA-Ch) assessment	Supplemental	Test of Everyday Attention for Children (TEA-Ch)	True	Cerebral Palsy	Cerebral Palsy
F2691-C58495	C58495	Toilet device type	Type for all toileting devices currently used by the participant/subject	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F2016-C56321	C56321	NIH Toolbox Cognitive List scoring working memory age 7 up age adjusted scale score	The age adjusted scale score for the NIHTB List Scoring Working Memory Age 7+ field of the NIH Toolbox Cognitive Battery	Supplemental	NIH Toolbox Cognitive Battery	False	Cerebral Palsy	Cerebral Palsy
F2202-C22603	C22603	Therapy month frequency	The monthly frequency of the patient or client's treatment session	Supplemental	Occupational Therapy Treatment Session: Cerebral Palsy	False	Cerebral Palsy	Cerebral Palsy
F2203-C17463	C17463	Cardiovascular history abnormal echocardiogram indicator	Indicator as to whether the participant/subject has or had an abnormal echocardiogram (ECG)	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2201-C06005	C06005	Data collected date and time	Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed	Supplemental	Rehabilitation Therapies - Episodes of care	False	Cerebral Palsy	Cerebral Palsy
F3052-C59256	C59256	Surgery procedure adductor lengthen open hip laterality type	Laterality type relative to the hip open surgical adductor lengthening procedure undergone by participant/subject	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Hip	False	Cerebral Palsy	Cerebral Palsy
F2198-C00204	C00204	Employment current status	Status of participant/subject's current employment	Supplemental	Social Status	False	Cerebral Palsy	Cerebral Palsy
F1968-C21117	C21117	Subject name	Name of subject/participant	Supplemental	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	True	Cerebral Palsy	Cerebral Palsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.